My AxSpAnalogy: Steering Through Brain FogBrain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without the fatigue but it’s the sporadic cognitive impairments...reactions3comments
Axial SpA and IBD: A Huge ReminderI recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease (IBD). Not only did I spend a weekend...reactions6comments
Chronic Pain & Sleeping Separately in a RelationshipFor years now, my fiancé and I have slept separately due to my chronic pain. It hasn’t affected our relationship, thankfully, but it’s not to say it doesn’t make either...reactions3comments
Trick Or Treat: How Living With AS Is Like Halloween All Year RoundHalloween is all about things that are scary and having an incurable condition is as terrifying as it gets. This got me thinking about a few similarities between the holiday...reactions17comments
Another Day in My Chronic WorldIt's Wednesday. We made it through the week. Who am I kidding? We made it through half of the week. Last night was a rough night. Tossing and turning, trying...reactions6comments
Trying to Test My Limits and How it’s Affected MeIf you know me or follow me on Instagram, you know that I regularly use a rollator walker to get around. I use it mostly for my fatigue levels, but...reactions1comment
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had thoughts that race one after the other, making...reactions4comments
I Learned to Let Go of My Expectations in OthersFor a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my deteriorating health or didn’t care to try and...reactions4comments
Farming With Ankylosing Spondylitis“Farmers don't just work till the sun goes down, they work until the job is done.” - Unknown After years of being suburbanites, my wife and I moved to a...reactions1comment
Using Fasting to Help With My AxSpaEditor's note: Fasting should not be used by certain people, such as those who have diabetes, a history of disordered eating, or who need to take medications with food. Be...reactions3comments
The Powerful Synergy of Lifestyle Change and Medical TreatmentThere often seem to be two opposing camps in managing AS: adopt a healthy lifestyle or take the conventional medical approach. As a Functional Health Coach I see value in...reactionscomments
Does Time Heal All Wounds? Does time heal all wounds? No, it does not, but time can help heal you a little. But I am back and better than ever. Well, I have been better...reactions1comment
Life Lessons from Ali's Terrible, Horrible, No Good, Very Bad DayIt was a Monday morning the week before my 40th birthday. I woke up around 5:45 am, put on my robe, and went downstairs for coffee and cereal. I sat...reactions9comments
The Downside of Covering Up How I FeelI don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to try and look presentable. I’ll wear bright colours...reactions6comments
Personal Contentment Is Not AccidentalIn my opinion, nothing prepares us for living with arthritis or any other serious chronic illness or disability. We meet these experiences with the resources that we have and do...reactions2comments
Detained For Possession Of ArthritisI have come to the realization that I have the sort of face that airport security can’t help but to "randomly select" for an inspection. So much so that when I...reactions8comments
In Remission, Out of the Community?This community – the one you’re visiting right now via this website – has done so much for me. It’s where I learned what ankylosing spondylitis was in the first...reactions10comments
Dating While Young and DisabledWhen I think of dating in my 20s, it looks different than I expected in a lot of ways. So much of dating is debriefing friends and overthinking signals, these...reactions1comment
No, Ankylosing Spondylitis Is Not Rheumatoid Arthritis"I have ankylosing spondylitis or AS," I tell the busy-body woman who I know through friends and family. She's asking me how I'm doing — "and what is it you...reactions2comments
Preparing for Imaging Appointments With Ankylosing SpondylitisPart of life with ankylosing spondylitis includes scans to check for bone change and progression. My disease activity over recent years has been low so my rheumatologist is happy to...reactions7comments