AS/AxSpa Treatment Experiences
We invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies, your insights can provide valuable support and information to others. Share your experiences, tips, and any lessons learned to help our community better understand the options available for managing AS/AxSpa symptoms. Your stories can make a difference!
after my rheumatologist wanted to test me further for nr-axspa, i was actually officially diagnosed with rheumatoid arthritis in december of last year. my doc immediately started me on hcq for the ra but says it's not likely to do anything for the spondyloarthritis. has anyone had experience with this treatment for as? i find it hard to believe that the hcq would do nothing to help inflammatory arthritis just because it's in my spine.
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Thanks for reaching out.
It does sound confusing. Hydroxychloroquine can be prescribed for a number of conditions (including lupus and rheumatoid arthritis). It is considered a DMRD (disease modifying anti-rheumatic drug). It's main purpose is to go after the disease process of auto-immune conditions (rather than treating the symptoms).
Although everyone reacts differently to treatment/medications, hydroxychloroquine could possibly reduce inflammation and joint pain by regulating the immune system.
This article may provide some helpful information: https://axialspondyloarthritis.net/treatment/dmards.
In addition, you may find this post/conversation interesting: https://axialspondyloarthritis.net/forums/hydroxychloroquine-sulfate
I do hope others in the community will chime in here with there personal experiences with Hydroxychloroquine.
All my best, Doreen (Team Member)
NSAIDs, tramadol rarely, Baclofen, gabapentin. They help sometimes to some degree. Had a 30-day taper of prednisone which helped some. Have SI joint injections a few times which don’t last long but give some relief.
It sounds like you are tackling this pain and fatigue from spondyloarthritis head-on. It can be quite difficult but with the right treatment plan discomfort can be controlled and maybe even lessened. I hope that you find relief and your days get better. Wishing you the best this holiday season. Rebecca (team member)
Methatrexate, prednisone 5mg, xiljam, Humaria, and a couple others. Starting a new one soon. No relief except a slight improvement with Prednisone.
- this process can be incredibly exhausting. Finding the right combination of medications that effectively manage your symptoms is a long and challenging process. It's positive to hear that you've experienced some improvement with Prednisone, even if it's slight. However, I understand how disheartening it can be when you're still searching for more significant relief. Hoping this next biologic is the right one, to help reduce symptoms and ease your pain from SpA. With regard, Rebecca (team member) 
Thank you for sharing. I hope your journey on your new biologics will bring you less pain and will help you find some relief. Sending you all the positive vibes your way,
Nicky (Team Member)
Nothing has been given i dont have an as dr i take a biologic for crohns so as dr wont see me
I am sorry to hear this news. It sounds like you're facing some challenges with getting specialized care for ankylosing spondylitis, especially if you're currently being treated for Crohn's disease.
If you haven't already, consider discussing your ankylosing spondylitis symptoms with your current healthcare provider, who is managing your Crohn's disease. They may be able to coordinate with a specialist or refer you to a rheumatologist who can address your ankylosing spondylitis concerns.
Additionally, connecting with others who have similar experiences through support groups or online communities can be valuable. Sharing experiences and insights with others who understand what you're going through can provide a sense of community and support.
Sending support and strength your way. Rebecca (community moderator)
