What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions 0 reactions Comments21 repliesTips & AdviceDiagnosisCoping
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions 0 reactions Comments19 repliesFriends & FamilyMisunderstood Tips & Advice
Chilling Effects: AS/AxSpa and Cold Weather DiscussionsAs the weather turns colder, many people living with AS/AxSpa experience unique challenges and considerations. Cold weather can have a significant impact on our daily lives and overall well-being. How...Reactions 0 reactions Comments20 repliesTips & AdviceCommunity SupportSymptoms
Undiagnosed but in painFor context I live in the U.K. and while the NHS are brilliant and free, the waiting lists and pressure on them leaves them limited in some ways. I am...Reactions 0 reactions Comments5 repliesAxial Spondyloarthritis Mental HealthTips & Advice
When did you know it was time to start a biologic?Hello everyone. I just met with my new rheumatologist for the first time today after my family physician diagnosed me with Ankylosing Spondylitis about 2 months ago. I only met...Reactions 0 reactions Comments25 repliesTreatmentTips & Advice
Bed topper for AxSpaHi I was wondering if anyone had any recommendations for a bed topper to assist with pain and discomfort whilst sleeping. I find my sleep is quite disturbed and wake...Reactions 0 reactions Comments3 repliesPainsomnia SleepTips & Advice
Working with ASHow do you find the world of work whilst managing the condition? I'm a teacher in the UK and the fatigue after a day at school is unreal. I work...Reactions 0 reactions Comments14 repliesTips & Advice
Are you feeling fatigued? How do you manage it? Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life....Reactions 0 reactions Comments30 repliesSymptomsTips & AdviceSide Effects
Do you get muscle spasms?Biologics have helped my over all stiffness, pain and fatigue. I'm still in pain and have fatigue but nothing compared to before! One thing that has not gotten any better...Reactions 0 reactions Comments4 repliesSymptomsTips & AdviceFlare Management
Have you taken up any new hobbies or activities since being diagnosed with AxSpa?Being diagnosed with AxSpa can bring some major lifestyle changes. Many have to give up hobbies and activities important to them as they can no longer participate due to pain...Reactions 0 reactions Comments42 repliesCommunity SupportCopingTips & Advice