explaining why you miss parties...This is a very good question, I have tried different things and I struggle with an answer, If I just don´t show...reactions1replyFriends & Family
Christmas Gifts For People With AS...We are deep into the season of giving and it's got me thinking about what kind of things would make good gifts...reactions2repliesAssistive DevicesCopingTips & Advice
The Struggle for Sleep With AS...My AS has caused endless disruption to my sleep. At my worst, I couldn’t sleep for more than three hours at once...reactions2comments
Why I Stepped Back From This Community for a Break...I've been a devoted part of this community for many years—as a writer, moderator, and Patient Leadership Council member. I've even been...reactions1comment
Getting the correct diagnosis ...I'm interested on hearing your stories. How many of you were misdiagnosed prior to your A S diagnosis?...reactions7repliesAnkylosing Spondylitis
finally on the verge of a diagnosis...hello! i've been dealing with chronic pain and spinal issues for about 20yrs now. when i started experiencing a notable degeneration in...reactions5repliesNewly Diagnosed Community SupportNon-Radiographic Axial Spondyloarthritis
Managing Holiday Gatherings With AxSpa...I left France 15 years ago and I have lived in the UK ever since, but I visit for the holidays. Those...reactions5comments
I have AS , Neuropathy, Chronic Pain & RLS...RLS = Restless Leg Syndrome. Yesterday afternoon My leg started kicking which is an odd time, usually at night. I took all...reactions32repliesAlternative Treatment
What are you thankful for?...Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...reactions5repliesCopingCommunity SupportMental Health
Burning sensation ...Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does...reactions3repliesAxial Spondyloarthritis
Taking Steps To Make Life With AS Easier...My planning and organization skills have always left a lot to be desired. I often find myself going on holiday with zero...reactions2comments
Pain on walking...Hi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed. I am laid wide...reactions15repliesAxial Spondyloarthritis
How Axial Spondyloarthritis Led Me to My Career...When I was 18, I was only one year into my university degree and nowhere near knowing what I wanted to “do...reactions1comment
Pain Level...When asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I...reactions2repliesTips & AdviceCopingMisunderstood
My Experience With Injectable and Infusion Biologics...I’ve been on biologic drugs for my ankylosing spondylitis for 6 years now. I’ve been on 4, actually. Inflectra (infusion), Humira (injection)...reactions3comments
Active 3 days agoWhat is the scariest symptom or complications of axSpa?...Getting an axSpa diagnosis and experiencing the symptoms can be truly frightening. In your opinion, what is the scariest symptom or complication...reactions55repliesSymptomsAxial Spondyloarthritis Ankylosing Spondylitis
Coping With Others’ Judgments and Emerging as We Are...We recently moved into a new community. We've been in our new home for over a year now. Through healing, there's an...reactions9comments
The Differences Between Injectable and Infusion Biologics for AxSpA...Axial spondyloarthritis (axSpA) is a type of inflammatory arthritis that mainly affects the spine and pelvic joints. Biologics – medicines made from...reactions1comment
Injection v Infusion...My doctor and I are discussing switching from my Cosentyx injection to a monthly infusion. We believe the “one dose fits all”...reactions2repliesAxial Spondyloarthritis Ankylosing SpondylitisTreatment
My Experience of Trying Acupuncture For My AS...I’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone...reactions8comments
