Avoiding Cabin Fever During The CoronavirusThe last week has really turned in Philly: schools are closing, offices are encouraging workers to work from home, and the first case of coronavirus was confirmed. In the midst...reactionscomments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic illness communities if people were having a hard...reactions1comment
My AS Life Before DiagnosisI know I’m considered to be one of the lucky ones. From the onset of symptoms to diagnosis, it took one full year. Kudos to those of you that dealt...reactions4comments
I Did Everything Right and Still Got a DiseaseI was recently scrolling through Instagram when I saw a post from a self-proclaimed fitness coach. It said: “No disease is inherited! Laziness causes disease, treat your body right!” First...reactions5comments
If I Can Turn Back TimeEvery day, I wake up hoping today will be a different day. Hoping that today, will be a better day, then the day before. But once I open my eye...reactionscomments
My AS and Travel AnxietyBefore I had AS I loved to travel. I still absolutely love traveling, but now I get terrible anxiety before every trip. I get stomach aches, panic attacks, cry, and...reactionscomments
Adapting To the Disappearance Of Restful SleepIt feels like common knowledge that the right amount of sleep can help with productivity, brain functioning, and maybe even help you live longer. However, for those of us with...reactions6comments
Extra(ordinary): ASers Can Do It AllLet my words go forth from this day and place. We, the people living with ankylosing spondylitis, are extra(ordinary)! (Meaning, our “ordinary” is way more than a little “extra.") We...reactions5comments
My Husband's AS Flare SymptomsI've been part of the Ankylosing Spondylitis community now for a few months. Something that's stuck out to me from reading comments is how different flare-ups feel for each person...reactions13comments
Living With AS: An Interview With Jed FinleyI recently had the pleasure of speaking with AnkylosingSpondylitis.net contributor Jed Finley for the podcast Living With, which explores what it's like to live with a chronic condition. In this...reactions6comments
Ask the Advocates (Part 2): Explaining ASSteff: I had never heard of AS or anything other than just “arthritis” before I was diagnosed. After I was diagnosed, my rheumatologist gave me a pamphlet about AS, and...reactions3comments
Post-Holiday Care for ASI don’t know about you, but the holidays exhaust me. I don’t even have a big family. We see my dad’s side for Christmas Eve, and then it’s just us...reactions3comments
I Am More Than My Diagnosis: A Year in ReviewAs this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019 comes to a close and a new year...reactions1comment
My 2020 AS GoalsThe year 2019 is done for (thank god) and a new decade is upon us. I usually don’t get super excited for the new year, but 2019 was one of...reactions1comment
My Holiday Hibernation ChecklistI can't be the only one jealous that bears get to spend most of the holidays hibernating in caves. They go sauntering into their caves, easy as they please to nap...reactions1comment
New Year WishesI love Christmas. I love everything about it. The joy, the social gatherings, the music (come at me, Michael Buble!), the food, the movies. But it is madness. From panic...reactions6comments
My Recipe For Holiday HibernationDo you ever feel jealous that bears get to hibernate through the holidays? They go sauntering into their caves, easy as they please to nap through the lousy weather, shopping...reactionscomments
I Have A Chronic Illness And Chronic DepressionHaving a chronic illness like ankylosing spondylitis takes its toll on us physically, but it also takes a huge toll on us mentally, too. It’s no secret that a lot...reactions4comments
Dealing With Difficult Family Members Over The HolidaysI’m sure most of us have at least one (or more) family member that just doesn’t quite get what we go through. No matter how many times we try to...reactions3comments
Spondylitis Communication 104: Your Personal PolicyHave you ever seen a high drama press conference? They tend to follow a formula. Something big happened and we know that lots of uncomfortable and repetitive questions are about to fly...reactions4comments