Relentless spasms ...I am not new to muscles spasms. The muscles in my low back are always guarding where my lumbar hardware is placed. They started spasming years before the fusion and...Reactions0reactionsComments6 repliesCopingAxial Spondyloarthritis
Awake in the Dark: Navigating Nighttime Pain With Axial Spondyloarthritis...Broken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage when these symptoms crop up. It’s usually the...Reactions0reactionsComments24 comments
What a lovely place...I have just stumbled upon this forum today. Its nice to see everybody being so open and supportive. At this low time, this kindness has felt uplifting, and im hopeing...Reactions0reactionsComments3 repliesCommunity Support
Axial Spondyloarthritis: A Lesson in Traveling With Intention...I’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...Reactions0reactionsComments5 comments
Periphery flare-up stuff...Hey all. I'm back after a year-long hiatus. It's not like I didn't have flare-ups, but I have managed a lot of things fairly well and took my best year-long...Reactions0reactionsComments4 repliesFlare Management
Finding Your Ideal Rheumatologist...Everyone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...Reactions0reactionsComments1 comments
Ankylosing Spondylitis: Navigating Fear and Resilience...I've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...Reactions0reactionsComments6 comments
Medication options...Hi All. This is my first post, I've not spoken to anyone outside of my family/Dr about my AS diagnosis. I have been seeing an NHS rheumatologist for a few...Reactions0reactionsComments6 repliesAnkylosing SpondylitisCommunity SupportAlternative Treatment
Acceptance and Transition After an AxSpa Diagnosis...I am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...Reactions0reactionsComments5 comments
Reflections After Three Years of Being on Cosentyx...We are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...Reactions0reactionsComments6 comments
Achilles Tendon Insertion: How Important?...Did your Achilles tendon/plantar fascia insertions come into consideration in getting a diagnosis? Did you have recurrent Achilles tendonitis or plantar fasciitis (not from sports) and go on to develop...Reactions0reactionsComments2 repliesDiagnosis
Rinvoq ...Ive gone through 3 Biologic treatments all other painkillers i am now put on Rinvoq but im terrified of it should i be does anyone here hsve the dtug or...Reactions0reactionsComments7 repliesAnkylosing SpondylitisAxial Spondyloarthritis
Rinvoq ...O am so tired but ill try to get this right.ive got fibromalalgia and axial and peripheral spondylitis im house bound im on screaming pain tried all Dmards all Biologics...Reactions0reactionsComments1 repliesAnkylosing Spondylitis
Finding Acceptance, Belonging, and Embracing Your Journey...Living with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...Reactions0reactionsComments6 comments
Comparison and Ankylosing Spondylitis...We’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is...Reactions0reactionsComments2 comments
Spinal stenosis ...I had my MRI today for my neck stiffness, pain and vomiting I've been having and it showed Shallow disc bulges more prominent to the right at C3-4 and C4-5...Reactions0reactionsComments7 repliesAlternative TreatmentComorbidities
Why I Trust Biologics to Treat My Ankylosing Spondylitis...Ankylosing spondylitis/axial spondyloarthritis (AS/AxSpA) is a chronic inflammatory disease that primarily affects the spine. It can cause severe pain and stiffness in the joints, leading to a significant decrease in...Reactions0reactionsComments2 comments
Get Grounded Giveaway...The Giveaway is now closed. Thank you for your interest! Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be...Reactions0reactionsComments0 comments
How do you stay grounded during stressful times?...The link between stress and the inflammatory response means it’s crucial to find ways to destress in stressful times. Share your best tips for staying grounded when life gets overwhelming...Reactions0reactionsComments77 repliesCopingMental HealthFlare Management
How I Spend My Self-Care Days...Living with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and...Reactions0reactionsComments0 comments
