Life Has Flipped Upside DownI'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything... By CommunityMembere6889e1 min readBookmark for laterReactions 0 reactions Comments1 comments
AxSpA Has Made Me a Calmer PersonI used to be an extremely busy, anxious, workaholic. I was a high school Drama teacher & head of my school’s Music and Drama departments. I would beam when people... By joma1 min readBookmark for laterReactions 0 reactions Comments1 comments
Misdiagnosed With Ankylosing SpondylitisI will be saying farewell to this amazing group. I have been battling what my doctors and I thought was advanced AS. I am 65 years old and was diagnosed... By Jvernice2 min readBookmark for laterReactions 0 reactions Comments18 comments
How I’ve ChangedI think I’ve had AS forever. When I was 16 or so, my hips clicked all the time. I was told I have the gene HLA-B27 in my early 30s... By Kelleeak1 min readBookmark for laterReactions 0 reactions Comments1 comments
Embracing the Shadows: A Journey Through Ankylosing SpondylitisIn a land shrouded by melancholy’s embrace, there dwelt a man whose spirit had succumbed to shadows. His once agile frame now burdened by an affliction, an unyielding pain that... By Joel2 min readBookmark for laterReactions 0 reactions Comments1 comments
Chiropratlctor DisasterBefore I had a clue of this awful illness my back was killing me. Out of options, Ithought I would try a chiropractor as my wife swears by them. So... By grunamuck1 min readBookmark for laterReactions 0 reactions Comments2 comments
Lost on Problem, Added AnotherThis is my condensed story on how I got AS, diagnosed and live with it on an hourly basis. I am now 63, retired and submitted for disability, refused, resubmitted... By CommunityMember1062 min readBookmark for laterReactions 0 reactions Comments1 comments
I Would Love To Have a Proper DiagnosisI find myself envying those with a diagnosis. I am pretty sure that I tick all the boxes for non-radiographic axialspondyloarthritis. It stated 50 years ago with back pain and... By Splynch1 min readBookmark for laterReactions 0 reactions Comments1 comments
New Diagnosis With Ankylosing SpondylitisI was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can... By Caress2 min readBookmark for laterReactions 0 reactions Comments1 comments
Getting Old Gracefully!In my world we use the words "a bit at a time" because we do not hurry and don’t need to. I just turned 72 and a lot of days... By Bernice1 min readBookmark for laterReactions 0 reactions Comments2 comments
Pain: The Seasoning of LifeThe pain has brought a different flavor to my life. Much as seasonings bring out different flavors in foods. It's like not having the normal ingredients to make a certain... By CommunityMember03fc221 min readBookmark for laterReactions 0 reactions Comments2 comments
Alternative Treatment: My AS Suffering Is OverI am 67 years old. I have been diagnosed with AS since 1982. I experienced great pain in my hips, SI joints, chest, wrists and other bones. I never believed... By Jariel2311 min readBookmark for laterReactions 0 reactions Comments4 comments
Could These Red Bumps Be Related to my Ankylosing Spondylitis?I recently broke out with red bumps on my hands and arms. It started last summer. At first I thought maybe it was something in my garden, but by the... By CommunityMemberea4be41 min readBookmark for laterReactions 0 reactions Comments10 comments
Confused about some of my issues with ASI'm a 76-year-old woman diagnosed with ankylosing spondylitis, uveitis, fibromyalgia, a white brain matter disease, asthma, etc. I am not sure if the brain fog is AS-related or if it... By zaney1 min readBookmark for laterReactions 0 reactions Comments4 comments
Keeping Me MeI was diagnosed with AS about a year ago. Two months ago, I switched from injections to infusions and have been in a horrible flare waiting for the new medication... By ASWarrior2 min readBookmark for laterReactions 0 reactions Comments9 comments
A Story of Hope - You Are Not Alone."One day you will tell your story of how you overcame what you went through and will become part of someone else's survival guide." -Brene Brown I grew up extremely... By SarahZig3 min readBookmark for laterReactions 0 reactions Comments6 comments
One thing after another…I’m a 60-year-old female who has lived with non-radiographic axial spondyloarthritis since my late teens. It started with SI joint pain, hip bursitis and enthesopathy, IBS, and fatigue. Later, a... By CommunityMember2113823 min readBookmark for laterReactions 0 reactions Comments6 comments
PIP HellI tried 3x times to get PIP. It's pure hell, embarrassing, and demeaning from having a solicitor with me who went back in the room and gave them all hell... By CommunityMember13011b1 min readBookmark for laterReactions 0 reactions Comments8 comments
Preparation for Spine SurgeryWe know in life, there is a prepping stage for all things. The same holds true for surgery. I am in that preparation phase now. This is what it looks... By Lily59222 min readBookmark for laterReactions 0 reactions Comments6 comments
It Never Ends !!!!I have HLAB 27 POSITIVE and was diagnosed with ankylosing spondylitis. I have 4 rods and screws, this May I had a piece of bone removed from my spine, which... By teri1 min readBookmark for laterReactions 0 reactions Comments2 comments