Biologics Side Effects
I recently started biologic injections (Cosentyx) to help manage my axSpA. 2 days after my injection I get flu like symptoms (nausea, headache, brain fog, fatigue). This seems to pass after the 3rd or 4th day. Does anyone else experience this or have helpful tips to help mitigate the side effects?
Cosentyx helped me the best along with Celebrex.
I can't afford Cosentyx now so I am on Embrel which isn't near as good for me.
I have been through many Rheumatologists and they all seem to treat differently.
Just stay as active as you can.Thanks for sharing your experience. It is interesting how AxSpa can be so different from one individual to another: one biologic works better for one person, but not another. What kind of activity do you enjoy? Warmly, Kathy (Team member)
Inflixmab Twice 2023
effects - day after June 2023
Folliculitis
Chest pains
Severe headaches
Tinnitus loud
Tingling up left arm felt like water up it.
Palpitations
Blurred vision
Shaky
Shivering
Flushed
Dizzy
Itching
Exhausted
Damp feelingHave you tried to access any of the links that they sent you or shared this with your doctor? I understand that things change (or simply just sound good) based on political priorities. And, at least here in the US, it can take a long time for governmental programs to reach the local level. Let us know if any of these are useful for you. It must be so difficult for you to be trying to advocate for yourself and keep running into multiple roadblocks. All the best, Kathy (Team member) You take care, too! Isn't it such a struggle to navigate any health care system? I hope you are able to find relief soon. Warmly, Kathy (Team member)
Enbril gave me psoriatic arthritis. Taltz took my deep breathing. Cosentyx took my body hair. The brief benefits from these drugs was not worth the life long changes the side effects gave me. I wish I hadn't been a guinea pig for big pharmaceuticals
Nothing truly holistic. Acupuncture was a total waste of time. Now its just not eating fast foods, no candy or soda. Trying to keep my proteins up and eating some quality yougurt. 32 Oz.white chocolate iced mocha is my daily vice, I feel better with the early morning caffeine 😋. Then just puttering about the yard (flowers/trees maintenance). I do what I can when I can and no fighting myself. Self pride takes a hit, but I'm old enough it's not important. I still coach girls then boys wrestling in the fall/winter for 6 months, and it takes 6 months to heal. 2 more years and I'll hang that up. Anything but biologics, never again. the rheumatologist says a coincidence everything to him is nothing ever changes and that was last year this year I have seen only registers.
Take care
Jan
My rheumatologist tried MTX and several TNFi meds to tame my my evil eye inflammation, but with little success. Then came Cosyntex, which caused rashes and nasal breathing problems. That’s when I switched to Rituxan. The rashes and nasal cleared… but
Thanks so much for joining in the conversation. Sorry to hear that your uveitis has been difficult to manage with biologics and other meds only to be met with failure and/or side effects. How has the use of the Rituxan been? I hope you've found some results. Many times finding an effective treatment plan can take time during the trial period. It can be frustrating. Wishing you the best as you tackle these meds. Rebecca (team member)
