My Anxieties with Going Back to “Normal”...The vaccines are here and the numbers are going down. Things are slowly starting to open up safely and my anxiety is...reactionscomments
Disabled Summer...Summer is the season for going out and having fun. As children, summer break couldn't come fast enough. We just couldn't wait...reactions2comments
The Unexpected Consequences of Pretending to be “Fine” ...Those who live with chronic pain are masters of disguise — we smile as our bodies scream, fabricate energy when the real...reactions1comment
How Life Has Changed - A Partner's Perspective...We talk so much about how our personal lives have changed with axial spondyloarthritis, but it occurred to me recently that my...reactions1comment
Welcome to My Chronic World...Since a young age, I was easily getting sick. I had days where I would feel so tired, drained. No matter how...reactions1comment
What My Days Look Like Living With AS: The Exhausting Evenings...I’m sure you’ve heard the saying, “moms don't get sick days." Well, unfortunately, that has applied to me just about every single...reactionscomments
6 Reasons You Should Journal Through Chronic Illness...I've always been a writer. It comes naturally to me to create worlds, to express my feelings and ideas through words, and...reactions2comments
What To Do When NSAIDs Are Causing More Harm Than Good...NSAIDs (nonsteroidal anti-inflammatory drug) pain relievers are a class of medications utilized by many with arthritic conditions like axial spondyloarthritis. They can...reactionscomments
Juggling AS, Pain, Fatigue, and a Family in a Pandemic...I've written about my family on the site before, but that was pre-pandemic and pre-second child. My husband, Keegan, managed his pain...reactionscomments
Time Slowed Down When I Became Chronically Ill...My birthday was a couple of days ago and it got me thinking about the passage of time. Specifically, how it has...reactionscomments
How I “Celebrated” My 4 Year Painiversary...February 11, 2017, was the first day my AS pain started. It was the day that started an entirely new chapter of...reactions2comments
A Huge Positive Change...I realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom...reactions9comments
Where to Go?...I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many...reactions2comments
6 Things That Make Fatigue The Worst...In my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking...reactions2comments
An Open Letter to My Body...I don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested...reactions3comments
How To Manage The "Fat" Talk...If your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment...reactions2comments
My Traveling Survival Guide: What I'm Packing and Why...This month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely...reactions3comments
Don't Compare Your Disease Experience to Celebs'...When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis...reactions2comments
Build Your Own Flare Toolkit...There's no other way to say it: axial spondyloarthritis flare-ups are the worst. You might be having a good few days, and...reactions3comments
Grief, Ankylosing Spondylitis, and a Tragedy in Indianapolis...Editor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me...reactions2comments
