Stories

This is about my ankylosing spondylitis and uveitis and how some days I move my hands, (when I CAN, lol) to wax off the yucky stuff in my eyes, while...

Hi all, I have a functional disorder that causes me to have a lot of different illnesses. I’ve got fibromyalgia, and because of this, I can’t wee anymore. I have...

I was recently diagnosed with AS. My rheumatologist first started me on Plaquenil even though I told her my last RA doctor gave me Plaquenil, and it made me so...

Since getting diagnosed with ankylosing spondylitis (AS), I've learned that it is better to undershoot than overshoot. Living in a capitalistic society, we're encouraged to push ourselves beyond our limits...

There have been, are, and will be days when the pain feels absolutely bone-shattering and soul-crushing. Trying to control the pain is like being in quicksand - the more one...

I am 31 years old and was diagnosed with ankylosing spondylitis aged 25 after suffering pain to some extent since early teen years. My visits to rheumatology to start with...

Today we live in a world where a lot of people have an opinion. At times those free-floating thoughts are insensitive, and other times they can be really helpful. One...

I have always been a fighter from the day I was born. I was born addicted to heroin from my biological mother's abuse during her pregnancy with me. Strangely I...

As someone who lives with a chronic illness, I am constantly battling the ever-present challenges of both the disease and life, in general, the best that I can. Like many...

Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing everything here in case it matters to someone...

I have suffered with back pain for 25 years, with multiple visits to doctors, to only be told endless times that there is nothing medically wrong to justify my pain...

I am sure that you, as someone suffering from one (or more) of the above, have encountered people who just don’t get it. First of all, I feel the urge...

I first began showing symptoms of Ankylosing Spondylitis when I was 16 years old. I was officially diagnosed with AS three years later. While the diagnosis offered relief, it started...

Friday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my eyes wide, but I was so extremely tired...

On the good days (still in pain but manageable), I feel like I am on top of the world. I am so thankful for those days when they come along...

Hello my name is Nicky. I am 33 years old. I am a mommy to 3 kiddos that are my world and one of my reason for waking up every...

I have had AxSpA for about 24 years. I am 73 and yes I have tried everything from stem cell therapy, opioids, exercise and physical therapy, stretches, spinal stimulator, massages...

Hi there, fellow AxSpa warriors! My name is Lenka, I’m 29 and I’m a girl from Slovakia. I have a story to tell. Brace yourself, grab a popcorn and a...

My Name is Gillian and I live in Bromley Kent. l have two sons Mark and Lee l started to get pain and stiffness in my lower back and neck...

I was medically terminated from my job at Oracle, last year in the month of July 18, 2019. I immediately applied for disability. My AxSpA was diagnosed August 18, 2018...