Don't Let a Smile Fool YouBehind that smile of mine, hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness?...Reactions0reactionsComments0 comments
Full of Different Emotions Waiting to Start My Next BiologicIt’s been an anxious wait, since seeing my rheumatologist mid-July. I felt so confident leaving his office. Finally, felt listened to, that my pains needed some help. My pains had...Reactions0reactionsComments3 comments
First Event Going Out With AxSpaIt has been 2 and a half years of being on sick leave. I got lucky in a way, as my diagnosis happened right before the pandemic. As Covid came...Reactions0reactionsComments2 comments
What Helps Me Get Through My FlaresGetting my diagnosis was the easy part. On the other hand, getting through flares, that was a different story. My doctors never explained to me anything about what flares were...Reactions0reactionsComments0 comments
My Chronic World ContinuesThey said to think more positive. They said tomorrow will be a better day. They said try another treatment plan it might help, but we have to wait and see...Reactions0reactionsComments1 comments
A Letter For Every Time I Feel Like Giving UpDear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I know you started making plans for the following...Reactions0reactionsComments2 comments
Who I Was Before AxSpa Is Very Different Than Who I Am NowBefore getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home, all day long. When I mean I loved...Reactions0reactionsComments2 comments
My Experience on TaltzTaltz is not my first biologic on my journey to finding the right treatment. My first biologic was Cimzia, but my rheumatologist believed it stopped working right after my loading...Reactions0reactionsComments2 comments
The 5 Blessings of My DiseaseThe first blessing is the community. This disease can definitely make you feel lonely, crazy, and misunderstood. But finding a community, a group related to your disease, becomes the place...Reactions0reactionsComments4 comments
Tips to Advocate for Yourself at the Doctor’s OfficeGetting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health was the reason that everything that was happening...Reactions0reactionsComments1 comments
Preparing For a New School Year With AxSpaLiving with a chronic illness and being a mother doesn’t come easy. I am learning new ways every day to make it a little easier. I think you can never...Reactions0reactionsComments5 comments
Finding Support & Acceptance Sometimes Takes TimeThoughts that go over my head: Will I feel like this forever? Will I ever feel better? I feel like I am waiting for my life to be over soon...Reactions0reactionsComments4 comments
Summertime, the Warmer Weather, and FlaresSummertime, summertime. Who doesn’t love summer? The beautiful warm weather outside. The time where vacation mode comes along and you start planning a family trip to go away. The time...Reactions0reactionsComments5 comments
Welcome to My Chronic WorldSince a young age, I was easily getting sick. I had days where I would feel so tired, drained. No matter how much sleep I would get, it wouldn’t be...Reactions0reactionsComments1 comments
Just another bad dayFriday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my eyes wide, but I was so extremely tired...Reactions0reactionsComments5 comments
You are just a monster ... I am not scared!On the good days (still in pain but manageable), I feel like I am on top of the world. I am so thankful for those days when they come along...Reactions0reactionsComments5 comments
The struggles having a chronic illnessHello my name is Nicky. I am 33 years old. I am a mommy to 3 kiddos that are my world and one of my reason for waking up every...Reactions0reactionsComments2 comments
If I Can Turn Back TimeEvery day, I wake up hoping today will be a different day. Hoping that today, will be a better day, then the day before. But once I open my eye...Reactions0reactionsComments0 comments
