My Experience With Switching Biologics...I started biologics in July of 2020, a nerve-wracking experience for me. I was on Cimzia for 3 months, I did not have a pleasant experience with Cimzia. I wrote articles about this that you can read. I...Reactions0reactionsComments5 comments
Jamie Boder...Jamie Boder experienced symptoms of AS from his early teens and was diagnosed at 18 along with Crohn’s Disease. The dark night of the soul. Feeling hopeless, lost, and fearful...
My Third Of Many COVID Jabs?...Last Thursday I was lucky enough to get my third Pfizer vaccination to protect me from this pesky coronavirus that doesn’t seem to be leaving us anytime soon. This COVID...Reactions0reactionsComments2 comments
I Cherish My Precious Attention...With AxSpa we can experience brain fog, difficulty to stay focused, lack of attention, and short attention span. That is the kind of thing that strikes me the most with...Reactions0reactionsComments8 comments
What Brain Fog Looks Like for Me...Do you ever struggle with remembering where you put things, forming complete thoughts, or even remembering what you were thinking about doing 2 minutes ago and now you’re standing in...Reactions0reactionsComments21 comments
My AxSpA Weatherman...It’s raining again, I think to myself. I peek out the window and sure enough, there’s a downpour. I don’t need to see rain in the forecast, I can feel...Reactions0reactionsComments3 comments
5 Things That Make Shopping Easier...Shopping is not my favorite thing. It was kind of fun before arthritis, but these days it’s just something that I have to get done. It’s the classic trickster’s trap...Reactions0reactionsComments6 comments
My Experience with Ontario Disability (ODSP)...Right before Covid hit I had made the hard decision to apply for Ontario Disability (ODSP) and quit my job. I had been considering it for months as my symptoms...Reactions0reactionsComments2 comments
Any Advice For Applying For Disability?...Hey guys! I have a phone appointment booked this Friday to discuss my application for PIP, which is the UK's version of disability support. When I was diagnosed 3 years...Reactions0reactionsComments14 repliesTips & AdviceInsurance & Disability
Soothing tricks and habits?...I attended a lovely gathering online last night, a remote version of Ceilidhs (Scottish/ Irish social tradition). We listen to few turns of tunes, stories, songs or poems, then we...Reactions0reactionsComments4 repliesCopingMental HealthTips & Advice
Acupuncture ...Just curious about people's experience with continued acupuncture treatment . It has given me my life back and wanting so see how many have tried it and stuck with it....Reactions0reactionsComments17 replies
All Wins Are Big Wins...One of the most frustrating things that happens when living with AS is the tendency to judge ourselves against our pre-diagnosis selves or others who live without AS. I have certainly...Reactions0reactionsComments2 comments
Write It Down...I have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from or inhabit our...Reactions0reactionsComments10 comments
My COVID-19 Booster Vaccine Experience...I was supposed to get my third Covid vaccine on the 9th of October. I postponed it as I was feeling so unwell from an awful flare. This flare has been going...Reactions0reactionsComments1 comments
First Event Going Out With AxSpa...It has been 2 and a half years of being on sick leave. I got lucky in a way, as my diagnosis happened right before the pandemic. As Covid came...Reactions0reactionsComments2 comments
A Spoonie Thanksgiving...As a London boy, my knowledge of Thanksgiving is very limited and mostly stolen from episodes of Friends which I used to watch as a teen. However, from what I...Reactions0reactionsComments10 comments
Exercise pain...Does anyone experience pain when doing simple yoga moves? I am finding it very painful in the lower back when raising my legs behind me when lying on my stomach...Reactions0reactionsComments5 replies
What Helps Me Get Through My Flares...Getting my diagnosis was the easy part. On the other hand, getting through flares, that was a different story. My doctors never explained to me anything about what flares were...Reactions0reactionsComments0 comments
The Struggle to Maintain Friendships with Chronic Fatigue...Building connections with others is one of the most special components of the human experience. Our connection, bonds, and memories with those who understand us is what makes life sparkle...Reactions0reactionsComments5 comments
The Art of At-Home Massage...Light up some candles. Get the aromatherapy going. Put on some soothing music. It's time for an at-home massage. At least, that's what it's like when I set up an...Reactions0reactionsComments2 comments