Stories

I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything...

I used to be an extremely busy, anxious, workaholic. I was a high school Drama teacher & head of my school’s Music and Drama departments. I would beam when people...

I will be saying farewell to this amazing group. I have been battling what my doctors and I thought was advanced AS. I am 65 years old and was diagnosed...

I think I’ve had AS forever. When I was 16 or so, my hips clicked all the time. I was told I have the gene HLA-B27 in my early 30s...

In a land shrouded by melancholy’s embrace, there dwelt a man whose spirit had succumbed to shadows. His once agile frame now burdened by an affliction, an unyielding pain that...

Before I had a clue of this awful illness my back was killing me. Out of options, Ithought I would try a chiropractor as my wife swears by them. So...

This is my condensed story on how I got AS, diagnosed and live with it on an hourly basis. I am now 63, retired and submitted for disability, refused, resubmitted...

I find myself envying those with a diagnosis. I am pretty sure that I tick all the boxes for non-radiographic axialspondyloarthritis. It stated 50 years ago with back pain and...

I was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can...

In my world we use the words "a bit at a time" because we do not hurry and don’t need to. I just turned 72 and a lot of days...

The pain has brought a different flavor to my life. Much as seasonings bring out different flavors in foods. It's like not having the normal ingredients to make a certain...

I am 67 years old. I have been diagnosed with AS since 1982. I experienced great pain in my hips, SI joints, chest, wrists and other bones. I never believed...

I recently broke out with red bumps on my hands and arms. It started last summer. At first I thought maybe it was something in my garden, but by the...

I'm a 76-year-old woman diagnosed with ankylosing spondylitis, uveitis, fibromyalgia, a white brain matter disease, asthma, etc. I am not sure if the brain fog is AS-related or if it...

I was diagnosed with AS about a year ago. Two months ago, I switched from injections to infusions and have been in a horrible flare waiting for the new medication...

"One day you will tell your story of how you overcame what you went through and will become part of someone else's survival guide." -Brene Brown I grew up extremely...

I’m a 60-year-old female who has lived with non-radiographic axial spondyloarthritis since my late teens. It started with SI joint pain, hip bursitis and enthesopathy, IBS, and fatigue. Later, a...

I tried 3x times to get PIP. It's pure hell, embarrassing, and demeaning from having a solicitor with me who went back in the room and gave them all hell...

We know in life, there is a prepping stage for all things. The same holds true for surgery. I am in that preparation phase now. This is what it looks...

I have HLAB 27 POSITIVE and was diagnosed with ankylosing spondylitis. I have 4 rods and screws, this May I had a piece of bone removed from my spine, which...