Difficulty in Finding Diagnosis...Hello everyone! I'm from Volgograd, Russia. I'm 39 years old. I was diagnosed three months ago, but it was a very difficult journey. It started in January 2024. I felt...reactions5comments
HEREDITARY HEMOCHROMATOSIS DNA MUT...I have one set of faulty H63D and C282Y has anyone had experience with this any suggestions I'm so confused because there's so many things that it could be...reactions3repliesComorbidities
Health Professionals I’ve Added to My AS Team...Over the years I’ve visited a number of different health professionals to help me manage my axial spondyloarthritis. Some have not proven helpful for me personally (both chiropractic and osteopathic...reactions1comment
What early signs did you experience that may have indicated you had axSpa?...Many folks with axSpa have early warning signs that they don't initially pick up on but later realize they are symptoms of axSpa. Did you have any early warning signs...reactions7repliesAwarenessDiagnosisSymptoms
Smoking and axial spondiloarthritis ...Hi.Could someone tell and explain to me how exactly smoking affects axial spondiloarthritis and enthesitis?Thank you in advance...reactions1reply
Pain-night to morning...I'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...reactions8replies
Hi, I would like to chat with people about what I'm going through....Chat with people that understands me and my problems...reactions3repliesAxial Spondyloarthritis
Why Advocating for Yourself Feels Difficult, Especially With Family...For those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my...reactions2comments
Tips For Dating With AS...Dating with a chronic illness sure can be tough. We have a complicated enough relationship with our immune system, so having another one with a human being on top of...reactions3comments
Does anyone have lift chair/recliner/rocker...I’m going to retire my Well know rocker / recliner after 20 years and thinking about getting a lift chair since it’s harder for me to get out of my...reactions23repliesAssistive Devices
Living in assisted living with AS...My brother is 78 and has AS. He was diagnosed about 2 years ago. He is in assisted living due to other health issues but his AS is getting worse...reactions2repliesTreatmentAnkylosing Spondylitis
From Pet to Partner: How My Dog Helps Me Navigate Life With AS...It wasn’t my idea to get a dog. My 9 year old daughter was obsessed. I can’t tell you how many times a day she would tell us she wanted...reactions3comments
My Post-Surgery Flare Up Without Biologics...I got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...reactions5comments
What happened to my ankle??...Hello everyone, I am needing some feedback/info on an issue that gained my attention very quickly. I was Dx with PsA a few years ago and besides a nasty bout...reactions5replies
AS ...Hello what’s the difference between HX AS and DX AS ?...reactions2repliesAnkylosing SpondylitisCommunity Support
My Life Didn’t End When I Was Diagnosed With AS...Seven years ago, my already chaotic, 18-year-old world was rocked. Amidst a blur of final exams, breakdowns and breakups, my back and hips caught fire, or at least that’s how...reactions9comments
Three Reasons I Chose Not to Panic About (Another) Diagnosis...As I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the situation. The alphabet soup of diagnoses I had...reactions4comments
Biologics Side Effects...I recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...reactions6repliesTips & AdviceAxial Spondyloarthritis Side Effects
Extreme weather and flairs...Hello everyone, I know that it's been really hot lately, so I just wanted to send you all positive thoughts, peace, & blessings! Please stay as cool and comfortable as...reactions6replies
Biologics ...I switched from the biologic (Cosentyx) that had been working for a while, to a biologic that was approved for use during pregnancy. Well turns out another baby is just...reactions4repliesTreatment
