5 Questions to Ask the Chronically Ill Person in Your Life (And 5 Questions To Avoid)If you know someone with a chronic illness like axial spondyloarthritis, you may have questions. This is a good thing — it likely means you want to better understand and...Reactions0reactionsComments2 comments
COVID-19 Updates, July 16: Updates on People at Risk, Testing, Reopening, and a VaccineEven after months of navigating life in the COVID-19 era, keeping up with new information and news can be overwhelming. Below are some of the latest developments surrounding COVID-19 for...Reactions0reactionsComments0 comments
I Advocated for Myself and I’m ProudI’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the capacity that it used to. We upped me...Reactions0reactionsComments1 comments
Processing Opinions and Advice 101: UnknownsIt is a truth universally acknowledged that some people in possession of opinions and advice cannot keep these precious "pearls of wisdom" to themselves. Discussions about what other people should do and...Reactions0reactionsComments2 comments
What Does Positivity Look Like With AS and Chronic Pain?For the past year, I became a bit of a cynic when it came to the positivity movement I'd been seeing all over Facebook and Instagram. It seemed like a...Reactions0reactionsComments0 comments
COVID-19 Proves That Accessibility Was Possible All Along—And Should Be Here to StayBefore COVID-19, my chances of being able to keep a doctor’s appointment on a day I was having an ankylosing spondylitis flare-up—-even if I’d been waiting to see the doctor...Reactions0reactionsComments2 comments
Being Whole With Ankylosing SpondylitisI have to admit that I rarely feel whole. I know my body is physically whole; in fact, I am in better health today than I was twenty years ago. In...Reactions0reactionsComments0 comments
I Lost Friends Due to My Chronic IllnessAs I’ve written about before, I’ve lost a lot to AS. One of the things that hurts the most (personally) is losing friends. I had a situation recently that sparked...Reactions0reactionsComments2 comments
What Happens When I Try to Be "Normal"Those of us with chronic illnesses know we have a different type of “normal” than people without them. But what happens when we try to do the things we were...Reactions0reactionsComments1 comments
The Spondyloarthritis WallThe Berlin Wall came down the night before my thirteenth birthday! Yes, I'm a lady of a certain age. I had a pair of parachute pants and two sets of...Reactions0reactionsComments3 comments
Weight Gain And Ankylosing SpondylitisI used to always be a "skinny minny." I never once thought about my weight until I turned about 26. My Sicilian grandmother would say, Mangia, you're too skinny, and...Reactions0reactionsComments2 comments
Ankylosing Spondylitis vs. Rheumatoid Arthritis: And The Diagnosis Is...?When diagnosed with ankylosing spondylitis (AS), I had never heard of it until a chiropractor asked, “Has anyone ever told you that you have AS?” “No; what the heck is...Reactions0reactionsComments10 comments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine DevelopmentMany of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be challenging. Here are some of the top developments...Reactions0reactionsComments0 comments
My Biologic Stopped Working For MeI was on Remicade for a total of 2 years. At first, it helped me tremendously. Now it’s stopped helping me altogether. The beginning of my treatment process was amazing...Reactions0reactionsComments21 comments
Developing Your Fatigue Response Plan, Part 2: The BasicsSpondyloarthritis has lots of things going for it as far as treachery goes. It's hard to pronounce. People don't know what it is or mistakenly think it's rare. It's seronegative...Reactions0reactionsComments2 comments
Today Was a Tough DayToday was a tough day. I woke up at 5:30 am only to toss and turn until my alarm went off at 6:30 am. It’s been a rough couple of...Reactions0reactionsComments2 comments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...Reactions0reactionsComments0 comments
After Much Reluctance, I Tried CBD For AS And AnxietyOver the past few months, my ankylosing spondylitis has been flaring up. I definitely think the global pandemic and being in quarantine has contributed to this, since I’m not able...Reactions0reactionsComments16 comments
Other Health Conditions Experienced Alongside LupusThe journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with many other conditions. Because of this, it can...Reactions0reactionsComments0 comments
Food Allergies, Gut Inflammation, And AxSpAScientists do not fully know how food allergies affect inflammation in axial spondyloarthritis (AxSpA). However, researchers believe there is a link between gut health and AxSpA. Food allergies have a...Reactions0reactionsComments2 comments