It Finally Happened: I Fractured My Spine...I spent about half a year thinking I was experiencing a recurrent, terrible axial spondyloarthritis (AxSpA) flare-up only to learn that I had, in fact, a spinal fracture (spondylolysis). The...reactions8comments
Ankylosing Spondylitis or lung cancer?...Hi all, I have just joined this forum because my dad is having some tests at the hospital. A couple of weeks ago, he went for a PET CT, arranged...reactions1reply
Insurance is Crucial for Patients With AxSpA...I was informed I had a gene mutation a few months ago that could contribute to more severe health complications down the line. After speaking with my healthcare team, we...reactions2comments
Handwriting is hetting horribble...As my back and shoulders curve, I have noticed that my handwriting is getting worse and worse. Has anyone else experienced this?...reactions2repliesSymptoms
Bracing...My back is starting to curve more than I expected. In one of the articles I read, using a brace may help slow down progression of the shoulders. Has anyone...reactions14repliesSymptomsAssistive Devices
The Never Ending Flare...I'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain...reactions17comments
Difficulty in Finding Diagnosis...Hello everyone! I'm from Volgograd, Russia. I'm 39 years old. I was diagnosed three months ago, but it was a very difficult journey. It started in January 2024. I felt...reactions5comments
Learning to Manage AxSpa is a Marathon...They say “Life is a marathon, not a sprint.” The meaning is that we shouldn’t get hung up on the little events we experience. Life goes on for a long...reactions1comment
HEREDITARY HEMOCHROMATOSIS DNA MUT...I have one set of faulty H63D and C282Y has anyone had experience with this any suggestions I'm so confused because there's so many things that it could be...reactions3repliesComorbidities
Health Professionals I’ve Added to My AS Team...Over the years I’ve visited a number of different health professionals to help me manage my axial spondyloarthritis. Some have not proven helpful for me personally (both chiropractic and osteopathic...reactions1comment
What early signs did you experience that may have indicated you had axSpa?...Many folks with axSpa have early warning signs that they don't initially pick up on but later realize they are symptoms of axSpa. Did you have any early warning signs...reactions7repliesAwarenessSymptomsDiagnosis
Smoking and axial spondiloarthritis ...Hi.Could someone tell and explain to me how exactly smoking affects axial spondiloarthritis and enthesitis?Thank you in advance...reactions1reply
Pain-night to morning...I'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...reactions8replies
Hi, I would like to chat with people about what I'm going through....Chat with people that understands me and my problems...reactions3repliesAxial Spondyloarthritis
Why Advocating for Yourself Feels Difficult, Especially With Family...For those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my...reactions2comments
Tips For Dating With AS...Dating with a chronic illness sure can be tough. We have a complicated enough relationship with our immune system, so having another one with a human being on top of...reactions3comments
Does anyone have lift chair/recliner/rocker...I’m going to retire my Well know rocker / recliner after 20 years and thinking about getting a lift chair since it’s harder for me to get out of my...reactions23repliesAssistive Devices
Living in assisted living with AS...My brother is 78 and has AS. He was diagnosed about 2 years ago. He is in assisted living due to other health issues but his AS is getting worse...reactions2repliesTreatmentAnkylosing Spondylitis
From Pet to Partner: How My Dog Helps Me Navigate Life With AS...It wasn’t my idea to get a dog. My 9 year old daughter was obsessed. I can’t tell you how many times a day she would tell us she wanted...reactions3comments
My Post-Surgery Flare Up Without Biologics...I got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...reactions5comments
