Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
Does the weather affect your AS?I'm at odds with this because I'd always thought the weather doesn't affect my AS. However, the older I've got, the more I've started to question if perhaps the rain...Reactions0reactionsComments10 repliesWeatherTips & AdviceFlares
What's Your Injection Routine?I was wondering if anyone who takes injections has thought up of any kind of routine to make the process seem a bit more normal and less daunting. At the...Reactions0reactionsComments26 repliesTips & AdviceTreatment
What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions0reactionsComments37 repliesTips & AdviceDiagnosisCoping
Biologics Side EffectsI recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass...Reactions0reactionsComments6 repliesAxial Spondyloarthritis Side EffectsTips & Advice
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions0reactionsComments21 repliesFriends & FamilyMisunderstood Tips & Advice
Living With AxSpa and Peripheral Spondyloarthritis When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...Reactions0reactionsComments30 repliesPeripheral SpondyloarthritisTips & AdviceCoping
When did you know it was time to start a biologic?Hello everyone. I just met with my new rheumatologist for the first time today after my family physician diagnosed me with Ankylosing Spondylitis about 2 months ago. I only met...Reactions0reactionsComments27 repliesTips & AdviceTreatment
Starting biologics I’m new to this! Recently diagnosed with AS.. My delivery for my biologics is coming on Friday and I am super nervous!! Any advice or tips?...Reactions0reactionsComments2 repliesAnkylosing SpondylitisNewly DiagnosedTips & Advice
Wheelchairs at Amusement ParksHey y'all, So I am heading to an amusement park this weekend and I have a question. I've had Ankylosing Spondylitis for over 5 years now and have occasionally used...Reactions0reactionsComments11 repliesFatigue TravelTips & Advice
