Let's Talk about Sex and ASI'm not one to come out and easily talk about my sex life, or my sex life with Keegan. But part of...reactions1comment
The 3 Biggest Shocks of Becoming a CaregiverSome days, I don't really feel much like a caregiver to my husband, Keegan, who's suffered from AS for more than 10...reactions4comments
Auldyn and Keegan Vlog: Family Trips During a Flare-UpAuldyn and Keegan are no strangers to the difficulties of traveling with ankylosing spondylitis. Traveling can get even more complicated when you're...reactionscomments
Realizing AS Changes EverythingGrowing up, I had heard of others in my family being diagnosed with serious and life-changing illnesses, but they were older. That's...reactions5comments
To Biologic or Not to Biologic?"I'd recommend starting a biologic," Keegan's rheumatologist suggested at our first appointment. Keegan, my husband, and I were still wrapping our heads...reactions3comments
Let's Find Some Positivity Out of This Chronic IllnessHaving a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live...reactions2comments
How Sound Healing Can Help With AxSpa SymptomsAt the beginning of March, I went to a sound healing session in a lovely venue, beautiful Church, here in Edinburgh. I...reactions5comments
My Meal Prep HeroesMy paternal grandmother was Team Meal Prep before it was cool. She had no choice, working full-time while raising 4 kids on her...reactions4comments
My Chronic Struggles With Keeping Up With RepliesWe live in a bit of a "now culture" where people want everything instantly – including replies to text messages and emails...reactions15comments
The Power of My WhiteboardWhen in doubt, write it down. As someone who has for so long relied on a very strong memory, AxSpA put a...reactions4comments
Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant...reactions4comments
Birthday Planning the AxSpa WayMy daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on...reactions5comments
To Go Out or Not to Go Out?Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling...reactions12comments
A Look Back at Seven Years With ASThis past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years...reactions2comments
Tips for Managing at Work With AxSpaSome of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent...reactions1comment
Living With AxSpA, Deciding to Have Children, and Genetic CounselingHaving children was never my top priority in life. Being a teenager, talking with my girlfriends about life plans, we had different...reactionscomments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that...reactions2comments
What’s in Keegan’s Flare-Up Kit?Do you have a flare-up kit? If not, I highly recommend it. We never consciously thought about putting a flare-up kit together...reactions10comments
Mental Health Month 2020: Not Just In Your HeadFor a long time, we said mental health happens in the mind and the body is just along for the ride. People...reactionscomments
I Tried "Yoga for AS"Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It...reactions3comments
