I Was Wrong About ArthritisI was wrong about arthritis before. I was wrong about who arthritis affects. I thought it was an affliction of the elderly...reactions4comments
I Decided to Reclaim my BodySomething that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean...reactions1comment
COVID-19 Updates, July 16: Updates on People at Risk, Testing, Reopening, and a VaccineEven after months of navigating life in the COVID-19 era, keeping up with new information and news can be overwhelming. Below are...reactionscomments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine DevelopmentMany of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be...reactionscomments
Everyday Thoughts and My Chronic IllnessWhen it can affect every aspect of your day-to-day life, there’s no forgetting about a chronic illness. After I was first diagnosed...reactions5comments
How I Sleep Better With ArthritisMy best days go full circle, with a natural flow from activity, rest, more activity, relaxation, and then sleep. I begin and...reactions5comments
A Brutally Honest Shingles FAQI've learned that a lot of people in the ankylosing spondylitis community have experienced the incredibly disgusting, horribly painful, grossly unattractive plague...reactions2comments
Preparing For a New School Year With AxSpaLiving with a chronic illness and being a mother doesn’t come easy. I am learning new ways every day to make it...reactions5comments
Chronic Illness: A Life Sentence or A Lifeline?A chronic illness diagnosis can be a very confusing and terrifying experience. Being told that I had a medical condition that will...reactions5comments
A Look At The Mythology of the SpineI read an interesting bit of mythology around the spine the other day, as I delved into one of my many "Wikipedia...reactions2comments
How's Your Pandemic FOMO?The epic film Love Actually tells us that Christmas is an enchanted time for magical moments and taking stock of our lives...reactions2comments
How Fundraising Helped MeLuckily, I have never suffered with my mental health (touch wood). After my diagnosis, it was the worst I had ever felt...reactions5comments
Keeping Busy During a Flare-UpI think I speak for everyone when I say AS flare-ups are the bain of our existence. There is no worse feeling...reactions10comments
Things I No Longer Do With AxSpaIt has been almost two years since my axial spondyloarthritis diagnosis and this year has brought about many new and scary treatments...reactions3comments
My Cup Runneth EmptyYou know that saying, "you can't pour from an empty cup"? Well, no one told me when I was diagnosed that ankylosing...reactions2comments
Rumble, Old Man, Rumble!A story of a boxing match that helped me learn to manage my AxSpA flares. October 1974. I am 16 years old...reactions3comments
Where Are All The Men?When I was first diagnosed with ankylosing spondylitis, I was informed that it was a condition "mostly affecting men in their 20s."...reactions21comments
Leveling Up Your Self-CareI've found over the last year that there are places to level up self-care in our house. My husband, Keegan, suffers from...reactions2comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from...reactions1comment
How I Recharge My Internal BatteriesWhat energizes you? This is a question I enjoy asking my coaching clients and personal network. Our AS lives are full of...reactions7comments
