The Rollercoaster of Living with Chronic PainBeing in pain 24 hours of the day, 7 days of the week is exhausting. Losing sleep because of it, waking up early because of it, not being able to... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments0 comments
What My Days Look Like Living with AS: Part 1It’s 6:50 AM. The alarm is going off, but I don’t want to move. I didn’t sleep but probably 4-5 hours. I tossed and turned the entire night, trying (and... By Katie Saville3 min readBookmark for laterReactions 0 reactions Comments5 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Service Animals and Emotional Support AnimalsIf you have axial spondyloarthritis (AxSpA), you might have considered a service animal to support you. Service animals are often associated with those needing a seeing-eye dog or mobility assistance... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments4 comments
A Little Bit About Me and My ASThroughout my life I have always been tired, I thought this was "normal." I have suffered from mild back pain on and off for years, mostly in my tailbone. I... By Ali Long3 min readBookmark for laterReactions 0 reactions Comments4 comments
Hi, I’m “Just The Immunocompromised”As the COVID-19 pandemic drudges on, so does my frustration, as I watch people I once thought to be intelligent make brainless decisions that contribute to the spread. These poor... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments3 comments
Beyond Medication: Managing Axial Spondyloarthritis HolisticallyWhen I first was diagnosed with ankylosing spondylitis, I didn’t see or read a lot about stress management. In fact, all of that seemed strangely disregarded, as though our minds... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments3 comments
My Challenge to Adapt to the Unpredictable AxSpaI used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and gatherings in my house. I would get very... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments4 comments
Our Winding Journey to Finding RheumatologistsSince I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find rheumatologists. This was definitely the case for my... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments4 comments
I Don’t Like Long Walks on the Beach: Dating and Chronic PainFor anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having a chronic illness adds another dimension to that... By Cassia Pelton3 min readBookmark for laterReactions 0 reactions Comments3 comments
Balancing School While Managing ASStarting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first semester of journalism, and despite how ready I... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments1 comments
Sharing the Good Days When You Have AxSpAAt the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays had been very difficult in the past and... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments2 comments
I Decided to Reclaim my BodySomething that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean, our bodies do actively work against us every... By Steff Di Pardo3 min readBookmark for laterReactions 0 reactions Comments1 comments
How Connecting to Nature Helps Chronic PainKeegan, my husband with AS, always has loved being outside. When I first met Keegan, I was surprised at the 30-minute ride in the hills of southeastern Ohio resulting in... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments5 comments
Support Group DoomscrollingWhen I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual diagnosis to learn about. I had a ton... By Arden Doerner Barbour3 min readBookmark for laterReactions 0 reactions Comments3 comments
Yes, I'm DisabledI think this topic is something that people with AS struggle with. I know I do, so I wanted to write about it in case anyone else was too. Are... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments4 comments
Adding Injury to AxSpA Pain: Thinking About Acute vs. Chronic PainMost of the pain I feel these days--well, for the past two decades--is chronic pain related to AxSpA. As I’ve previously mentioned, pain is difficult to describe and I struggle... By Jessica Gama4 min readBookmark for laterReactions 0 reactions Comments4 comments
How I Cope with PainBeing in nearly constant pain is a very difficult concept for anyone to come to terms with. It can feel so isolating, and can really disrupt your life, and at... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Stretching for Costochondritis PainCostochondritis is a type of chest pain felt at the costosternal joint, where the ribcage meets the breastbone. This disorder is associated with several conditions, one of which is ankylosing... By Katie Phares2 min readBookmark for laterReactions 0 reactions Comments12 comments
9 Tangible Ways AS Has Helped MeI can tell you 10,000 ways AS has limited me, annoyed me, pained me, frustrated me, and made me feel just awful. I know you can, too. In fact, I... By Lisa Marie Basile4 min readBookmark for laterReactions 0 reactions Comments2 comments