What is My Criteria for a New Rheumatologist?My rheumatologist of the last fifteen or so years is retiring. Talk about striking fear in the heart of a long-term patient. Wow, that is not great news. I know... By Lawrence Rick Phillips4 min readBookmark for laterReactions 0 reactions Comments11 comments
The Nutrition ParadoxWhen I was diagnosed with AS, I was also diagnosed with Crohn's Disease. A double whammy. I grew to understand that dietary changes and certain diets could have the potential... By Jamie Boder2 min readBookmark for laterReactions 0 reactions Comments4 comments
I’m So Over It - Chronic Illness and Healthcare Burnout2021 was fun, tiring, wonderful, complicated, and stressful, among other things. Above all, it was a long, exhausting year full of healthcare visits for me. As a result, I’ve been... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments4 comments
Mourning My Former AthleticismReceiving an AxSpA diagnosis can come with a flurry of emotions, both good and bad. I received my diagnosis before my senior year of college and what was supposed to... By Pamela White2 min readBookmark for laterReactions 0 reactions Comments4 comments
Another Day With Axial SpondyloarthritisIt is going on 2 months since returning back to work. I have good days and I have bad days. I love what I am doing. Then what is the... By Nicky Flikas2 min readBookmark for laterReactions 0 reactions Comments4 comments
One Year of CosentyxAs I’m writing this, I’m having the worst flare since starting Cosentyx. I have been on Cosentyx for a year now. It has given me my life back. Besides this horrible flare, I’ve been doing... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Nagging Pain of Costochondritis"I felt like I was having a heart attack," a friend in an ankylosing spondylitis support group wrote, flabbergasted. "I felt like my chest was on fire, and like my... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments3 comments
Inject With AliInjecting biologics can take a while to get used to. The AS and AxSpa community, especially on Instagram, have been sharing their injection videos for quite a while now. It... By Ali Long1 min readBookmark for laterReactions 0 reactions Comments4 comments
Will I Ever Go Back Into Remission?As I’ve mentioned in previous articles, I was blessed enough to have lived 8 years in remission. During those 8 years I couldn’t even remember what it was like to... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments1 comments
Revisiting My Old Life With the New MeI had a very inspiring coaching session as part of my Diploma in Life Coaching. I explained to the coach my plans and how I reinvented the wheel of my... By Julie Vallortigara2 min readBookmark for laterReactions 0 reactions Comments2 comments
You Are Strong!Having a condition like AS can often play tricks with our minds and fill us with self doubt. For me, it was mostly the feeling that this condition has made... By James Hollens3 min readBookmark for laterReactions 0 reactions Comments0 comments
Getting Back in Touch With My BodyI’d suffered from the pain of AS for years when I began to notice how disconnected I was from my body. Everyone told me how important it was to exercise... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments3 comments
Protecting My Peace And PurposeThe twists and turns of life have taught me that it’s essential to protect my peace of mind and honor my purpose in life. The foundation is putting myself first... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments5 comments
The Need for SupportSupport is something not everyone is fortunate enough to have. I understand that I am incredibly lucky with the support system I have, and I try to be the best... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments
How AS and Pregnancy Made Me A Medical UnicornDeciding to start a family while navigating life with ankylosing spondylitis wasn’t necessarily a hard decision. My husband and I recognized that we may be embarking on a challenge full... By Erin King3 min readBookmark for laterReactions 0 reactions Comments10 comments
Pain Management Referral for my Muscle SpasmsSo, today I had my rheumatology appointment. I wasn’t supposed to be seeing my rheumatologist until February, but my spasms have been so intense that I made an earlier appointment. I’ve been... By Ali Long3 min readBookmark for laterReactions 0 reactions Comments5 comments
Get Yourself ConnectedLet’s face it, everyone loves me! Yes, this is going to be one of those articles where I talk about self worth, popularity, and building your social network. But, in... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments1 comments
How to Care for the Caregiver“But honey, what can we do to help you?” It’s a question that echoes in my head from time to time. It’s a question I remember my mom asking while... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Changing My Diet Sent My AS Into RemissionEditor's note: Please check with trusted doctor, dietician, and/or healthcare provider before beginning any significant dietary changes. In early 2017, dissatisfied with the superficial nature of pain medication, I sought... By Ali Cornish2 min readBookmark for laterReactions 0 reactions Comments1 comments
Taking Risks as a Chronically Ill PersonAs a sick and disabled person, it isn’t very often that I actually get to take risks or even have the choice to. I recently took a road trip with... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments3 comments