Why I No Longer Put On a Brave Face With My DoctorsA lifelong people-pleaser, I've always tended to be polite and agreeable in an effort to make others comfortable. When a problem arises, my instinct is to figure things out for...Reactions0reactionsComments5 comments
Sharing Intimate Moments: Why We Began Posting Injection VideosSitting with injection needles, alcohol cleansing wipes, and cute band-aids… Taking deep breaths and hyping yourself up to prick your skin and let your medication infiltrate your body… Dumping the...Reactions0reactionsComments4 comments
Life Before And After FusionMy husband, Keegan, walked with a limp for a long time before he was diagnosed with AxSpa. I remember one night he dragged his leg from where our car was...Reactions0reactionsComments2 comments
We're SorryRecently, we featured a giveaway promotion of a cane in our weekly newsletter. One of our members brought to our attention that the subject line of our newsletter using a...Reactions0reactionsComments0 comments
Muscle Spasms and Axial SpondyloarthritisWhen you google AS there is a specific number of symptoms and a definition of what you should feel like. This is incorrect; it is different for everyone. For example, one girl I met...Reactions0reactionsComments38 comments
Is Unattended Grief Hurting You?The Swiss-American psychiatrist Elisabeth Kübler-Ross popularized the common understanding that humans process grief and loss in stages in her 1969 book On Death and Dying. Kübler-Ross revised her vision throughout her...Reactions0reactionsComments0 comments
A Lesson In Stability and Chronic IllnessI had the most transformative and bizarre and horrible month of March. When Shakespeare's soothsayer warns Julius Caesar, "Beware the Ides of March," the phrase was born and tumbled through...Reactions0reactionsComments1 comments
Dreading When the World Goes Back to “Normal”As the pandemic shows signs of finally drawing to a close, people are talking about what life will be like when things go back to “normal” — how strange it...Reactions0reactionsComments0 comments
It’s Hard to be This Awesome All the TimeLet me just tell you something...It’s hard to be this awesome all the time! I wake up awesome, I go to work awesome, I eat my meals, and go to...Reactions0reactionsComments1 comments
Interview: How Coaching Could Change The Way You Live With AxSpa (Part 1)As a duo of a Life Coach (Julie) and a Health Coach (Lana), we have decided to write a series of articles together. We want to share our stories with...Reactions0reactionsComments0 comments
What Being Dynamically Disabled Means to MeAfter 16 years of living with a dynamic disability, I am only just scraping the surface of learning what it means to me. Coping with pain is difficult for anyone...Reactions0reactionsComments3 comments
Believe Chronically Ill People, PeriodAfter the singer Jessie J was recently diagnosed with Ménière’s disease, which is marked by vertigo, dizziness, hearing loss, involuntary eye movement, and motion sickness, I saw plenty of people...Reactions0reactionsComments3 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
What Are Digital Therapeutics?Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
Strengthening Your Core Without Causing a Flare: Part TwoLearn the basics in Strengthening Your Core: Part 1 here! In part one, I focused on what makes up the core, and gentle ways to begin to engage these muscles...Reactions0reactionsComments1 comments
My New Coping Strategy: Earn My PainI have developed a new coping strategy over the past few months. I am going to earn my pain. At first glance, it may not sound like the most sensible...Reactions0reactionsComments2 comments
Moving With Axial SpondyloarthritisMy family and I purchased a home this winter, and while a part of me was extremely excited and anxious to make this happen smoothly, I knew with where I...Reactions0reactionsComments1 comments
Surreal Pain DreamsThroughout the past year I have noticed that even in the deepest slumber, my pain can control me. Often the pain might wake me. This is annoying but what I...Reactions0reactionsComments14 comments
Famous People With Axial SpondyloarthritisI am reading an excellent biography of Ulysses S. Grant by Ron Chenow, and I am enjoying it. I have completed about 400 of the 1,200 or so pages, and...Reactions0reactionsComments3 comments
Axial Spondyloarthritis With a Side of Peripheral ArthritisA cold front has arrived and my joints are rigid and slow to respond. Not just the joints in my back and hips, but peripheral joints as well. I bundle...Reactions0reactionsComments4 comments