A Stop on the Long RoadI finally found my stride. Everything is great (or as great as it could be). My body is holding up, my joints aren’t screaming, my energy is good, and I’m...Reactions0reactionsComments5 comments
Sleepless Nights Continue ContinuouslySleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going...Reactions0reactionsComments3 comments
The Four Minute Mile: Setting AxSpa GoalsThe four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it was deemed impossible, until one day somebody named...Reactions0reactionsComments2 comments
3 Ways Ankylosing Spondylitis Has My Life MUCH BetterWhen we think about our lives with ankylosing spondylitis (AS), it can sometimes feel like we're battling eternity. An eternity of chronic pain, stiffness, fatigue, all of the comorbidities, doctors...Reactions0reactionsComments2 comments
6 Arthritis Self-Care TouchstonesMany years ago people tested the authenticity and purity of silver and gold by dragging samples over special stones. The resulting color of the touchstone’s mark verified the metal’s content...Reactions0reactionsComments1 comments
Navigating Autoimmune Healing Without Succumbing to Dietary FadsIn today's society, the prevalence of autoimmune conditions, such as ankylosing spondylitis (AS) and axial spondyloarthritis (axSpA), is rising. These conditions, affecting millions worldwide, require careful management to alleviate symptoms...Reactions0reactionsComments2 comments
Health Anxiety and My Axial SpondyloarthritisOver the past few months, I have struggled to cope with my health anxiety. On some days it's just as prevalent as my chronic pain conditions. When I was younger...Reactions0reactionsComments1 comments
Bad Air Quality, Wildfires, and Flare-UpsLiving with a chronic condition like AxSpa can be challenging on its own, but when external factors exacerbate the symptoms, the struggle intensifies. Keegan, my husband, has been battling AxSpa...Reactions0reactionsComments2 comments
Making Camping Trips Doable With ASOne of our family’s favorite pastimes has always been going away camping. I’ve missed quite a few of those trips over the years thanks to AS. It always tugs at...Reactions0reactionsComments2 comments
Finally Meeting Some Super SpooniesWhen I was first diagnosed with an arthritic condition, I felt very confused and alone. I always thought arthritis was a bit of knee pain that my grandmother used as an excuse to get out of taking me to the park...Reactions0reactionsComments0 comments
I Got Disability Support!I have something very exciting to share! After 6 whole years of applying, getting denied, appealing, and getting denied again, I’ve finally been accepted for disability support! It was a...Reactions0reactionsComments8 comments
2 Tips for Flying With Ankylosing SpondylitisFlying is always a nightmare with ankylosing spondylitis (AS). Even when I've flown in best-case scenarios—like in an upgraded premium seat—the pain remains, and the days after a flight leave...Reactions0reactionsComments5 comments
Getting Complacent With Self CareHaving a chronic illness like AS can be utterly exhausting. Not only are we already exhausted from the fatigue that it forces on us, but we also need to put...Reactions0reactionsComments4 comments
The Stress FlareI’ve been having trouble sleeping at night. I’ve been stressed, and not only am I struggling to quiet my mind enough to find deep sleep, but I’m tossing and turning...Reactions0reactionsComments5 comments
Managing Seasonal Joint Pain for a More Fulfilling LifeThere was a time when the changing seasons used to bring me joy, but now it seems to give me joint pain mostly. I used to think it was "all...Reactions0reactionsComments5 comments
Faking it With Ankylosing SpondylitisI am a faker. I admit it. But I bet it is not what you are thinking. I fake people out about how well I am doing. In fact, I am...Reactions0reactionsComments2 comments
Making Planning Work For YouLife is a tug of war between disruptive chaos and the things we want and need to do. Lots of cool things happen along the way, but this struggle is...Reactions0reactionsComments2 comments
A Year of PhysiotherapyI went to physiotherapy from February 2022 to February 2023. Prior to starting physio, I was unable to be active. I could barely walk or stand for more than five...Reactions0reactionsComments2 comments
How Goal Setting Can Help Us Self-Manage Chronic IllnessAs a health coach most of my time is spent working with people on making positive behavior change. Following a diagnosis like AS, a lot of people look to improve...Reactions0reactionsComments4 comments
Let's Find Some Positivity Out of This Chronic IllnessHaving a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live with a chronic illness means this will be...Reactions0reactionsComments2 comments