The beginning...I am a 31 old female living in Poland got diagnosed one month ago. I can't even count how long I have been dealing with the huge, huge pain. It...reactions3comments
Hi, I'm Michele! 32 Active - Alive - ASwarrior...Hi there! My name is Michele and I’m 32 years old. I was diagnosed finally, after living with it for what I presume most of my life, at age 26...reactions2comments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine Development...Many of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be challenging. Here are some of the top developments...reactionscomments
My Biologic Stopped Working For Me...I was on Remicade for a total of 2 years. At first, it helped me tremendously. Now it’s stopped helping me altogether. The beginning of my treatment process was amazing...reactions21comments
Developing Your Fatigue Response Plan, Part 2: The Basics...Spondyloarthritis has lots of things going for it as far as treachery goes. It's hard to pronounce. People don't know what it is or mistakenly think it's rare. It's seronegative...reactions2comments
FeaturedWhat would you share with someone newly diagnosed with Axial Spondyloarthritis?...Comment your learnings, tips, resources, or (non-medical) advice here to support someone going through a recent diagnosis! :-)...reactions14replies
Taltz® (ixekizumab)...On June 1, 2020, the FDA approved Taltz (ixekizumab) to treat adults with nonradiographic axial spondyloarthritis (nr-axSpA). It is meant for people with signs of inflammation, such as high CRP...
Today Was a Tough Day...Today was a tough day. I woke up at 5:30 am only to toss and turn until my alarm went off at 6:30 am. It’s been a rough couple of...reactions2comments
Jamie Shinkewski...Jamie is a 26-year-old living with Non-Radiographic Axial Spondyloarthritis in the interior of British Columbia. He was diagnosed in January 2020 after encouragement to seek testing from his mom and...
The Strobe Light of Chronic Illness – How Others See Only Small Snapshots...I was watching a cop show the other day, and one of those obligatory “drug-addled club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...reactionscomments
After Much Reluctance, I Tried CBD For AS And Anxiety...Over the past few months, my ankylosing spondylitis has been flaring up. I definitely think the global pandemic and being in quarantine has contributed to this, since I’m not able...reactions16comments
Other Health Conditions Experienced Alongside Lupus...The journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with many other conditions. Because of this, it can...reactionscomments
Food Allergies, Gut Inflammation, And AxSpA...Scientists do not fully know how food allergies affect inflammation in axial spondyloarthritis (AxSpA). However, researchers believe there is a link between gut health and AxSpA. Food allergies have a...reactions2comments
Axial Spondyloarthritis...I have been diagnosed with Axial Spondyloarthritis. Most times it is so difficult to function. I am stiff almost all the time. I have been diagnosed with bipolar, sleep apnea...reactions3comments
As this progresses do you start to have severe muscle spasms in back and rib cage area?...reactions10replies
How are you practicing self-care or self-love?...It’s normal to feel overwhelmed or anxious during stressful and uncertain times. It can be hard to manage those feelings. How do you cope with these feelings and what do...reactionsreplies
In America: What’s That?...The In America survey is now closed. Axial spondyloarthritis (AxSpA) is so much more than just back pain. To learn more about the challenges of living with AxSpA, we are...reactions3comments
Ask The Advocate: How PsA Impacts Daily Life...Psoriatic arthritis can change how you live your life every single day. This condition is the center of the wheel that outreaches to all different aspects of life: physical and...reactionscomments
The Strobe Light of Chronic Illness – How Others See Only Small Snapshots...I was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...reactionscomments
Nature's Impact on Our Physical & Mental Health...There is growing evidence that spending time in nature can help people feel less depressed, anxious or stressed. Maintaining our connection to nature can improve one’s quality of life and...reactionscomments
