Cheryl Crow...Cheryl was previously an advocate for AxialSpondyloarthritis.net. Cheryl Crow is a rheumatoid arthritis patient, occupational therapist, advocate and general life enthusiast. She is passionate about helping people with health challenges...
Still Not Over...I was diagnosed by a doctor in 2017 but was never given the proper information or referred to a rheumatologist. Shortly after that, she left the practice and it was...reactions1comment
Brain Fog: The Impact of RA on Mental Functioning...Results from the 2019 RA In America Survey showed that 61 percent of survey participants living with RA experienced brain fog within the last month of taking the survey. Along...reactionscomments
Post-Activity Stiffness and Psoriatic Arthritis...Please do not take this as the standard stiffness all of us with psoriatic arthritis usually experience first thing in the mornings. I want to talk more about being active...reactionscomments
Don’t Stress Your Next Flare...You know what it is like. You’ve had a really good day, or perhaps week. Everything is going your direction and you feel you finally have a handle on your...reactionscomments
What is the strangest reply you've received when telling someone you have AS?...Many people have never heard of ankylosing spondylitis before and it's quite a mouthful. What is the strangest response you've received when telling someone you have AS?...reactions7replies
Everything Looks Fine To Me: When Test Results Bring Frustration...I know it might sound contradictory to most, but one of the worst things someone in chronic pain can hear from a doctor is, “Everything looks fine to me!” I...reactions10comments
Are You Freaking Kidding Me...I can't believe a life long struggle leads to this road. Too many surgeries and misdiagnosed. The daily pain of different body parts flaring up leaves me feeling crazy. Family...reactions2comments
Dry, Cracked, and Very Parched...A few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe...reactions7comments
Dry, Cracked, and Very Parched...A few years ago, I presented with blurry vision and a weird sensation of people moving away from me while I looked at them. The best way I can describe...reactions4comments
Privacy Concerns When Using Telehealth Services...Telehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...reactionscomments
Managing Chronic Pain With Medical Marijuana...Accepting that something so stigmatized could be helpful for Keegan took a while for me to get over. When we got married, I knew I'd do anything and everything I...reactions6comments
How Do I Find Virtual Health Services?...It can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...reactionscomments
A Day In The Life Of Someone With Ankylosing Spondylitis...One thing I find most people don’t understand when learning about AS is the fact that it affects every aspect of our lives. Daily life is made so much more...reactions7comments
Preparing for a Virtual Visit with Your Doctor...Visiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...reactionscomments
Lisa Marie Basile...Lisa Marie Basile was officially diagnosed with Ankylosing Spondyltiis in 2017 after living with nearly a decade's worth of symptoms. She has attended the NASS meetups in NYC, and is...
Jed Finley...Jed Finley was diagnosed with ankylosing spondylitis at the age of 12 during a time when children of that age were not prescribed medications and the amazing treatments we have...
Dawn Gibson...Dawn Gibson has lived with Ankylosing Spondylitis since 2001. She entered health advocacy by joining Twitter in 2011. In the intervening years she immersed herself in Spoonie Twitter, founding Spoonie...
Charis Hill...Charis was previously an advocate on AxialSpondyloarthritis.net. Charis is an award-winning queer disabled chronic disease advocate, writer, speaker and model living with Ankylosing Spondylitis (AS), Major Depressive Disorder, Anxiety and...
Cassia Pelton...Cassia was previously a health leader on AxialSpondyloarthritis.net. Cassia Pelton was 18 years old when she first started experiencing sharp pains in her sacroiliac joints. She went from being a...
