Going Through a Breakup With a DisabilityThis is something I wasn’t sure I wanted to talk about openly. It’s hard when you’re in a relationship with someone and...reactions6comments
My Symptoms May Be Invisible, But I am NotA lot of my symptoms are very much invisible. When I was first diagnosed, I felt like I was invisible. Within the...reactionscomments
I Got Disability Support!I have something very exciting to share! After 6 whole years of applying, getting denied, appealing, and getting denied again, I’ve finally...reactions12comments
Grief, Arthritis, and Applying for DisabilityI grieve for myself, but I should say my former self. I no longer grieve the event that caused the grief (that...reactions23comments
Too Disabled To Employ, Not Disabled Enough To HelpGetting diagnosed with AS really took a massive hit on my career. Before my spine started to act up, I was enjoying...reactions5comments
What is My Criteria for a New Rheumatologist?My rheumatologist of the last fifteen or so years is retiring. Talk about striking fear in the heart of a long-term patient...reactions11comments
Grief and Chronic IllnessWe most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to...reactions3comments
Applying for Disability: Interview With Patient Leader Rick PhillipsOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved...reactions5comments
My Medication Temperature TroublesAnkylosing spondylitis is certainly a condition full of challenges. Medications like Enbrel, which I take, are supposed to help. Although sometimes they...reactions12comments
Tips For Surviving The Winter With ASI’ve never been the biggest fan of winter. Deep down I’m a massive child who just wants to wear shorts and a football shirt...reactions9comments
Chronic Illness and The Cost Of Living CrisisEarlier this year, I was woken by a call from the BBC radio asking if I would like to join them live...reactionscomments
Getting Complacent With Self CareHaving a chronic illness like AS can be utterly exhausting. Not only are we already exhausted from the fatigue that it forces...reactions4comments
Finally Getting an Appointment at the Pain Management ClinicAfter suffering with months and months of pain, my family doctor decided to send a referral to the pain clinic here in...reactions8comments
One Year of CosentyxAs I’m writing this, I’m having the worst flare since starting Cosentyx. I have been on Cosentyx for a year now. It has given me my life...reactions2comments
My Post-Surgery Flare Up Without BiologicsI got my breast reduction surgery in early July of this year. It was my first surgery and I got through it...reactions5comments
My New Dose of Cosentyx Put Me Into a FlareOnce a month on Fridays I have picked to have my injection day. You would say I have gotten use to it...reactions10comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've...reactions6comments
Addressing My Gut Health To Help With My AS SymptomsThree years before my diagnosis, while I was playing college tennis, I was having a lot of gut and joint issues. That’s...reactions1comment
3 Tips for Accessing AccommodationsNot long after I was diagnosed with axial spondyloarthritis, I spoke to my doctor about accommodations at college. My pain and brain...reactions3comments
Can Alcohol and AxSpa Party Together?I used to be quite a party animal before I was diagnosed with axial spondyloarthritis! When I studied in France at uni...reactions8comments
