Birthday Planning the AxSpa WayMy daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on...reactions5comments
To Go Out or Not to Go Out?Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling...reactions12comments
A Look Back at Seven Years With ASThis past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years...reactions2comments
Tips for Managing at Work With AxSpaSome of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent...reactions1comment
I Tried "Yoga for AS"Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It...reactions3comments
Getting a Degree With AS I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures...reactions2comments
Foreign Music TherapyMusic has the power to transport me back in time. When I hear a certain song, I find myself thinking about what was...reactions6comments
Getting Back to Walking With ASI can remember a time when I took walking for granted. I didn’t give my legs a second thought throughout childhood, or...reactions5comments
My AxSpAnalogy: Steering Through Brain FogBrain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without...reactions3comments
Axial SpA and IBD: A Huge ReminderI recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease...reactions6comments
Chronic Pain & Sleeping Separately in a RelationshipFor years now, my fiancé and I have slept separately due to my chronic pain. It hasn’t affected our relationship, thankfully, but...reactions3comments
Trick Or Treat: How Living With AS Is Like Halloween All Year RoundHalloween is all about things that are scary, and having an incurable condition is as terrifying as it gets. This got me...reactions17comments
Another Day in My Chronic WorldIt's Wednesday. We made it through the week. Who am I kidding? We made it through half of the week. Last night...reactions6comments
Trying to Test My Limits and How it’s Affected MeIf you know me or follow me on Instagram, you know that I regularly use a rollator walker to get around. I...reactions1comment
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had...reactions4comments
I Learned to Let Go of My Expectations in OthersFor a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my...reactions4comments
Using Fasting to Help With My AxSpaEditor's note: Fasting should not be used by certain people, such as those who have diabetes, a history of disordered eating, or...reactions3comments
The Powerful Synergy of Lifestyle Change and Medical TreatmentThere often seem to be two opposing camps in managing AS: adopt a healthy lifestyle or take the conventional medical approach. As...reactionscomments
Does Time Heal All Wounds? Does time heal all wounds? No, it does not, but time can help heal you a little. But I am back and...reactions1comment
Life Lessons from Ali's Terrible, Horrible, No Good, Very Bad DayIt was a Monday morning the week before my 40th birthday. I woke up around 5:45 am, put on my robe, and...reactions9comments
