Learning Adult Lessons Through Having ASPerhaps a silly title, finding out how to go from a teenager to an adult was quite a journey for Keegan, my husband with AS. We started dating at 17...Reactions0reactionsComments1 comments
My Illness Through My Children's Eyes: An InterviewWhen I was first diagnosed with AS, my number one worry was how my illness was going to impact the lives of my children. I have two young boys, and...Reactions0reactionsComments2 comments
What Happens When I Overdo ItEver since COVID hit, I haven’t really been active. I wasn’t the most active person before, but I’ve barely even done yoga since March. I know I should be, I...Reactions0reactionsComments2 comments
Ankylosing Spondylitis With A Twist of LymeChronic illnesses are a lot like potato chips, you can’t have just one! If our bodies allowed us to deal with chronic illness one at a time, a lot of...Reactions0reactionsComments6 comments
Others May Not “See” It. But I Feel It.During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...Reactions0reactionsComments1 comments
"It’s Not the Blender": Being Pro-Active vs. Reactive to my ASIt was December last year, as I slumped on our bedroom floor, having my suddenly burst into tears about having to carry a blender home (stick with me, there’s a...Reactions0reactionsComments3 comments
Fibromyalgia, the Unannounced Passenger…Once my axial spondyloarthritis was under control with a prescription of biologics and physiotherapy, on paper I was sorted. Yet, pain and fatigue were there. At that time, I was...Reactions0reactionsComments2 comments
My Top 5 Comfort Must-Haves For ASWhen I started experiencing symptoms of AS, comfort suddenly became the forefront of my life. If you suffer from AS, then you probably know the struggle of always trying to...Reactions0reactionsComments15 comments
Getting Hygge On Flare-Up DaysI've taken a very intentional approach to how I use my space when I'm in a flare-up. If I'm going to be sleepy or in pain, I may as well...Reactions0reactionsComments1 comments
Become an AxialSpondyloarthritis.net AdvocateWould you like to share your experience with axial spondyloarthritis and help others who are also living with the condition? We’re looking to add new voices to our advocate team...Reactions0reactionsComments1 comments
Letting Go of What You Can't ControlThe easiest and most logical thing in theory, and for me, incredibly difficult to put in practice. I found the concept a bit tricky before I had AS. I found...Reactions0reactionsComments1 comments
Yoga is a Safe and Cheerful Companion to my AxSpAI came across yoga a few years back now. I think I was looking for something a little spiritual and slow pace, which would help me to reconnect with my...Reactions0reactionsComments5 comments
Genetics of Axial SpondyloarthritisGenes are passed down from parents to their children. They are composed of DNA that dictates things like your eye color and your height. Genes also play a role in...Reactions0reactionsComments1 comments
Physical Therapy FAQ: Part TwoEditor's note: This is Part 2 of Katie's article. Please read Part 1 of Physical Therapy FAQs first!Physical therapists (PTs) are highly trained movement specialists who have a breadth of...Reactions0reactionsComments0 comments
My Life is Not SadI’ve noticed through talking with a few friends, and meeting new people, that I get a lot of pity when I mention that I’m sick. If there’s one thing I...Reactions0reactionsComments0 comments
No, You Didn't Give Yourself AxSpa or ASI hear a lot of people saying that they feel they're in some way responsible for their chronic illness (like this MultipleSclerosis.net writer), as if they did something wrong —...Reactions0reactionsComments2 comments
My Experience With Humira And LDNBefore being diagnosed with AS (and fibromyalgia), I was the type of person who would only take medication if I felt it was absolutely, undoubtedly necessary. The idea of popping...Reactions0reactionsComments1 comments
Cultivating Resilience In Hard Times 101: SuppliesI'm writing to you in September, the 50th month of 2020, in the year of our Despotic Overlord COVID-19. By now, we've all faced the juggernaut that is running errands...Reactions0reactionsComments1 comments
Getting Through the Day: A Vlog With Auldyn & KeeganOur AS advocates, Auldyn and Keegan, are married with a toddler...and Keegan lives every day as a stay-at-home dad with ankylosing spondylitis. In this video, they talk about getting through...Reactions0reactionsComments0 comments
Living With Axial Spondyloarthritis & FibromyalgiaWhen you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AxSpA also...Reactions0reactionsComments0 comments