6 Things That Make Fatigue The WorstIn my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking...reactions2comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with...reactionscomments
An Open Letter to My BodyI don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested...reactions3comments
How To Manage The "Fat" TalkIf your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment...reactions2comments
My Traveling Survival Guide: What I'm Packing and WhyThis month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely...reactions3comments
Don't Compare Your Disease Experience to Celebs'When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis...reactions2comments
Effects of Heteronormativity in Healthcare on LGBTQ+ PatientsFrom the start, I want to be clear that I do not intend to paint with a broad brush here. There are...reactions1comment
Driving Difficulties With Ankylosing SpondylitisEver since I was a teenager, I had one goal, which was to learn how to drive and get my license as...reactions6comments
Grief, Ankylosing Spondylitis, and a Tragedy in IndianapolisEditor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me...reactions2comments
A Letter to My Past SelfDear past Ali, You will never believe how much you have grown. You are so strong. You’ve been through a lot. This past year has been...reactions1comment
To Biologic or Not to Biologic?"I'd recommend starting a biologic," Keegan's rheumatologist suggested at our first appointment. Keegan, my husband, and I were still wrapping our heads...reactions3comments
My Mobility AidsDuring my thirty years so far of living with ankylosing spondylitis I had to make use of multiple aids. Glad that I...reactions9comments
Coming Out of Remission After 8 YearsIt wasn’t very often, if I even did at all, that I thought about what it would be like if I came...reactions1comment
Build Your Own Flare ToolkitThere's no other way to say it: axial spondyloarthritis flare-ups are the worst. You might be having a good few days, and...reactions3comments
Reflecting on my University Experience with Chronic PainMany hours in the library later, the day is finally here — I have completed my undergraduate degree, a Bachelor of Arts...reactions2comments
Hacking Arthritis Self-CareHave you noticed how much content is devoted to what seems like normal things people should already know how to do? I'm...reactions1comment
I’m Tired of Being Judged for my COVID ViewsI’m sure many of us in the chronic illness community can relate to what I’m about to say. It’s gotten to a...reactionscomments
4 Responses To Stigma Against DisabilityAs a 35-year-old, fairly active woman with ankylosing spondylitis (AS), I've come up against some pretty inaccurate and aggravatingly annoying ideas and...reactions2comments
A Year After My DiagnosisAs a medical student, you spend most of your time reading about all these rare diseases and learning how to recognize them...reactions3comments
Can Journaling Help Us Manage Chronic Illness?There's a lot of evidence for how helpful writing can be for people who experience the trauma and grief of illness —...reactions1comment
