My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for...reactions1comment
The Importance of Sunlight With ASI've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority...reactions12comments
How To Be Heard With AxSpa: Doctor EditionHave you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something...reactionscomments
My 5 Things For a Better DayI’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life...reactions2comments
I'm So Sick of Brain FogDo you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by...reactions3comments
Learning to Cope With Illness Isn’t A Straight PathIt’s a misconstrued assumption that those who have spent years with an illness eventually unlock some secret in managing it. I’m here...reactions6comments
Hold for Infections: My Recent Experience with Biologics and ImmunosuppressionMy life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I...reactions7comments
When the Rain CameSummer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa...reactions4comments
Hiking and DiscoveringLiving on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you...reactions4comments
Questions I Ask Myself When Seeing a New DoctorLet’s talk specialty physicians. If you grimaced at the thought of having this conversation, you probably have had the same experience that...reactions7comments
Dealing With FOMOKeeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or...reactions4comments
The Hidden Costs of AxSpACost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a...reactions3comments
Advocates Sharing With Advocates: René Interviews JamesOne thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS...reactions4comments
Dogs With PurposeAs I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at...reactions9comments
Am I Really Disabled?I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes...reactions6comments
Casey, A Supportive Person in My LifeWhen I first got diagnosed with AS, I felt distraught. But I was very lucky to have someone in my life who is not...reactions5comments
Managing Everyday Tasks with AxSpaAs many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become...reactions11comments
Advice For My Younger SelfI knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got...reactions7comments
An Ode To Chronic FatigueYou know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like...reactions9comments
I've Hit Caregiver Burnout...Now What?I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know...reactions2comments
