Difficulty in Finding DiagnosisHello everyone! I'm from Volgograd, Russia. I'm 39 years old. I was diagnosed three months ago, but it was a very difficult journey. It started in January 2024. I felt...Reactions0reactionsComments2 comments
Learning from ExperienceLate in 2020, full into the pandemic was when I finally got the courage to look up ankylosing spondylitis (AS) online. This was a diagnosis I’d had for almost a...Reactions0reactionsComments1 comments
Don't Let What You Have Define Who You AreI have a dual diagnosis plus a genetic diagnosis: ankylosing spondylitis (AS), Ehlers-Danlos syndrome (EDS), and secondary progressive multiple sclerosis (MS). I do not let my diseases define me. Friends...Reactions0reactionsComments1 comments
Surgical Procedure That Actually HelpedI finally found a spine pain management doctor who was actually interested in resolving my lumbar agony. He did a lot of testing with injections and imaging. He had a...Reactions0reactionsComments1 comments
"There's nothing wrong with you. You look fine."When I was younger, I was active and would rush to be around friends and family. We lived life like there were no worries. Then, I started hurting while I...Reactions0reactionsComments1 comments
Life Has Flipped Upside DownI'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything...Reactions0reactionsComments1 comments
AxSpA Has Made Me a Calmer PersonI used to be an extremely busy, anxious, workaholic. I was a high school Drama teacher & head of my school’s Music and Drama departments. I would beam when people...Reactions0reactionsComments2 comments
Misdiagnosed With Ankylosing SpondylitisI will be saying farewell to this amazing group. I have been battling what my doctors and I thought was advanced AS. I am 65 years old and was diagnosed...Reactions0reactionsComments18 comments
How I’ve ChangedI think I’ve had AS forever. When I was 16 or so, my hips clicked all the time. I was told I have the gene HLA-B27 in my early 30s...Reactions0reactionsComments1 comments
Embracing the Shadows: A Journey Through Ankylosing SpondylitisIn a land shrouded by melancholy’s embrace, there dwelt a man whose spirit had succumbed to shadows. His once agile frame now burdened by an affliction, an unyielding pain that...Reactions0reactionsComments2 comments
Chiropratlctor DisasterBefore I had a clue of this awful illness my back was killing me. Out of options, Ithought I would try a chiropractor as my wife swears by them. So...Reactions0reactionsComments2 comments
Lost on Problem, Added AnotherThis is my condensed story on how I got AS, diagnosed and live with it on an hourly basis. I am now 63, retired and submitted for disability, refused, resubmitted...Reactions0reactionsComments1 comments
I Would Love To Have a Proper DiagnosisI find myself envying those with a diagnosis. I am pretty sure that I tick all the boxes for non-radiographic axialspondyloarthritis. It stated 50 years ago with back pain and...Reactions0reactionsComments1 comments
New Diagnosis With Ankylosing SpondylitisI was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can...Reactions0reactionsComments1 comments
Getting Old Gracefully!In my world we use the words "a bit at a time" because we do not hurry and don’t need to. I just turned 72 and a lot of days...Reactions0reactionsComments2 comments
Pain: The Seasoning of LifeThe pain has brought a different flavor to my life. Much as seasonings bring out different flavors in foods. It's like not having the normal ingredients to make a certain...Reactions0reactionsComments4 comments
Alternative Treatment: My AS Suffering Is OverI am 67 years old. I have been diagnosed with AS since 1982. I experienced great pain in my hips, SI joints, chest, wrists and other bones. I never believed...Reactions0reactionsComments4 comments
Could These Red Bumps Be Related to my Ankylosing Spondylitis?I recently broke out with red bumps on my hands and arms. It started last summer. At first I thought maybe it was something in my garden, but by the...Reactions0reactionsComments10 comments
Confused about some of my issues with ASI'm a 76-year-old woman diagnosed with ankylosing spondylitis, uveitis, fibromyalgia, a white brain matter disease, asthma, etc. I am not sure if the brain fog is AS-related or if it...Reactions0reactionsComments4 comments
Keeping Me MeI was diagnosed with AS about a year ago. Two months ago, I switched from injections to infusions and have been in a horrible flare waiting for the new medication...Reactions0reactionsComments9 comments