What early signs did you experience that may have indicated you had axSpa?...Many folks with axSpa have early warning signs that they don't initially pick up on but later realize they are symptoms of axSpa. Did you have any early warning signs...Reactions0reactionsComments7 repliesAwarenessSymptomsDiagnosis
Smoking and axial spondiloarthritis ...Hi.Could someone tell and explain to me how exactly smoking affects axial spondiloarthritis and enthesitis?Thank you in advance...Reactions0reactionsComments1 replies
Pain-night to morning...I'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...Reactions0reactionsComments8 replies
Hi, I would like to chat with people about what I'm going through....Chat with people that understands me and my problems...Reactions0reactionsComments3 repliesAxial Spondyloarthritis
Why Advocating for Yourself Feels Difficult, Especially With Family...For those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my...Reactions0reactionsComments2 comments
Tips For Dating With AS...Dating with a chronic illness sure can be tough. We have a complicated enough relationship with our immune system, so having another one with a human being on top of...Reactions0reactionsComments3 comments
Does anyone have lift chair/recliner/rocker...I’m going to retire my Well know rocker / recliner after 20 years and thinking about getting a lift chair since it’s harder for me to get out of my...Reactions0reactionsComments23 repliesAssistive Devices
Living in assisted living with AS...My brother is 78 and has AS. He was diagnosed about 2 years ago. He is in assisted living due to other health issues but his AS is getting worse...Reactions0reactionsComments2 repliesTreatmentAnkylosing Spondylitis
From Pet to Partner: How My Dog Helps Me Navigate Life With AS...It wasn’t my idea to get a dog. My 9 year old daughter was obsessed. I can’t tell you how many times a day she would tell us she wanted...Reactions0reactionsComments3 comments
My Post-Surgery Flare Up Without Biologics...I got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...Reactions0reactionsComments5 comments
What happened to my ankle??...Hello everyone, I am needing some feedback/info on an issue that gained my attention very quickly. I was Dx with PsA a few years ago and besides a nasty bout...Reactions0reactionsComments5 replies
The Perfect Solution for Managing AxSpa: Trial and Error...The perfect solution does not exist. But, please keep reading. Every morning I wake up not having any idea what kind of day I am going to have. Sure, I...Reactions0reactionsComments1 comments
AS ...Hello what’s the difference between HX AS and DX AS ?...Reactions0reactionsComments2 repliesCommunity SupportAnkylosing Spondylitis
My Life Didn’t End When I Was Diagnosed With AS...Seven years ago, my already chaotic, 18-year-old world was rocked. Amidst a blur of final exams, breakdowns and breakups, my back and hips caught fire, or at least that’s how...Reactions0reactionsComments9 comments
Three Reasons I Chose Not to Panic About (Another) Diagnosis...As I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the situation. The alphabet soup of diagnoses I had...Reactions0reactionsComments4 comments
Biologics Side Effects...I recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...Reactions0reactionsComments6 repliesAxial Spondyloarthritis Side EffectsTips & Advice
Extreme weather and flairs...Hello everyone, I know that it's been really hot lately, so I just wanted to send you all positive thoughts, peace, & blessings! Please stay as cool and comfortable as...Reactions0reactionsComments6 replies
Biologics ...I switched from the biologic (Cosentyx) that had been working for a while, to a biologic that was approved for use during pregnancy. Well turns out another baby is just...Reactions0reactionsComments4 repliesTreatment
Returning to normal following lower spine surgery - starting PT...Living with AS can present unique challenges, but incorporating physical therapy techniques, especially following major surgery, can help improve flexibility, reduce pain, and enhance overall quality of life. Let's share...Reactions0reactionsComments14 repliesAxial Spondyloarthritis ExerciseSurgery
An Interview With Personal Trainer and AS Patient, John Frazier...Here at AxialSpondyloarthritis.net, we know that fitness and AxSpa can have a complicated relationship. Exercise is important to reduce stiffness and maintain mobility, but it can be difficult to commit...Reactions0reactionsComments1 comments
