"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions0reactionsComments21 repliesFriends & FamilyMisunderstood Tips & Advice
Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions0reactionsComments10 repliesFriends & FamilyMisunderstood Tips & Advice
Tips for Requesting Support Share your experiences, ask questions, and discover effective strategies for communicating your needs with loved ones and healthcare professionals. Together, we can make navigating this journey a bit smoother and...Reactions0reactionsComments18 repliesFriends & FamilyTips & AdviceCommunity Support
Do you know anyone else (in person) who has the same condition as you?I don't know anyone else, apart from my online friends, who have this condition. I'm curious to see if you do....Reactions0reactionsComments12 repliesAwarenessCommunity SupportFriends & Family
Tips for Friends with Ankylosing Spondylitis (AS)What advice would you give a friend living with ankylosing spondylitis (AS)?...Reactions0reactionsComments5 repliesAwarenessFriends & FamilyNewly Diagnosed
FOMOAS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not have. This can strain friendships, relationships, and loving...Reactions0reactionsComments28 repliesFriends & FamilyTips & AdviceCoping
Great partners/SpousesWe have a really great pet thread going - how about wonderful spouses and partners? My fella and I have been together for 22 years (crap, I'm old! LOL!) after...Reactions0reactionsComments1 repliesFriends & FamilyCaregivingIntimacy & Relationships
Pregnancy & ASThis is a space to discuss all things pregnancy and AS! -What is/was your experience like being pregnant and diagnosed with AS? What tips or advice would you share with...Reactions0reactionsComments1 repliesFriends & FamilyTips & AdviceIntimacy & Relationships
How soon they forget I have ASI'm a little frustrated..o.k., a LOT frustrated. Once I got answers after too many yrs of searching for an answer to 'why am I tired, why do I need another...Reactions0reactionsComments1 repliesCopingMisunderstood Friends & Family
Plans For The Summer?We are officially in Summer! I mean you would not be able to tell here in London at the moment as the weather is currently absolutely miserable. But hopefully that...Reactions0reactionsComments17 repliesFriends & FamilyTravelWeather
