Societal and Familial PressuresDisabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms...reactions3comments
My Blackout Lessons My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day...reactions3comments
Things I Still Do With AxSpa!I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I...reactions1comment
One Day I Went to Bed and Never Woke UpMy journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems...reactions3comments
How Seeing My Symptoms Differently Changed EverythingI remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange...reactions13comments
As We Gather: Hydrating Recipes for WellnessMonths have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a...reactions2comments
7 Years in No Diagnosis Land, Part 3: AnswersIn part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally...reactions6comments
The Long Path to DiagnosisI read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer...reactions4comments
Tips to Advocate for Yourself at the Doctor’s OfficeGetting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health...reactions1comment
My Family Doctor Gaslit MeUp until recently, I’d been pretty lucky with my doctors. My family doctor was the first doctor I told about my pain...reactions5comments
Mobility Aids Are FreedomMany people use mobility aids. These include canes, crutches, walkers/rollators, wheelchairs, etc. They are common things you can come across every day...reactions4comments
Getting Over Humira Injection FearPicture this: I'm seven years old, and there are several large adults holding me down to a hospital bed so that a...reactions1comment
My Disease is Dynamic: This is What it Looks Like for MeSomething that's getting a lot of attention in the chronic illness community right now is the idea of a dynamic disability. So...reactions4comments
Part One Of My Diagnosis Story: Getting Diagnosed in ChinaI thought I would share my diagnosis story with you guys for two reasons. Firstly, because it’s a pretty unique and crazy...reactions8comments
Pivoting With AxSpaI think one of the biggest misconceptions I had about my AxSpa journey was that when I found the right medications, diet...reactions1comment
Supporting a Partner with AxSpA Vol. 2 - Advice for OthersThis is volume 2 in a series of articles focusing on supporting loved ones with axial spondyloarthritis. The advice I would give...reactions2comments
My First COVID-19 VaccineI was sitting in my friend's garden, socially distant when I received the text on Friday the 23rd of April saying that my consultant had registered me for my vaccine. I was due to have it on Wednesday...reactions2comments
Tuning Into Self-Worth While Chronically IllA lot of the time when I'm speaking to people with AS (and other chronic pain conditions), they mention that their disease...reactions3comments
A Mental Health Flare-Up KitDuring a flare-up, we all have our tools and assistive devices to make things better. From a walker to a cane to...reactions15comments
I Experience Ableism When I Use My Mobility AidsI’ve been using my mobility aids (mostly my walker) more and more the past few months. Over the course of the pandemic...reactions5comments
