Are you feeling fatigued? How do you manage it?
Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life.
I'm so glad I belonged to this forum. Thank you for Providing the opportunity to express ourselves here, since our friends and family don't seem to quite understand. I've described fatigue and flares to my friends and my son and they don't seem to quite understand. Sometimes I can do stuff like play with my four year old grandson and other times I just wanna sit at home with my heat pad on in my recliner and rest and maybe a nap will come.
Sometimes I express how I'm feeling to my friends and they say , "oh , it's probably just the medications that you take that are affecting you." WTHECK!
YOU ASKED HOW I'M DOING, I TELL YOU, THEN YOU DON'T GRASP THE SITUATION. WHAT IS WRONG WITH PEOPLE. UGH..
Thank you for allowing me to express myself. Wishing everyone a good Today and a better tomorrow đ âŽď¸âŁď¸We are glad you are here! You are not alone in having trouble getting friends or family to understand what you are going through. Having an invisible illness like AS means that what people see does not match all of what you are feeling. It is so hard to have them understand. One of our health leaders wrote an open letter to his friends when he was going through the same thing. I'm glad you found our community. We understand. All the best, Kathy (Team member)
Give myself permission to rest or take a nap.
Yes! Sometimes you really do have to give yourself permission to stop and recharge. Do you usually plan time to rest, or do you wait until you really need it? -Latoya (Team Member) Thanks for sharing Naps can be an important way to fight off fatigue. One of our health leaders writes about her need for hibernation in this article. All the best, Kathy (Team member)
I just push through and take a nap whenever I can. I watch my 3 year old grandson 4 days a week. My husband helps at times.
Iâm sure your grandson keeps you busy! Itâs nice that you have your husband there to lend a hand when you need to take some time for yourself and get some rest. -Latoya (Team Member)
Bed rest is good for me as long as I'm not asleep more than I'm awake...I then have cognitive issues to deal with.
Brain fog is a common complaint. You aren't alone. Do you have some good support at home to help you when everything gets foggy? Warmly, Kathy (Team member)
