The Lies I Told Myself Before Diagnosis...It’s roughly twenty years since I first noticed my symptoms. Eight years later I would finally hear them referred to as clear indicators that I had ankylosing spondylitis. During those...reactions11comments
How Music Helps Me Cope...Music is incredibly important in my life. I began playing from a young age courtesy of a lovingly heavy influence from my incredibly talented grandmother. I started formally taking piano...reactions3comments
Streaking For The Over 60s Might Be Just What's Needed...As I’ve got older, I’ve become less inhibited about certain things. I’d always believed (naively perhaps) a person got more inhibited as they aged. Not less. But maybe it’s the...reactions5comments
It’s Okay If You’re Not Where You Thought You’d Be By Now...Years ago I remember talking to some friends about what we envisioned for our futures—how our lives would look by the ages of 20, 25, 27… I remember saying that...reactions1comment
A Look At The Difficult Journey of Spondyloarthritis Treatment...Many people outside of the axial spondyloarthritis (AxSpA) community do not understand that “treatment” is a full sentence. The symptoms of spondyloarthritis are ever-changing, full-body, and, oftentimes, not well understood...reactions6comments
COVID Vaccine and Symptoms....Hi! I made a new account as the last time i was on these forums was 9 years ago and donmt remember the account to be honest. So, i am...reactions4replies
Kinda Lost...Super frustrated and feeling down lately. Here's a bit of my story since I've been a lurker for quite some time now and finally jumped in. I'm looking for some...reactions9repliesCommunity Support
Came off Meds 6 months ago but struggling with pain...Hi everyone, I was diagnosed with AS in 2011 and was given Enbrel which worked extremely well. In 2015 I was diagnosed with crohns and switched meds to remicade which...reactions2replies
My Husband and I Stopped Sharing a Bed Because of AS...If you are anything like me, sleep is vital to your existence and it is non-negotiable for my pain management. And while I can sit here and say this now...reactions6comments
3 Ways to (Gently) Work Out With AS on Flare Days...Everyone is at a different stage in their AS, which is why I'm recommending these three below ways to move with one clear caveat: Please listen to your body, and...reactions7comments
Gastrointestinal issues and AS...Is there anyone here comfortable sharing experiences with testing for GI issues/ has been diagnosed with IBD or Crohns following an AS diagnosis? What tests did you have to have...reactions4repliesTreatmentComorbiditiesCoping
Blessings of My Disease...Although being diagnosed with ankylosing spondylitis was a scary and uncertain experience, there are a lot of positives to come out of it. I began fundraising, something I had never...reactions1comment
Diet Changes That Helped My AS...Living with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so much. I'm very grateful for how well my...reactions28comments
My AxSpa Journey...I have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for me filled with many ups and downs. Unfortunately...reactions1comment
The Importance of Sunlight With AS...I've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority to me. I relished the cement jungle and...reactions12comments
How To Be Heard With AxSpa: Doctor Edition...Have you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something like “this is going to be easily managed...reactionscomments
My 5 Things For a Better Day...I’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life mostly in denial of her disability. That Dawn...reactions2comments
I'm So Sick of Brain Fog...Do you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by forgetfulness, confusion, and a general lack of mental...reactions3comments
FeaturedUveitis - does it become less frequent over time?...I've just read an interesting article from another member, about their experiences with uveitis. They mentioned that the attacks are less frequent these days. It got me wondering about AS...reactions26repliesAwarenessSymptomsSide Effects
Learning to Cope With Illness Isn’t A Straight Path...It’s a misconstrued assumption that those who have spent years with an illness eventually unlock some secret in managing it. I’m here to say that simply just isn’t true. There...reactions6comments