Are you HLA-B27 positive or negative?
I posted this forum on the AS site. I thought it was important to share here too.
HLA-B27 seems to be the main gene that they test for when diagnosing someone with AS. But it seems so many people are negative.
I am negative.
Are you HLA-B27 positive or negative?
Ali (Community Member)
I am hla-b27 positive been told I have phrepheral spa but MRI results show damage to my si joints and spine but no active inflammation at the last MRI so can't move on with any treatment apart from sulfasalizine and celocoxib, my son has also tested positive he's 20 always struggled with symptoms from being very small, he's waiting for rheumatology appointment now my girls haven't been tested and I don't know who I get the gene from but would be nice to know I'm also diagnosed with fibromyalgia and mechanical damage with inflammation as well .
,
Thank you for sharing a bit of your story.
I'm saddened to hear how AS has affected your family.
I certainly hope your girls will never have to deal with the pain and struggles that you and your son are going through.
Sending you (and your son) all my best, Doreen (Team Member)
It sounds like both you and your son have been through a lot. I can see why you'd want more clarity on the genetic link, especially with your son and daughters involved. Having some answers and clarity just helps to make moving forward possible. Hopefully, the rheumatology appointment will bring more insight. Keeping you and your family in my thoughts! -Latoya (Team Member)
Positive
Positive
Negative but radiographic positive
,
Thanks so much for sharing.
How are things going lately?
~Doreen (Team Member)
