Non-Radiographic AxSpa and Spinal Injuries...One of the hardest things to deal with when living with axial spondyloarthritis is determining the source of pain and whether to push through it or ask your doctor. This...reactions7comments
I Hope That College Remains Online...I have passed all my exams and I am finally in the final year of my degree! I’m excited and nervous to get through this year of college. I have a...reactions5comments
The Importance of Having a Medical “Dream Team”...My biggest regret over the last 16 years of being chronically ill is this: I wish I had assembled a team of medical experts early into my diagnosis. If there...reactions3comments
Autumn and the Seasonal Shift of Symptoms...Fall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at the end of September and beginning of October...reactions4comments
Advocates Sharing With Advocates: René and James Chat About a "New Normal"...In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have a different journey with our disease I think...reactions3comments
AS Friendly Team Sports?...I've been thinking lately that I need to pick up a new hobby. Ideally I would like it to be a source of exercise too but I'm not quite sure...reactions4repliesExerciseTips & Advice
Diets that help AS symptoms ...Has anyone heard of the carnivore diet helping AS? My husband read an article about it and was mad when I didn’t try it. He said he thought I would...reactions4repliesDiet & Nutrition
Who I Was Before AxSpa Is Very Different Than Who I Am Now...Before getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home, all day long. When I mean I loved...reactions2comments
When You Feel No Pain...There are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some sort, I tend to experience a pause in...reactions6comments
Time Spent Managing My Health: An Investment That Comes With a Price...I recall filling a survey on this website and answering a question about the amount of time I spend managing my condition. That made me realize how much time I...reactions4comments
A Trip Away With an Uncomfortable Bed...Since I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents. It was our tradition. Sometimes we would even...reactions11comments
We Should Collaborate With Our Doctors...Growing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law — and we’d have to obet. After all...reactions3comments
Things I Wish I Was Told When Getting Diagnosed with AS...Getting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life of autoimmunity. At that age, most of what...reactions4comments
COVID-19 Vaccine And Flare-Ups...As someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for weeks or months. They also vary in intensity...reactions5comments
The Simple Things...I’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin down. I’m sure I read somewhere that most...reactions6comments
I Don't Like This Either!...Comedian John Mulaney once said, when talking about his bad driving, “I hear you honking, and I also don’t want me to be doing what I’m doing!” As AxSpA patients...reactions3comments
What the AS Community Means to Me...When I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by going down the internet rabbit hole. My partner...reactions2comments
Treatment...I was diaagnosed with AS about 7 years ago but only vision effected. I have been taking Remicaid Infusions for about 4 to 6 years once a month. In addition...reactions4replies
New to AS...Diagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for a couple of days after injection any one...reactions3comments
Feelings Of a Locked Back...I look back and value the days of my youth when I took my healthy back for granted. I was told by a referring specialist I had spondylitis of the...reactions1comment