My Post-Surgery Flare Up Without BiologicsI got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...Reactions0reactionsComments5 comments
The Perfect Solution for Managing AxSpa: Trial and ErrorThe perfect solution does not exist. But, please keep reading. Every morning I wake up not having any idea what kind of day I am going to have. Sure, I...Reactions0reactionsComments1 comments
My Life Didn’t End When I Was Diagnosed With ASSeven years ago, my already chaotic, 18-year-old world was rocked. Amidst a blur of final exams, breakdowns and breakups, my back and hips caught fire, or at least that’s how...Reactions0reactionsComments9 comments
Three Reasons I Chose Not to Panic About (Another) DiagnosisAs I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the situation. The alphabet soup of diagnoses I had...Reactions0reactionsComments2 comments
An Interview With Personal Trainer and AS Patient, John FrazierHere at AxialSpondyloarthritis.net, we know that fitness and AxSpa can have a complicated relationship. Exercise is important to reduce stiffness and maintain mobility, but it can be difficult to commit...Reactions0reactionsComments1 comments
Addressing My Gut Health To Help With My AS SymptomsThree years before my diagnosis, while I was playing college tennis, I was having a lot of gut and joint issues. That’s when I first looked at changing my diet...Reactions0reactionsComments1 comments
Food Swaps: How Dietary Changes Worked To Reduce My SymptomsChanging my diet has been a game-changer for me in reducing the painful inflammatory symptoms of axial spondyloarthritis. Ten years ago I began learning as much as I could about...Reactions0reactionsComments5 comments
My Experience With Taking Biologics for ASI’ve been on biologics now for two and a half years. Before biologics, I was desperate for relief from the pain my AS was causing. I was taking the maximum...Reactions0reactionsComments7 comments
Redefining Success on Our TermsAs anyone living with axial spondyloarthritis (AxSpa) knows, one of the critical aspects of navigating AxSpa is redefining what success means after diagnosis. The sense of loss and frustration can...Reactions0reactionsComments4 comments
Will a Breast Reduction Help My AxSpa Symptoms?I was sitting my rheumatologist's office, when he mentioned "I think you should look into a breast reduction." This never crossed my mind. I was so angry at my doctor...Reactions0reactionsComments5 comments
"Ask Me Anything" With a Health CoachAre you living with axial spondyloarthritis (AxSpA) and looking for ways to improve your quality of life? Do you have questions about how lifestyle changes can help you manage your...Reactions0reactionsComments0 comments
Quitting Is Not Giving Up: Learning Your AxSpa LimitationsI used to be a runner, a golfer, ice hockey player, and could stay up all night laying down floor tiles. I once created 12 six-foot tall plywood letters, and...Reactions0reactionsComments4 comments
Tips For Weightlifting With ASSince I was a teenager, I have always enjoyed lifting weights at the gym. It was probably the first hobby I had that didn’t get me into trouble! I loved...Reactions0reactionsComments11 comments
Awake in the Dark: Navigating Nighttime Pain With Axial SpondyloarthritisBroken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage when these symptoms crop up. It’s usually the...Reactions0reactionsComments24 comments
Axial Spondyloarthritis: A Lesson in Traveling With IntentionI’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...Reactions0reactionsComments5 comments
Finding Your Ideal RheumatologistEveryone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...Reactions0reactionsComments1 comments
Ankylosing Spondylitis: Navigating Fear and ResilienceI've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...Reactions0reactionsComments6 comments
Acceptance and Transition After an AxSpa DiagnosisI am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...Reactions0reactionsComments5 comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...Reactions0reactionsComments6 comments
Finding Acceptance, Belonging, and Embracing Your JourneyLiving with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...Reactions0reactionsComments6 comments