AxSpa and gut healthI am wondering about doing a diet to reset my gut health. It's been a trendy topic lately, I have met people with AxSpa who did a drastic diet to...Reactions0reactionsComments3 repliesDiet & Nutrition
HumiraI was on Humira for about 3 mths and then developed PCP Pneumonia and had to stop. I then went onto Corsentyx which made no difference. About 2 and half...Reactions0reactionsComments2 replies
How many biologics have you tried until you found the right one for you?We are all different. One thing I've learned about AxSpa is there is a lot of trial and error with finding what works for you. Have you tried more than...Reactions0reactionsComments6 repliesTreatmentFlare Management
Will you take our In America survey and help others understand the true impact of AxSpA? [Update: Now closed!]Around 300,000 people in the United States are living with axial spondyloarthritis. To better understand the patient experience and realities of AxSpA, we are fielding our 2nd Spondyloarthritis In America...Reactions0reactionsComments0 replies
Can anyone recommend comfortable mattresses and pillows for AS sufferers?Perhaps it’s the nature of the beast(AS) but my mattress is extremely uncomfortable, though only about six years old, and I can’t seem to find a pillow that “works.” Any...Reactions0reactionsComments7 repliesSleep
What words do you use to describe AxSpA?Recently our community advocate, Jessica, wrote this article describing the struggle that is finding the words to describe pain from AxSpA. Pain is difficult to describe: what words do you...Reactions0reactionsComments7 replies
FeaturedI need total flexibility in order to have a social lifeI am definitely battling fatigue much more often these days; even when I'm not in pain, fatigue can take me out as I've run into a wall. So friends have...Reactions0reactionsComments4 repliesSymptomsFriends & Family
If you used Humira, how long did it take to work for you — any side effects?I started humira a few years ago and came off it a few months later after bouts of shingles and infections. I fear it didn't work because I came off...Reactions0reactionsComments2 repliesSide EffectsTreatment
Aids for everyday lifeHello everyone! I’m suffering from wrist and forearm pain from typing in my laptop. Any one has any idea of what kind of cushion/aid could help with this?...Reactions0reactionsComments1 repliesAssistive Devices
Has anyone been prescribed the DMARD sulfasalazine throughout your journey?I recently saw a rheumatologist who put me on the DMARD sulfasalazine delayed release tablets. Has anyone taken this drug and what was your experience with it?...Reactions0reactionsComments2 replies
