Articles

My biggest regret over the last 16 years of being chronically ill is this: I wish I had assembled a team of medical experts early into my diagnosis. If there...

Fall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at the end of September and beginning of October...

In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have a different journey with our disease I think...

Before getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home, all day long. When I mean I loved...

There are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some sort, I tend to experience a pause in...

I recall filling a survey on this website and answering a question about the amount of time I spend managing my condition. That made me realize how much time I...

Since I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents. It was our tradition. Sometimes we would even...

Growing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law — and we’d have to obet. After all...

Getting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life of autoimmunity. At that age, most of what...

As someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for weeks or months. They also vary in intensity...

I’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin down. I’m sure I read somewhere that most...

Comedian John Mulaney once said, when talking about his bad driving, “I hear you honking, and I also don’t want me to be doing what I’m doing!” As AxSpA patients...

When I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by going down the internet rabbit hole. My partner...

I was diagnosed with AS in 1999 and told I’d never work again. I went on full benefits – I was even allowed to apply for a car. I felt...

The Bob Seger tune "Like a Rock" came on my music player as I walked the other day. It got me thinking of the number of references in popular music about...

Taltz is not my first biologic on my journey to finding the right treatment. My first biologic was Cimzia, but my rheumatologist believed it stopped working right after my loading...

Ankylosing spondylitis (and any other chronic illness for that matter) can happen to anyone. It doesn’t care if you’re a new college student or a single working mom of three...

When we think about foot pain, we often don’t think of it being a common AxSpa symptom, but for me this was one the main symptoms that started to put...

I left off Part 1 of my diagnosis story just before I was forced to wheel myself onto a flight back to the UK. I bid farewell to all of...

My first birthday being sick was a strange one. I was so unwell. My friends and family made such an effort to make sure I had a special day, a...