What is the strangest reply you've received when telling someone you have AS?...Many people have never heard of ankylosing spondylitis before and it's quite a mouthful. What is the strangest response you've received when telling someone you have AS?...reactions7replies
Everything Looks Fine To Me: When Test Results Bring Frustration...I know it might sound contradictory to most, but one of the worst things someone in chronic pain can hear from a doctor is, “Everything looks fine to me!” I...reactions10comments
Are You Freaking Kidding Me...I can't believe a life long struggle leads to this road. Too many surgeries and misdiagnosed. The daily pain of different body parts flaring up leaves me feeling crazy. Family...reactions2comments
Dry, Cracked, and Very Parched...A few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe...reactions6comments
Privacy Concerns When Using Telehealth Services...Telehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...reactionscomments
Managing Chronic Pain With Medical Marijuana...Accepting that something so stigmatized could be helpful for Keegan took a while for me to get over. When we got married, I knew I'd do anything and everything I...reactions6comments
How Do I Find Virtual Health Services?...It can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...reactionscomments
A Day In The Life Of Someone With Ankylosing Spondylitis...One thing I find most people don’t understand when learning about AS is the fact that it affects every aspect of our lives. Daily life is made so much more...reactions7comments
Preparing for a Virtual Visit with Your Doctor...Visiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...reactionscomments
Lisa Marie Basile...Lisa Marie Basile was officially diagnosed with Ankylosing Spondyltiis in 2017 after living with nearly a decade's worth of symptoms. She has attended the NASS meetups in NYC, and is...
Jed Finley...Jed Finley was diagnosed with ankylosing spondylitis at the age of 12 during a time when children of that age were not prescribed medications and the amazing treatments we have...
Dawn Gibson...Dawn Gibson has lived with Ankylosing Spondylitis since 2001. She entered health advocacy by joining Twitter in 2011. In the intervening years she immersed herself in Spoonie Twitter, founding Spoonie...
Charis Hill...Charis was previously an advocate on AxialSpondyloarthritis.net. Charis is an award-winning queer disabled chronic disease advocate, writer, speaker and model living with Ankylosing Spondylitis (AS), Major Depressive Disorder, Anxiety and...
Cassia Pelton...Cassia was previously a health leader on AxialSpondyloarthritis.net. Cassia Pelton was 18 years old when she first started experiencing sharp pains in her sacroiliac joints. She went from being a...
Steff Di Pardo...Steff is a 24-year-old living in Toronto, Ontario. In February of 2017, she started showing symptoms of AS in her lower back and hips, shooting down her right leg. She...
My Anxieties with COVID-19...I’m sure most of us are very anxious with COVID-19 having stuck around for this long. When first hearing about it, I didn’t think it would actually make it to...reactions1comment
Community Rules...These rules apply to all activity on AxialSpondyloarthritis.net or Health Union operated properties, including but not limited to the website, AxialSpondyloarthritis.net Facebook pages, Instagram, etc. The term “activity” includes, but...
How AS Has Affected My Financial Situation...I’ve struggled a lot financially since my symptoms of AS first started. As I’ve mentioned before, I had to quit my job, which has left me without a steady income...reactions5comments
Lifestyle Changes...Living with axial spondyloarthritis (axSpA) can be unpredictable and challenging. But there are several lifestyle changes you can make to improve your symptoms and overall disease outcome. From choosing a...
Surgery...People with axial spondyloarthritis (axSpA) face a complex journey. But the right treatment plan can improve their lives. AxSpA treatments help reduce inflammation and pain and make it easier to...
