Things I Still Do With AxSpa!...I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I thought I would flip that idea on its...Reactions0reactionsComments1 comments
You Can Mask If You Want To!...You can mask if you want to, even if you need to leave your friends behind. For me, and several other teachers out there, school has started up again. Our...Reactions0reactionsComments2 comments
One Day I Went to Bed and Never Woke Up...My journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems to blend together these days. It truly felt...Reactions0reactionsComments3 comments
How Seeing My Symptoms Differently Changed Everything...I remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange moment for me. I couldn’t get a particular...Reactions0reactionsComments13 comments
As We Gather: Hydrating Recipes for Wellness...Months have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a million-fold this year. Life restored; the flow and...Reactions0reactionsComments2 comments
What do you do to treat yourself?...I mean, as in a treat for yourself - a trip out, a special meal, that sort of thing....Reactions0reactionsComments30 repliesCopingTips & Advice
3 Ways To Get An Energy Boost...Just to set the stage-—I’m not the one with AS. My husband, Keegan, is. And I’m his caregiver. We both are at home all day. I work from my garage...Reactions0reactionsComments4 comments
Has anyone had sciatica as a result of their AS? ...I had the most dreadful sciatica a few years ago. So bad I couldn't walk properly for three months. I was just wondering if others have had sciatica....Reactions0reactionsComments1 repliesAwarenessSymptoms
The Long Path to Diagnosis...I read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer. Teresa and I have talked a lot about...Reactions0reactionsComments4 comments
Tips to Advocate for Yourself at the Doctor’s Office...Getting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health was the reason that everything that was happening...Reactions0reactionsComments1 comments
My Family Doctor Gaslit Me...Up until recently, I’d been pretty lucky with my doctors. My family doctor was the first doctor I told about my pain 4 years ago. She believed me right away...Reactions0reactionsComments5 comments
7 Years in No Diagnosis Land, Part 3: Answers...In part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally made progress once I decided to get involved...Reactions0reactionsComments4 comments
Mobility Aids Are Freedom...Many people use mobility aids. These include canes, crutches, walkers/rollators, wheelchairs, etc. They are common things you can come across every day. I use my cane a lot when I...Reactions0reactionsComments4 comments
Getting Over Humira Injection Fear...Picture this: I'm seven years old, and there are several large adults holding me down to a hospital bed so that a nurse could inject me with a needle. At...Reactions0reactionsComments1 comments
How I Cope With Stiffness: Stretch Every Day...I need to stretch every day. Without fault, my hips are always stiff and the only way to keep adequate mobility is to constantly stretch. Particularly, I’m almost always stiff...Reactions0reactionsComments5 comments
My Disease is Dynamic: This is What it Looks Like for Me...Something that's getting a lot of attention in the chronic illness community right now is the idea of a dynamic disability. So what is a dynamic disability and what can...Reactions0reactionsComments4 comments
Part One Of My Diagnosis Story: Getting Diagnosed in China...I thought I would share my diagnosis story with you guys for two reasons. Firstly, because it’s a pretty unique and crazy tale and secondly, to show to anyone who...Reactions0reactionsComments8 comments
Pivoting With AxSpa...I think one of the biggest misconceptions I had about my AxSpa journey was that when I found the right medications, diet, and exercise routine to manage my disease, I...Reactions0reactionsComments1 comments
is this axpa...have had back problems, had MRI and it says." Multilevel cervical spondylosis without high grade spinal canal stenosis. I have a Schmorls node at end of lower endplate of C5...Reactions0reactionsComments1 replies
AS not showing on MRI...Hi there, I was wondering if anyone has any advice? I was tested for AS 2 years ago and my HLAB27 gene test came back positive. I had an MRI...Reactions0reactionsComments9 repliesAxial Spondyloarthritis