Flares Still Happen, and I Accept Them as MessengersI have now been living with AS for the past 11 years. At the beginning, flares came very frequently, and in an intense way. It felt like anything could trigger... By Lana Buettner2 min readBookmark for laterReactions0reactionsComments4 comments
How I Manage Wildfire Season With "Pre-Existing Health Conditions"It is the worst wildfire season in history. That’s the rhetoric I keep hearing from the media. In all fairness, it may be so on a national or continental scale... By Jamie Shinkewski4 min readBookmark for laterReactions0reactionsComments1 comments
The Good, Bad, and Ugly of Specialty PharmaciesFor the last 6 months, I’ve been navigating the special pharmacy world extensively. For a variety of reasons, my health insurance benefits changed 3 times in that span of time... By Auldyn Matthews2 min readBookmark for laterReactions0reactionsComments1 comments
A Stop on the Long RoadI finally found my stride. Everything is great (or as great as it could be). My body is holding up, my joints aren’t screaming, my energy is good, and I’m... By Jed Finley4 min readBookmark for laterReactions0reactionsComments5 comments
Sleepless Nights Continue ContinuouslySleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going... By Nicky Flikas3 min readBookmark for laterReactions0reactionsComments3 comments
The Four Minute Mile: Setting AxSpa GoalsThe four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it was deemed impossible, until one day somebody named... By Jamie Boder2 min readBookmark for laterReactions0reactionsComments2 comments
3 Ways Ankylosing Spondylitis Has My Life MUCH BetterWhen we think about our lives with ankylosing spondylitis (AS), it can sometimes feel like we're battling eternity. An eternity of chronic pain, stiffness, fatigue, all of the comorbidities, doctors... By Lisa Marie Basile3 min readBookmark for laterReactions0reactionsComments2 comments
6 Arthritis Self-Care TouchstonesMany years ago people tested the authenticity and purity of silver and gold by dragging samples over special stones. The resulting color of the touchstone’s mark verified the metal’s content... By Dawn Gibson2 min readBookmark for laterReactions0reactionsComments1 comments
Navigating Autoimmune Healing Without Succumbing to Dietary FadsIn today's society, the prevalence of autoimmune conditions, such as ankylosing spondylitis (AS) and axial spondyloarthritis (axSpA), is rising. These conditions, affecting millions worldwide, require careful management to alleviate symptoms... By Tomesha Campbell4 min readBookmark for laterReactions0reactionsComments2 comments
Health Anxiety and My Axial SpondyloarthritisOver the past few months, I have struggled to cope with my health anxiety. On some days it's just as prevalent as my chronic pain conditions. When I was younger... By Jill King2 min readBookmark for laterReactions0reactionsComments1 comments
Bad Air Quality, Wildfires, and Flare-UpsLiving with a chronic condition like AxSpa can be challenging on its own, but when external factors exacerbate the symptoms, the struggle intensifies. Keegan, my husband, has been battling AxSpa... By Auldyn Matthews2 min readBookmark for laterReactions0reactionsComments2 comments
Making Camping Trips Doable With ASOne of our family’s favorite pastimes has always been going away camping. I’ve missed quite a few of those trips over the years thanks to AS. It always tugs at... By Anne-Marie Raymond2 min readBookmark for laterReactions0reactionsComments2 comments
Finally Meeting Some Super SpooniesWhen I was first diagnosed with an arthritic condition, I felt very confused and alone. I always thought arthritis was a bit of knee pain that my grandmother used as an excuse to get out of taking me to the park... By James Hollens3 min readBookmark for laterReactions0reactionsComments0 comments
I Got Disability Support!I have something very exciting to share! After 6 whole years of applying, getting denied, appealing, and getting denied again, I’ve finally been accepted for disability support! It was a... By Steff Di Pardo2 min readBookmark for laterReactions0reactionsComments8 comments
2 Tips for Flying With Ankylosing SpondylitisFlying is always a nightmare with ankylosing spondylitis (AS). Even when I've flown in best-case scenarios—like in an upgraded premium seat—the pain remains, and the days after a flight leave... By Lisa Marie Basile2 min readBookmark for laterReactions0reactionsComments5 comments
Getting Complacent With Self CareHaving a chronic illness like AS can be utterly exhausting. Not only are we already exhausted from the fatigue that it forces on us, but we also need to put... By James Hollens3 min readBookmark for laterReactions0reactionsComments4 comments
The Stress FlareI’ve been having trouble sleeping at night. I’ve been stressed, and not only am I struggling to quiet my mind enough to find deep sleep, but I’m tossing and turning... By Erin King2 min readBookmark for laterReactions0reactionsComments5 comments
Managing Seasonal Joint Pain for a More Fulfilling LifeThere was a time when the changing seasons used to bring me joy, but now it seems to give me joint pain mostly. I used to think it was "all... By Tomesha Campbell2 min readBookmark for laterReactions0reactionsComments5 comments
Faking it With Ankylosing SpondylitisI am a faker. I admit it. But I bet it is not what you are thinking. I fake people out about how well I am doing. In fact, I am... By Lawrence Rick Phillips3 min readBookmark for laterReactions0reactionsComments2 comments
Making Planning Work For YouLife is a tug of war between disruptive chaos and the things we want and need to do. Lots of cool things happen along the way, but this struggle is... By Dawn Gibson2 min readBookmark for laterReactions0reactionsComments2 comments