Will a Breast Reduction Help My AxSpa Symptoms?...I was sitting my rheumatologist's office, when he mentioned "I think you should look into a breast reduction." This never crossed my mind. I was so angry at my doctor...reactions5comments
"Ask Me Anything" With a Health Coach...Are you living with axial spondyloarthritis (AxSpA) and looking for ways to improve your quality of life? Do you have questions about how lifestyle changes can help you manage your...reactionscomments
"Ask Me Anything" With a Health Coach...*Updated at 4:00 PM EST on 6/20/2024* The live event is now over. Thank you for participating in our Ask Me Anything! This thread will be kept open for a...reactions12replies
Quitting Is Not Giving Up: Learning Your AxSpa Limitations...I used to be a runner, a golfer, ice hockey player, and could stay up all night laying down floor tiles. I once created 12 six-foot tall plywood letters, and...reactions4comments
Learning from Experience...Late in 2020, full into the pandemic was when I finally got the courage to look up ankylosing spondylitis (AS) online. This was a diagnosis I’d had for almost a...reactions1comment
Tips For Weightlifting With AS...Since I was a teenager, I have always enjoyed lifting weights at the gym. It was probably the first hobby I had that didn’t get me into trouble! I loved...reactions11comments
Relentless spasms ...I am not new to muscles spasms. The muscles in my low back are always guarding where my lumbar hardware is placed. They started spasming years before the fusion and...reactions6repliesAxial Spondyloarthritis Coping
Awake in the Dark: Navigating Nighttime Pain With Axial Spondyloarthritis...Broken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage when these symptoms crop up. It’s usually the...reactions24comments
What a lovely place...I have just stumbled upon this forum today. Its nice to see everybody being so open and supportive. At this low time, this kindness has felt uplifting, and im hopeing...reactions3repliesCommunity Support
Axial Spondyloarthritis: A Lesson in Traveling With Intention...I’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...reactions7comments
Periphery flare-up stuff...Hey all. I'm back after a year-long hiatus. It's not like I didn't have flare-ups, but I have managed a lot of things fairly well and took my best year-long...reactions4repliesFlare Management
Finding Your Ideal Rheumatologist...Everyone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...reactions1comment
Ankylosing Spondylitis: Navigating Fear and Resilience...I've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...reactions6comments
Medication options...Hi All. This is my first post, I've not spoken to anyone outside of my family/Dr about my AS diagnosis. I have been seeing an NHS rheumatologist for a few...reactions6repliesCommunity SupportAnkylosing SpondylitisAlternative Treatment
Acceptance and Transition After an AxSpa Diagnosis...I am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...reactions5comments
Reflections After Three Years of Being on Cosentyx...We are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...reactions6comments
Achilles Tendon Insertion: How Important?...Did your Achilles tendon/plantar fascia insertions come into consideration in getting a diagnosis? Did you have recurrent Achilles tendonitis or plantar fasciitis (not from sports) and go on to develop...reactions2repliesDiagnosis
Rinvoq ...Ive gone through 3 Biologic treatments all other painkillers i am now put on Rinvoq but im terrified of it should i be does anyone here hsve the dtug or...reactions7repliesAxial Spondyloarthritis Ankylosing Spondylitis
Rinvoq ...O am so tired but ill try to get this right.ive got fibromalalgia and axial and peripheral spondylitis im house bound im on screaming pain tried all Dmards all Biologics...reactions1replyAnkylosing Spondylitis
Finding Acceptance, Belonging, and Embracing Your Journey...Living with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...reactions6comments
