Finding Your Ideal Rheumatologist...Everyone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...Reactions0reactionsComments1 comments
Ankylosing Spondylitis: Navigating Fear and Resilience...I've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...Reactions0reactionsComments6 comments
Medication options...Hi All. This is my first post, I've not spoken to anyone outside of my family/Dr about my AS diagnosis. I have been seeing an NHS rheumatologist for a few...Reactions0reactionsComments6 repliesCommunity SupportAnkylosing SpondylitisAlternative Treatment
Acceptance and Transition After an AxSpa Diagnosis...I am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...Reactions0reactionsComments5 comments
Reflections After Three Years of Being on Cosentyx...We are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...Reactions0reactionsComments6 comments
Achilles Tendon Insertion: How Important?...Did your Achilles tendon/plantar fascia insertions come into consideration in getting a diagnosis? Did you have recurrent Achilles tendonitis or plantar fasciitis (not from sports) and go on to develop...Reactions0reactionsComments2 repliesDiagnosis
Rinvoq ...Ive gone through 3 Biologic treatments all other painkillers i am now put on Rinvoq but im terrified of it should i be does anyone here hsve the dtug or...Reactions0reactionsComments7 repliesAnkylosing SpondylitisAxial Spondyloarthritis
Rinvoq ...O am so tired but ill try to get this right.ive got fibromalalgia and axial and peripheral spondylitis im house bound im on screaming pain tried all Dmards all Biologics...Reactions0reactionsComments1 repliesAnkylosing Spondylitis
Finding Acceptance, Belonging, and Embracing Your Journey...Living with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...Reactions0reactionsComments6 comments
Comparison and Ankylosing Spondylitis...We’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is...Reactions0reactionsComments2 comments
Spinal stenosis ...I had my MRI today for my neck stiffness, pain and vomiting I've been having and it showed Shallow disc bulges more prominent to the right at C3-4 and C4-5...Reactions0reactionsComments7 repliesAlternative TreatmentComorbidities
Why I Trust Biologics to Treat My Ankylosing Spondylitis...Ankylosing spondylitis/axial spondyloarthritis (AS/AxSpA) is a chronic inflammatory disease that primarily affects the spine. It can cause severe pain and stiffness in the joints, leading to a significant decrease in...Reactions0reactionsComments2 comments
Get Grounded Giveaway...The Giveaway is now closed. Thank you for your interest! Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be...Reactions0reactionsComments0 comments
How do you stay grounded during stressful times?...The link between stress and the inflammatory response means it’s crucial to find ways to destress in stressful times. Share your best tips for staying grounded when life gets overwhelming...Reactions0reactionsComments79 repliesCopingMental HealthFlare Management
How I Spend My Self-Care Days...Living with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and...Reactions0reactionsComments0 comments
Starting biologics ...I’m new to this! Recently diagnosed with AS.. My delivery for my biologics is coming on Friday and I am super nervous!! Any advice or tips?...Reactions0reactionsComments2 repliesAnkylosing SpondylitisNewly DiagnosedTips & Advice
Investing in Tools That Help Make Life Easier With AS...Someone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve...Reactions0reactionsComments16 comments
Don't Let What You Have Define Who You Are...I have a dual diagnosis plus a genetic diagnosis: ankylosing spondylitis (AS), Ehlers-Danlos syndrome (EDS), and secondary progressive multiple sclerosis (MS). I do not let my diseases define me. Friends...Reactions0reactionsComments2 comments
Histamines, Autoimmune Conditions, and Axial Spondyloarthritis...Histamine is a chemical that plays a key role in allergies. It is also involved in inflammation and autoimmune conditions. When it is released from immune cells, histamine triggers events...Reactions0reactionsComments1 comments
My Most Valuable AxSpa Strategy Is Pacing...After my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and...Reactions0reactionsComments8 comments
