Finding a Hobby That Works With Your LimitationsIt’s heartbreaking watching your body slowly deteriorate and transform into something you don’t even recognize anymore. Many of us used to be...reactions6comments
Living, Working, Experiencing DisabilityWhen you are someone who experiences disability, there are many barriers that you face in your everyday life. There is a lot...reactions4comments
5 Ways We Can Reduce the Impact of our AS SymptomsSo, you’ve been diagnosed with AS. You’ve had all the x-rays, the MRIs, and the bloodwork. You’ve endured poking, prodding, and you’ve...reactions5comments
My Stretch RoutineI like to think of ankylosing spondylitis as a very intense personal trainer that uses the threat of my spine fusing together to motivate...reactions22comments
Quitting SmokingI know it is not exactly breaking news that smoking cigarettes is bad for your health. However, you may not know that...reactions9comments
Getting Ready for My Hip SurgerySoon I will undergo right hip surgery. After a more than a year of hip pain, trying every conservative measure possible (physio...reactions5comments
Dry Eyes With BiologicsSoon after getting my diagnosis with AxSpa (after years of waiting for a diagnosis, though), and starting my first biologic treatment (Embrel)...reactions8comments
Polyvagal Theory and Chronic IllnessDr. Stephen Porges developed his polyvagal theory in 1994. You may already know that the vagus nerve is involved in how we...reactions3comments
How AS and AxSpa Are Different For WomenIn the past, doctors thought that ankylosing spondylitis (AS) and axial spondyloarthritis (AxSpA) were more common in men than women. Now, there...reactions20comments
My Comfort Levels With COVIDCOVID is coming up on its 2 year anniversary. Can you believe it? I can’t. The past 2 years have been so...reactions1comment
The Chronic Monster in DisguiseWho knew I would wake up one day not feeling the same ever again. Who knew, something I call the chronic monster...reactions1comment
My Symptom Tracking MethodI used to loathe the idea of symptom tracking. It stressed me out to think of making a list of all the...reactions13comments
4 Video Games That Help Me Get Through High Pain DaysOver the last two years, I’ve had to say goodbye (or hopefully just "see you later") to some of my favorite hobbies...reactions3comments
Taking a Moment To See the Lightness in the DarknessTo preface, I would just like to quickly say that no, of course we will not feel positive 24/7 while struggling with...reactions1comment
Gut Issues and Trying to Find AnswersIf I were told to choose one system that I didn’t want to malfunction and impede on my daily life, the digestive...reactions6comments
New City, New RheumatologistIn many ways, your quality of life with ankylosing spondylitis (AS) depends on your rheumatologist. That’s why it was nerve-wracking when I...reactions6comments
The Year of Living PainlesslyI’m firmly knocking on wood as a write this, but it’s been 12 months without a flare. Apart from two pregnancies, during...reactions5comments
My New Dose of Cosentyx Put Me Into a FlareOnce a month on Fridays I have picked to have my injection day. You would say I have gotten use to it...reactions10comments
Speaking A Shared Language of PainLately, I’ve been in an endless flare-up — one of those flare-ups that change shape every day. It's my neck or my...reactions6comments
Experimenting With CBNHere in Canada, Cannabis is legal. For a while now I have been using cannabis as a way to cope with my...reactions3comments
