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...Keeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or going for long walks in the trails of...

...Cost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a cost. The explicit costs of living with AxSpA...

...One thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS. No journey is the same and everybody has...

...The first blessing is the community. This disease can definitely make you feel lonely, crazy, and misunderstood. But finding a community, a group related to your disease, becomes the place...

...As I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at least that I know of), they provide some...

...I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes, I am a young person and therefore deemed...

...When I first got diagnosed with AS, I felt distraught. But I was very lucky to have someone in my life who is not only a medical professional but a total support to me...

...As many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become things that exhaust us. Since you are part...

...I knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got my diagnosis. I knew it when my eyes...

...You know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like a marathon? It's the kind of fatigue that...

...I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know what's coming. Dinner needs to happen. Kids need...

...Disabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms, attending a handful of appointments, and reoccurring flare-ups...

...When the Pandemic hit, we were all sent home from our jobs and schools. For a while things were pretty easy breezy. Wake up when you want, eat when you...

...Editor's note: Read part one of Pamela's journey here. The next step in my biologic journey was Cimzia. First, the bad news: the only approved version of this medication for...

...My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day started out like any other. Meds, coffee, breakfast...

...I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I thought I would flip that idea on its...

...You can mask if you want to, even if you need to leave your friends behind. For me, and several other teachers out there, school has started up again. Our...