Why Community MattersWhen it comes to finding community, the ankylosing spondylitis warriors online have it on lock. From Instagram hashtags to Facebook support groups – and even our websites, AnkylosingSpondylitis.net and AxialSpondyloarthritis.net...Reactions0reactionsComments0 comments
What Does Caregiving Look Like for an AS Patient?I never considered myself a caregiver to my husband, Keegan, until a couple of years ago. After all, the picture of caregiving is usually someone younger helping an older family...Reactions0reactionsComments3 comments
I'm Not High Maintenance, I'm Chronically IllEveryone likes a “low-maintenance” girl — the girl who can tag along with friends at a moment’s notice, without worrying about the details, the girl who goes with the flow...Reactions0reactionsComments1 comments
Being Around People Who Get ItI’ve had quite a few people come and go from my life ever since I got sick. I try my best to only see the people that get my illness...Reactions0reactionsComments2 comments
Getting out of Bed with Spondyloarthritis, Part IIMotivation to begin exercising is a major problem for me. I'm just tired - mentally and physically - from family drama, a bad diet, a wonky-doodle work schedule, and yes...Reactions0reactionsComments3 comments
Our AxialSpondyloarthritis.net Community is on Instagram!Did you know that you can find our AxialSpondyloarthritis.net community on Instagram? Give us a follow so you can engage in great community discussions around managing rheumatoid arthritis and make...Reactions0reactionsComments0 comments
Thinking About Food I can’t imagine another time when food played a more central role in our society. We can watch cooking shows at any time of the day, make food appear on...Reactions0reactionsComments0 comments
I’m On A DietMy doctor and I had The Talk, you know the one. We talked about the dreaded BMI, exercise, and carbs. She asked me to try a formalized version of the...Reactions0reactionsComments2 comments
Why Working from Home is Best for my Ankylosing SpondylitisEver since I developed ankylosing spondylitis (AS), work has been a source of worry for me. Most jobs, from customer service to traditional office jobs, present challenges for me. Customer...Reactions0reactionsComments3 comments
Mindfulness and ASWe all know that stress is the worst thing for an individual with AS. I know this, and for me having AS causes me stress! How do I control this?...Reactions0reactionsComments1 comments
A Gem for My Axial Spondyloarthritis: Somatics!Before my diagnosis, every week I was going to the gym, playing squash, and badminton. I would not get any "side effects" from high impact activities apart from achy muscles...Reactions0reactionsComments0 comments
I Used To Be The Person Who Didn't Understand Chronic IllnessBefore ankylosing spondylitis, before any strange symptoms, and well before I ever thought there could be something wrong, different, or sick about me, I didn't understand chronic illness. The fact...Reactions0reactionsComments3 comments
Ankylosing Spondylitis Doesn't Give a Damn About College DeadlinesBeing a student is hard enough as it is. Being a student with a chronic illness is a whole new level of hard. I am in my final year of...Reactions0reactionsComments2 comments
This Winter is Rough on the Joints!I like winter, with Christmas celebrations, the arrival of a New year and fresh perspectives. I feel efficient as the season evolves; these months are productive for me. Now the...Reactions0reactionsComments2 comments
What My Days Look Like Living With AS: Part 2Editor's note: You can read about the first part of Katie's day with AS here. It’s now about 8 AM. I pull into the driveway and put the car in...Reactions0reactionsComments1 comments
Mornings with Axial Spondyloarthritis: Waking Up in PainI never was an early riser. As a teenager, I could easily sleep til noon on the weekends without concern that I was missing something and, more importantly, without being...Reactions0reactionsComments0 comments
How AS Saved My Mental HealthI was in a pretty dark place mentally just prior to my AS diagnosis. I was living in China and between jobs while I was dealing with some visa issues...Reactions0reactionsComments12 comments
How to be Gentle with YourselfIt's been a whirlwind of a year. It's February 2021, and goodness knows we've all been through a lot. For my family, we've had our fair share of stressors and...Reactions0reactionsComments1 comments
My AS, Five Years From DiagnosisUnlike many stories that I’ve read, I do not remember the day I was diagnosed. Not really. That period of my life was one big blur. I was stressed, studying...Reactions0reactionsComments3 comments
Identity Crisis After DiagnosisOur identity is what makes each of us unique. Whether it’s our outward appearance, personality, or even our last names, one’s identity is what makes us who we are as...Reactions0reactionsComments2 comments