How AS Saved My Mental HealthI was in a pretty dark place mentally just prior to my AS diagnosis. I was living in China and between jobs while I was dealing with some visa issues...reactions12comments
How to be Gentle with YourselfIt's been a whirlwind of a year. It's February 2021, and goodness knows we've all been through a lot. For my family, we've had our fair share of stressors and...reactions1comment
My AS, Five Years From DiagnosisUnlike many stories that I’ve read, I do not remember the day I was diagnosed. Not really. That period of my life was one big blur. I was stressed, studying...reactions3comments
Identity Crisis After DiagnosisOur identity is what makes each of us unique. Whether it’s our outward appearance, personality, or even our last names, one’s identity is what makes us who we are as...reactions2comments
Chronic Illness And Sensory OverstimulationInspired by a post by The Unchargeables, an Instagram account dedicated to those of us with chronic illness, I was thinking about the feeling of overstimulation (or sensory overload) —...reactions2comments
The Spirituality Of IllnessI remember the first time I prayed in a long time; I was in my mid-20s and I was dealing with a year of uveitis flare-ups, I had been through...reactionscomments
How Being Chronically Ill Affects My RelationshipWhen I first met my fiancé, I had already been in remission for seven years. I explained to him early on about my illness, how it affected my life, and...reactions1comment
How Does Your Experience Compare to That of Others Living with AS In America?In 2020, 787 people living with ankylosing spondylitis took our online Spondyloarthritis In America Survey. We also got information from people living with: Each year, we learn so much about...reactions1comment
Support Your Body Through The WinterWinter: a challenging season for so many of us with chronic conditions like AxSpA. The short days and cold temperatures are felt deep down in the bones and joints. This...reactions4comments
The Old Me Vs. The New MeI feel like something a lot of us do is compare. We compare the things we used to do to the things we do now. We also compare what we...reactionscomments
What My AxSpA Diet Looks LikeWe hear a lot of conversations around well-being and diet, especially so in the chronic illness community. We often are told that diet will be the cure for AxSpA (or...reactions1comment
How Do I Connect with Real People Living with AxSpA?Navigating life with axial spondyloarthritis (AxSpA) can be scary or confusing, especially when going through it alone. After hearing those words “You have AxSpA/AS,” it is hard to know where...reactionscomments
Getting Out of Bed with Spondyloarthritis, Part IFor years, my "good morning" attitude has been squashed by chronic illness. Enduring a restless night of pain associated with spondyloarthritis (SpA) makes it much more difficult for me to...reactions2comments
A Confession: Things Are HardWhen I get dark, I get really dark — but I don’t think there’s anything wrong with confessing it. In fact, why keep it in — why let the engine...reactions5comments
Beginner's Tips for Your Rheumatologist VisitsOver the past few years, my mom has dealt with a few chronic health conditions (she's actually in the process of determining if she has a form of AxSpA herself)...reactions2comments
Self-Care with a Chronic IllnessI never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for myself. Since I’ve had AS, I’ve had to...reactions2comments
AxSpA Pain ManagementFirst of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and error when it comes to pain management. What...reactions3comments
Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...reactions4comments
Living With Ankylosing Spondylitis: My Journey & LearningsIn 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was, and at the same time a relief, to...reactions15comments
What Makes Me Happy Makes Me StrongerOne sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It comes from a physiotherapist I worked with during...reactionscomments