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Cause and effect

When I was a freshman in high school, I developed ingrown toenails on both great toes. My parents always ordered shoes online, and the shoes I wore were always too small. There was an infection in both great toes. My parents did not care; I suffered through bouts of body inflammation without antibiotics. This may have been the root cause of my AS, and I was diagnosed in the early 1970s. My body destroyed itself.

  1. That sounds really tough. Dealing with all that pain and inflammation as a kid, especially without support, must have been so frustrating. It makes sense that it had a lasting impact. How are you coping now? -Latoya (Team Member)

    1. I am well. I worked as a courier in my fifties until the disease became too prevalent and dangerous for my work. Now, after 48 years with AS, I cope more mentally than physically. I have authored 8 books and stay active by coping day by day. I am a survivor by being stoic in thought and actions.

    2. That's great to hear! And I love your perspective about your journey. Staying active mentally and coping day by day after all those years is such a testament to your resilience. And writing eight books is no small thing! That's amazing! Keep inspiring others with your story. -Latoya (Team Member)

  2. Thank you for sharing your experience. While there is quite a bit that is still unknown about the causes of AS, this article does mention infections as a possibility. All the best, Kathy (Team member)

    1. I have tried to research because some say it can also be inherited. There is no indication of such. When I was first diagnosed, it was called Marie Strumpus disease. I have come a long way in 48 years and am still as active as possible. Infection is the only basis for this chronic disease, in my view.

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