Wake-Up Call: Flare-ups, Alcohol, And Big Life Changes: Part 1I went to Europe for Christmas (as I've done for the past seven years) to be with my partner's family, and it was — to put it 100 percent honestly...Reactions0reactionsComments0 comments
Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is. But with good support always comes some not-so-good...Reactions0reactionsComments2 comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have found myself feeling more inclined than ever to...Reactions0reactionsComments0 comments
COVID-19: Tips To Reduce Your RiskWith all of the news circulating about the novel (new) coronavirus, it can be easy to feel overwhelmed or anxious. This is especially true if you are immune-compromised due to...Reactions0reactionsComments0 comments
COVID-19 Basics for the Immune-CompromisedFor those living with chronic health conditions, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how it can...Reactions0reactionsComments0 comments
FDA Makes Way for Experimental Drugs to Fight COVID-19On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat people with COVID-19. The drugs have been given...Reactions0reactionsComments0 comments
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but people barging in on my carefully planned dinner...Reactions0reactionsComments0 comments
Avoiding Cabin Fever During The CoronavirusThe last week has really turned in Philly: schools are closing, offices are encouraging workers to work from home, and the first case of coronavirus was confirmed. In the midst...Reactions0reactionsComments0 comments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic illness communities if people were having a hard...Reactions0reactionsComments1 comments
My AS Life Before DiagnosisI know I’m considered to be one of the lucky ones. From the onset of symptoms to diagnosis, it took one full year. Kudos to those of you that dealt...Reactions0reactionsComments4 comments
I Did Everything Right and Still Got a DiseaseI was recently scrolling through Instagram when I saw a post from a self-proclaimed fitness coach. It said: “No disease is inherited! Laziness causes disease, treat your body right!” First...Reactions0reactionsComments5 comments
If I Can Turn Back TimeEvery day, I wake up hoping today will be a different day. Hoping that today, will be a better day, then the day before. But once I open my eye...Reactions0reactionsComments0 comments
My AS and Travel AnxietyBefore I had AS I loved to travel. I still absolutely love traveling, but now I get terrible anxiety before every trip. I get stomach aches, panic attacks, cry, and...Reactions0reactionsComments0 comments
Adapting To the Disappearance Of Restful SleepIt feels like common knowledge that the right amount of sleep can help with productivity, brain functioning, and maybe even help you live longer. However, for those of us with...Reactions0reactionsComments6 comments
Extra(ordinary): ASers Can Do It AllLet my words go forth from this day and place. We, the people living with ankylosing spondylitis, are extra(ordinary)! (Meaning, our “ordinary” is way more than a little “extra.") We...Reactions0reactionsComments5 comments
My Husband's AS Flare SymptomsI've been part of the Ankylosing Spondylitis community now for a few months. Something that's stuck out to me from reading comments is how different flare-ups feel for each person...Reactions0reactionsComments13 comments
Living With AS: An Interview With Jed FinleyI recently had the pleasure of speaking with AnkylosingSpondylitis.net contributor Jed Finley for the podcast Living With, which explores what it's like to live with a chronic condition. In this...Reactions0reactionsComments6 comments
Ask the Advocates (Part 2): Explaining ASSteff: I had never heard of AS or anything other than just “arthritis” before I was diagnosed. After I was diagnosed, my rheumatologist gave me a pamphlet about AS, and...Reactions0reactionsComments3 comments
Post-Holiday Care for ASI don’t know about you, but the holidays exhaust me. I don’t even have a big family. We see my dad’s side for Christmas Eve, and then it’s just us...Reactions0reactionsComments3 comments
I Am More Than My Diagnosis: A Year in ReviewAs this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019 comes to a close and a new year...Reactions0reactionsComments1 comments