Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to...reactions13comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful...reactions5comments
My Experience Getting Infliximab InfusionsI get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this...reactions3comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were cancelled. People I had felt connected to grew...reactions1comment
Explaining Spondylitis to KidsTwo facts about me: If a kid has any questions, I am going to find the best way to answer them. But, that is not always easy. Axial spondyloarthritis is...reactions3comments
Three Years Since My AS DiagnosisYou would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers to questions like: What led me to be...reactions3comments
Changing to a Plant-Based DietNearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I experience related to axial spondyloarthritis. Let me preface...reactions1comment
Chronic Illness and The Cost Of Living CrisisEarlier this year, I was woken by a call from the BBC radio asking if I would like to join them live on the radio for a debate with two...reactionscomments
Keeping Warm and Cozy With ASThe winter months were always my favorite time of the year as a child, not because I enjoy the cold. I enjoyed the winter because it was almost guaranteed that...reactions2comments
My 6 Tips For Spondylitis WellnessThe most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and reduced range of motion pose formidable challenges to...reactions1comment
Exploring Different Treatment Options for Ankylosing SpondylitisMaking the decision to switch medications for ankylosing spondylitis can be a daunting and overwhelming process. It's important to understand the reasons behind this switch and the potential benefits it...reactions2comments
Yes, ChatGPT Can Help You Manage ASChatGPT, a chatbot powered by artificial intelligence (AI), has been making headlines lately. As a faculty member teaching human-computer interaction, a discipline focused on how humans interact with technology, I...reactions1comment
What I Have Learned From Working With Hundreds of People With AxSpaAs you may or may not know, I am the Co-Founder of Yoga for AS. We are an organization who specialize in teaching people with AxSpa the tools of yoga...reactions1comment
Reasons To Date A SpoonieLet’s be honest - dating with a chronic illness is tough. A quick glance at my tragic love life would more than confirm this fact. We are already in a toxic relationship with...reactionscomments
Food is Medicine: What I Eat In A DayI’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and connection (with myself, nature, others) are all essential...reactions1comment
How to Organize Your Medical RecordsOne aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to our health. Lab tests, x-rays, prescription paperwork, referral...reactions1comment
Becoming My Own Healthcare AdvocateOne of my earliest memories is of the doctor's visits my mother used to attend with my grandmother. I remember my mother taking notes and asking the doctors many questions...reactions2comments
The Sleepless Nights ContinueThe sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get through. The sleepless nights have been not only...reactions15comments
Applying for Disability BenefitsI've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had it for closer to a decade. I first...reactions1comment
What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what their eyes see; and (2) that I need...reactions9comments