Why I’m Not on a BiologicThere’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the...reactions5comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the...reactions13comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the...reactions5comments
My Experience Getting Infliximab InfusionsI get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials...reactions3comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
Three Years Since My AS DiagnosisYou would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers...reactions3comments
Changing to a Plant-Based DietNearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I...reactions1comment
Chronic Illness and The Cost Of Living CrisisEarlier this year, I was woken by a call from the BBC radio asking if I would like to join them live...reactionscomments
My 6 Tips For Spondylitis WellnessThe most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and...reactions1comment
Yes, ChatGPT Can Help You Manage ASChatGPT, a chatbot powered by artificial intelligence (AI), has been making headlines lately. As a faculty member teaching human-computer interaction, a discipline...reactions1comment
What I Have Learned From Working With Hundreds of People With AxSpaAs you may or may not know, I am the Co-Founder of Yoga for AS. We are an organization who specialize in...reactions1comment
Reasons To Date A SpoonieLet’s be honest - dating with a chronic illness is tough. A quick glance at my tragic love life would more than confirm this...reactionscomments
Food is Medicine: What I Eat In A DayI’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and...reactions1comment
How to Organize Your Medical RecordsOne aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to...reactions1comment
Becoming My Own Healthcare AdvocateOne of my earliest memories is of the doctor's visits my mother used to attend with my grandmother. I remember my mother...reactions2comments
The Sleepless Nights ContinueThe sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get...reactions15comments
Applying for Disability BenefitsI've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had...reactions1comment
What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what...reactions9comments
Walking Along With Ankylosing SpondylitisDo you worry a lot? Are you distracted often by ankylosing spondylitis (AS)? Are you caught up in medical issues and miss...reactions1comment
I Am Giving Acupuncture a Shot for My Chronic Pain and FatigueI recall meeting people with chronic pain telling me that they benefited from acupuncture treatment. I am naturally curious and always keen...reactions4comments
