Articles

When in doubt, write it down. As someone who has for so long relied on a very strong memory, AxSpA put a twist in how I organize my life. Before...

My daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on February the 11th. This year, both of their...

Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling with a flare-up for a few weeks now...

This past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years ago, my AS symptoms began long before then...

Some of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent, and disability support is increasingly hard to obtain...

Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It was open to the public for a nominal...

My friends, we have seen history being made over these past few years. The smart money bets we’ll continue to be subject to volatility and turmoil in every aspect of...

I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures were moved to virtual. This meant I could...

Music has the power to transport me back in time. When I hear a certain song, I find myself thinking about what was happening in my life when I first heard...

I can remember a time when I took walking for granted. I didn’t give my legs a second thought throughout childhood, or as a young adult when I lived in...

I've spent the last two weeks moving. I’ve left the duplex near the highway to the 1800s log cabin on a farm. I know the move will be totally worth...

Brain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without the fatigue but it’s the sporadic cognitive impairments...

I recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease (IBD). Not only did I spend a weekend...

For years now, my fiancé and I have slept separately due to my chronic pain. It hasn’t affected our relationship, thankfully, but it’s not to say it doesn’t make either...

Halloween is all about things that are scary and having an incurable condition is as terrifying as it gets. This got me thinking about a few similarities between the holiday...

It's Wednesday. We made it through the week. Who am I kidding? We made it through half of the week. Last night was a rough night. Tossing and turning, trying...

If you know me or follow me on Instagram, you know that I regularly use a rollator walker to get around. I use it mostly for my fatigue levels, but...

Have you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had thoughts that race one after the other, making...

For a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my deteriorating health or didn’t care to try and...

“Farmers don't just work till the sun goes down, they work until the job is done.” - Unknown After years of being suburbanites, my wife and I moved to a...