COVID Vaccine and Symptoms....Hi! I made a new account as the last time i was on these forums was 9 years ago and donmt remember the account to be honest. So, i am...Reactions0reactionsComments4 replies
Kinda Lost...Super frustrated and feeling down lately. Here's a bit of my story since I've been a lurker for quite some time now and finally jumped in. I'm looking for some...Reactions0reactionsComments9 repliesCommunity Support
Came off Meds 6 months ago but struggling with pain...Hi everyone, I was diagnosed with AS in 2011 and was given Enbrel which worked extremely well. In 2015 I was diagnosed with crohns and switched meds to remicade which...Reactions0reactionsComments2 replies
My Husband and I Stopped Sharing a Bed Because of AS...If you are anything like me, sleep is vital to your existence and it is non-negotiable for my pain management. And while I can sit here and say this now...Reactions0reactionsComments6 comments
3 Ways to (Gently) Work Out With AS on Flare Days...Everyone is at a different stage in their AS, which is why I'm recommending these three below ways to move with one clear caveat: Please listen to your body, and...Reactions0reactionsComments7 comments
Gastrointestinal issues and AS...Is there anyone here comfortable sharing experiences with testing for GI issues/ has been diagnosed with IBD or Crohns following an AS diagnosis? What tests did you have to have...Reactions0reactionsComments4 repliesTreatmentCopingComorbidities
Blessings of My Disease...Although being diagnosed with ankylosing spondylitis was a scary and uncertain experience, there are a lot of positives to come out of it. I began fundraising, something I had never...Reactions0reactionsComments1 comments
Diet Changes That Helped My AS...Living with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so much. I'm very grateful for how well my...Reactions0reactionsComments28 comments
My AxSpa Journey...I have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for me filled with many ups and downs. Unfortunately...Reactions0reactionsComments1 comments
The Importance of Sunlight With AS...I've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority to me. I relished the cement jungle and...Reactions0reactionsComments12 comments
How To Be Heard With AxSpa: Doctor Edition...Have you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something like “this is going to be easily managed...Reactions0reactionsComments0 comments
My 5 Things For a Better Day...I’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life mostly in denial of her disability. That Dawn...Reactions0reactionsComments2 comments
I'm So Sick of Brain Fog...Do you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by forgetfulness, confusion, and a general lack of mental...Reactions0reactionsComments3 comments
FeaturedUveitis - does it become less frequent over time?...I've just read an interesting article from another member, about their experiences with uveitis. They mentioned that the attacks are less frequent these days. It got me wondering about AS...Reactions0reactionsComments26 repliesAwarenessSymptomsSide Effects
Learning to Cope With Illness Isn’t A Straight Path...It’s a misconstrued assumption that those who have spent years with an illness eventually unlock some secret in managing it. I’m here to say that simply just isn’t true. There...Reactions0reactionsComments6 comments
Hold for Infections: My Recent Experience with Biologics and Immunosuppression...My life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I had been self-medicating with NSAIDs for years (without...Reactions0reactionsComments7 comments
Knee supports for arthritis and meniscus pain ...Can anyone suggest any decent knee supports please ? That support the meniscus, are wearable under or over jeans and can be used for exercise as well as just daily...Reactions0reactionsComments1 repliesExerciseAssistive DevicesTips & Advice
When the Rain Came...Summer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa, my wife, has signed up at our local...Reactions0reactionsComments4 comments
Hiking and Discovering...Living on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you want to spend the day on the beach...Reactions0reactionsComments4 comments
Questions I Ask Myself When Seeing a New Doctor...Let’s talk specialty physicians. If you grimaced at the thought of having this conversation, you probably have had the same experience that it seems like almost everyone in the AS...Reactions0reactionsComments7 comments