Finally Growing Used to My Bi-Weekly InjectionsIt has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the...reactions1comment
AxSpa and Sicca SyndromeIn the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when...reactions9comments
Doing Better With ASDoing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and...reactions1comment
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always...reactions6comments
Sex and AS: Position Pain Ratings and Tips for Pain Free PassionNewsflash - people with chronic illnesses and disabilities enjoy sex too! You wouldn’t think it as a lot of the time we are desexualised by society – but we get...reactions8comments
When the Cost of Care Makes Access an IssueWhen I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis...reactions4comments
Dealing With the Lack of Knowledge of AS in HealthcareBefore I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is...reactions4comments
My 4 Arthritis Self-Care BasicsSelf-care makes up a substantial portion of our quality of life, especially for those of us living with arthritis. However, similar to nutritious food, safe shelter, and a healthy environment...reactions4comments
Why I’m Not on a BiologicThere’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the results of my blood tests and imaging reports...reactions5comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to...reactions13comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful...reactions5comments
My Experience Getting Infliximab InfusionsI get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this...reactions3comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were cancelled. People I had felt connected to grew...reactions1comment
Explaining Spondylitis to KidsTwo facts about me: If a kid has any questions, I am going to find the best way to answer them. But, that is not always easy. Axial spondyloarthritis is...reactions3comments
Three Years Since My AS DiagnosisYou would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers to questions like: What led me to be...reactions3comments
Changing to a Plant-Based DietNearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I experience related to axial spondyloarthritis. Let me preface...reactions1comment
Chronic Illness and The Cost Of Living CrisisEarlier this year, I was woken by a call from the BBC radio asking if I would like to join them live on the radio for a debate with two...reactionscomments
My 6 Tips For Spondylitis WellnessThe most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and reduced range of motion pose formidable challenges to...reactions1comment
Exploring Different Treatment Options for Ankylosing SpondylitisMaking the decision to switch medications for ankylosing spondylitis can be a daunting and overwhelming process. It's important to understand the reasons behind this switch and the potential benefits it...reactions2comments
Yes, ChatGPT Can Help You Manage ASChatGPT, a chatbot powered by artificial intelligence (AI), has been making headlines lately. As a faculty member teaching human-computer interaction, a discipline focused on how humans interact with technology, I...reactions1comment