Using Fasting to Help With My AxSpaEditor's note: Fasting should not be used by certain people, such as those who have diabetes, a history of disordered eating, or who need to take medications with food. Be...Reactions0reactionsComments1 comments
The Powerful Synergy of Lifestyle Change and Medical TreatmentThere often seem to be two opposing camps in managing AS: adopt a healthy lifestyle or take the conventional medical approach. As a Functional Health Coach I see value in...Reactions0reactionsComments0 comments
Does Time Heal All Wounds? Does time heal all wounds? No, it does not, but time can help heal you a little. But I am back and better than ever. Well, I have been better...Reactions0reactionsComments1 comments
Life Lessons from Ali's Terrible, Horrible, No Good, Very Bad DayIt was a Monday morning the week before my 40th birthday. I woke up around 5:45 am, put on my robe, and went downstairs for coffee and cereal. I sat...Reactions0reactionsComments9 comments
The Downside of Covering Up How I FeelI don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to try and look presentable. I’ll wear bright colours...Reactions0reactionsComments6 comments
Personal Contentment Is Not AccidentalIn my opinion, nothing prepares us for living with arthritis or any other serious chronic illness or disability. We meet these experiences with the resources that we have and do...Reactions0reactionsComments2 comments
Detained For Possession Of ArthritisI have come to the realization that I have the sort of face that airport security can’t help but to "randomly select" for an inspection. So much so that when I...Reactions0reactionsComments8 comments
In Remission, Out of the Community?This community – the one you’re visiting right now via this website – has done so much for me. It’s where I learned what ankylosing spondylitis was in the first...Reactions0reactionsComments10 comments
Dating While Young and DisabledWhen I think of dating in my 20s, it looks different than I expected in a lot of ways. So much of dating is debriefing friends and overthinking signals, these...Reactions0reactionsComments1 comments
No, Ankylosing Spondylitis Is Not Rheumatoid Arthritis"I have ankylosing spondylitis or AS," I tell the busy-body woman who I know through friends and family. She's asking me how I'm doing — "and what is it you...Reactions0reactionsComments2 comments
Preparing for Imaging Appointments With Ankylosing SpondylitisPart of life with ankylosing spondylitis includes scans to check for bone change and progression. My disease activity over recent years has been low so my rheumatologist is happy to...Reactions0reactionsComments7 comments
Chronic Illness: What Have You Done for Yourself?I am tired frequently, meandering through the days, dragging my impaired body from room to room, the fatigue so overwhelming. Forget exercise and nutrition to any meaningful capacity. The pain...Reactions0reactionsComments3 comments
Preparing For My First Trip Post Diagnosis and PandemicEditor's note: Read how James' trip went in his follow up article, "Going on My First Trip Post Diagnosis and Pandemic." Prior to my diagnosis, I was most definitely a frequent...Reactions0reactionsComments2 comments
How We Talk to Our Young Kids About AxSpaBecoming a parent brings so many unanticipated joys and challenges, but one my husband and I never thought about before was how we would talk to the kids about AxSpa...Reactions0reactionsComments4 comments
The Lone WolfWe are wolves. Wolves are powerful, smart, loyal, and travel in packs. In a perfect world, humans should be the same. We have our families and friends we sick by...Reactions0reactionsComments4 comments
My 5 Necessary ConveniencesI can’t be the only one battling the unfortunate notion that there’s something lazy, inferior, or otherwise wrong about seeking the easiest ways to do things for myself. Years of...Reactions0reactionsComments4 comments
6 Steps For Self-Care SuccessAuthentic self-care is grounded in the actions required to align our needs, desires, and commitments with our actions. It’s a deep process, especially when we aren’t used to spending so...Reactions0reactionsComments2 comments
Baby Steps Are a Big Deal For a BabyI have a hate-love relationship for the term “baby steps.” Maybe this is because of my perspective as a parent (and the hard work it takes to teaching the basics...Reactions0reactionsComments4 comments
Signs Throughout My Life That It Was More Than Just TirednessGrowing up, I went through stages of depression, anxiety, and always not feeling well for long periods of time. I thought it was maybe just my body going through another...Reactions0reactionsComments1 comments
Discussing and Disclosing AS At WorkYou’re sitting at your desk with a heat pad plugged in, on high, and strapped to your lower back. A co-worker walks by, notices your setup, and stops to ask...Reactions0reactionsComments7 comments