Another Day in My Chronic WorldIt's Wednesday. We made it through the week. Who am I kidding? We made it through half of the week. Last night was a rough night. Tossing and turning, trying... By Nicky-Flikas-aks3 min readBookmark for laterReactions 0 reactions Comments6 comments
Trying to Test My Limits and How it’s Affected MeIf you know me or follow me on Instagram, you know that I regularly use a rollator walker to get around. I use it mostly for my fatigue levels, but... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had thoughts that race one after the other, making... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments4 comments
I Learned to Let Go of My Expectations in OthersFor a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my deteriorating health or didn’t care to try and... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments4 comments
Farming With Ankylosing Spondylitis“Farmers don't just work till the sun goes down, they work until the job is done.” - Unknown After years of being suburbanites, my wife and I moved to a... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments1 comments
Using Fasting to Help With My AxSpaEditor's note: Fasting should not be used by certain people, such as those who have diabetes, a history of disordered eating, or who need to take medications with food. Be... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Powerful Synergy of Lifestyle Change and Medical TreatmentThere often seem to be two opposing camps in managing AS: adopt a healthy lifestyle or take the conventional medical approach. As a Functional Health Coach I see value in... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments0 comments
Does Time Heal All Wounds? Does time heal all wounds? No, it does not, but time can help heal you a little. But I am back and better than ever. Well, I have been better... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments
Life Lessons from Ali's Terrible, Horrible, No Good, Very Bad DayIt was a Monday morning the week before my 40th birthday. I woke up around 5:45 am, put on my robe, and went downstairs for coffee and cereal. I sat... By Ali Cornish5 min readBookmark for laterReactions 0 reactions Comments9 comments
The Downside of Covering Up How I FeelI don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to try and look presentable. I’ll wear bright colours... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments6 comments
Personal Contentment Is Not AccidentalIn my opinion, nothing prepares us for living with arthritis or any other serious chronic illness or disability. We meet these experiences with the resources that we have and do... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Detained For Possession Of ArthritisI have come to the realization that I have the sort of face that airport security can’t help but to "randomly select" for an inspection. So much so that when I... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments8 comments
In Remission, Out of the Community?This community – the one you’re visiting right now via this website – has done so much for me. It’s where I learned what ankylosing spondylitis was in the first... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments10 comments
Dating While Young and DisabledWhen I think of dating in my 20s, it looks different than I expected in a lot of ways. So much of dating is debriefing friends and overthinking signals, these... By Jill King3 min readBookmark for laterReactions 0 reactions Comments1 comments
No, Ankylosing Spondylitis Is Not Rheumatoid Arthritis"I have ankylosing spondylitis or AS," I tell the busy-body woman who I know through friends and family. She's asking me how I'm doing — "and what is it you... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments2 comments
Preparing for Imaging Appointments With Ankylosing SpondylitisPart of life with ankylosing spondylitis includes scans to check for bone change and progression. My disease activity over recent years has been low so my rheumatologist is happy to... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments7 comments
Chronic Illness: What Have You Done for Yourself?I am tired frequently, meandering through the days, dragging my impaired body from room to room, the fatigue so overwhelming. Forget exercise and nutrition to any meaningful capacity. The pain... By Rebecca C6 min readBookmark for laterReactions 0 reactions Comments3 comments
Preparing For My First Trip Post Diagnosis and PandemicEditor's note: Read how James' trip went in his follow up article, "Going on My First Trip Post Diagnosis and Pandemic." Prior to my diagnosis, I was most definitely a frequent... By James Hollens5 min readBookmark for laterReactions 0 reactions Comments2 comments
How We Talk to Our Young Kids About AxSpaBecoming a parent brings so many unanticipated joys and challenges, but one my husband and I never thought about before was how we would talk to the kids about AxSpa... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments4 comments
The Lone WolfWe are wolves. Wolves are powerful, smart, loyal, and travel in packs. In a perfect world, humans should be the same. We have our families and friends we sick by... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments4 comments