9 Tangible Ways AS Has Helped MeI can tell you 10,000 ways AS has limited me, annoyed me, pained me, frustrated me, and made me feel just awful. I know you can, too. In fact, I... By Lisa Marie Basile4 min readBookmark for laterReactions 0 reactions Comments2 comments
City Living With Chronic Illness, Part 2Read part 1 here (where I go over how city life affects me, and how it's affected others). In this part, I'll go over what people go through when they... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Weekend Hike and the Painful AftermathI thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body some low-impact exercise, and my mind a bit... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments3 comments
Why We Don't Need 2021 ResolutionsWith the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long haul that was 2020, we want to be... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments1 comments
When Our Loved Ones Don’t Get ItI feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time for some, but for others, it may never... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments2 comments
City Living With A Chronic Illness, Part 1I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is an exploration of how we can embrace the... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments2 comments
Removing the Scary Stigma of BiologicsI went into my first rheumatology appointment of the year last week with one thought on my mind: I think I might need to go on biologics again. I'll be... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments10 comments
What Advocating for Yourself Can Look LikeAt the beginning of December, I had adjusted my biologic in the hope to have some relief for the increasing AxSpA symptoms I was experiencing after a brief period of... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments1 comments
Reflecting on my First Year with a nr-AxSpA DiagnosisJanuary 2021 marks one year since my diagnosis of non-radiographic axial spondyloarthritis, or my first AxSpAversary if you will. I can confidently say between a pandemic and a newly diagnosed... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments4 comments
I Bought a Pair of Walking PolesHa, I did it. I purchased a pair of walking poles. Specifically, these walking poles. I am delighted to have them. So this is what happened. A buddy of mine and a fellow... By Lawrence Rick Phillips3 min readBookmark for laterReactions 0 reactions Comments7 comments
I Thank AxSpa for My New Career PathWhen I got diagnosed with AxSpa, I was transitioning in my career. I did not know at the time how much this move was needed and timely. I remember at... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments0 comments
Things My Chronic Illness Has Given MeI try not to sugarcoat the reality of having a chronic illness like ankylosing spondylitis (AS), because it truly sucks. But whether it’s the optimist in me or a coping... By Cassia Pelton3 min readBookmark for laterReactions 0 reactions Comments2 comments
How to Handle Moving Day With ASDaily life with ankylosing spondylitis is complicated. There's the pain, fatigue, brain fog, and flares. But when it's time to move houses, life with AS gets even more complicated. In... By Auldyn Matthews1 min readBookmark for laterReactions 0 reactions Comments5 comments
Why I Started #InjectWithMe Videos on InstagramThe phone rang. It was my rheumatologist. She had denied anything was even wrong with me to begin with, so I was taken aback when she diagnosed me with ankylosing... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Laziness Does Not ExistEditor's note: Recently, I had the privilege of interviewing Dr. Devon Price, a social psychologist who authored the book, Laziness Does Not Exist, which examines a concept that Price calls... By Devon Price-aks5 min readBookmark for laterReactions 0 reactions Comments2 comments
My Decision to Stick With a Biologic, and How It’s HelpedThe decision to start any medication is one that I do not take lightly. I do my due diligence, ask lots of questions at the doctor’s office, thoroughly read the... By Jessica Gama4 min readBookmark for laterReactions 0 reactions Comments4 comments
My 6 Month Update on HumiraI’ve now been on Humira for a whole 6 months. Pandemic time really flies by, doesn’t it? It’s hard to believe I’ve already hit this milestone with Humira, but I’m... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments2 comments
New Chapter, Same DiseaseI am almost 22 years old and entering a new stage in my life. It’s a period of big changes and big decisions. My peers are starting their careers; some... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments4 comments
Everyday Tasks Made Difficult By Ankylosing SpondylitisA few days ago, I was asked how I knew my backache was something more than just that. Other than my rapid decline in mobility, I told them I began... By Katie Saville2 min readBookmark for laterReactions 0 reactions Comments8 comments
A Letter To Everyone With ASIt's okay if you can't clean the house. It's okay if you can't go to dinner with your friends. It's okay if you're not who you used to be. If... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments2 comments