The Good Enough Caregiver...For years at the end of the day, I'd sit down on the couch exhausted. I'd look over to my husband, Keegan, who was diagnosed with AS 5 years ago...reactionscomments
Off-Label Use of Biologics for Axial Spondyloarthritis...Some biologics are approved by the U.S. Food and Drug Administration (FDA) to treat axial spondyloarthritis (AxSpA). Others are used off-label. Off-label drugs may be used when someone has not...
Complementary and Integrative Health...Complementary and integrative health (CIH) is a group of medical treatments that are not part of mainstream, or conventional, medicine. Here, mainstream medicine refers to traditional Western medicine practiced by...
Clinical Trial Participation...Every clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study...reactionscomments
Social Security Disability and AxSpA...AxSpA spectrum disorders can have significant effects on your life, including your ability to work – especially if you have a more physically demanding job. Depending on the symptom severity...
Flare-ups, Alcohol, And Big Life Changes: The Results...For the past month and a half, I've been on a health journey provoked by an intense flare-up (see part 1 of this story) that caused my worst-ever flare-up and...reactions1comment
Myths and Misconceptions About Axial Spondyloarthritis...When you are first diagnosed with axial spondyloarthritis (axSpA), you may not understand much about it. Learning about the condition and being able to tell fact from fiction can help...
Emerging Treatment Options for Axial Spondyloarthritis...As more research is done, more treatment options for AxSpA spectrum conditions emerge. While there is still no cure for these conditions, the goals of treatment are to: The classification...
Wake-Up Call: Flare-ups, Alcohol, And Big Life Changes: Part 1...I went to Europe for Christmas (as I've done for the past seven years) to be with my partner's family, and it was — to put it 100 percent honestly...reactionscomments
Who Does Axial Spondyloarthritis Affect?...In order to learn more about a disease, the epidemiology of the disease is studied. Epidemiology involves the study of the way a disease affects populations. This includes the frequency...
Support Is Essential During COVID-19...With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is. But with good support always comes some not-so-good...reactions2comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19...As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have found myself feeling more inclined than ever to...reactionscomments
Coping With Pain...Living with chronic pain can have a major impact on your daily life, affecting everything from your ability to go about everyday activities to your emotional well-being. This can be...
COVID-19: Tips To Reduce Your Risk...With all of the news circulating about the novel (new) coronavirus, it can be easy to feel overwhelmed or anxious. This is especially true if you are immune-compromised due to...reactionscomments
COVID-19 Basics for the Immune-Compromised...For those living with chronic health conditions, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how it can...reactionscomments
FDA Makes Way for Experimental Drugs to Fight COVID-19...On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat people with COVID-19. The drugs have been given...reactionscomments
Developing Your Fatigue Response Plan...Have you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but people barging in on my carefully planned dinner...reactionscomments
Vision Problems (Uveitis) and Axial Spondyloarthritis...Axial spondyloarthritis (axSpA) is an inflammatory form of arthritis. The chronic inflammation that comes with axSpA causes swelling and pain, mainly in the spine but also in other places in...
Biologic and Biosimilar Drugs...Axial spondyloarthritis (axSpA) is a long-term condition with no cure. But treatments such as getting regular exercise and taking medicines can help you manage it. Biologic and biosimilar drugs are...
