How long did it take for you to be diagnosed?...Let me know below how long it took between your symptoms starting and getting your diagnosis? I feel very lucky that I was diagnosed within a year of my symptoms...Reactions0reactionsComments20 repliesDiagnosisNon-Radiographic Axial SpondyloarthritisTreatment
What initial symptoms did you experience with AxSpA?...Share your early symptoms or signs that indicated having AxSpA....Reactions0reactionsComments5 repliesDiagnosis
What show or binge-worthy series has provided a good escape during a particularly tough time with AxSpA? ...Share your favorite shows to pass the time, flares, or guilty pleasure watching. :-)...Reactions0reactionsComments7 repliesCoping
Do you work? ...I've been out of work for the past year. My illness benefit has stopped and I am waiting for my disability allowance to start but it will take months. I...Reactions0reactionsComments15 repliesTips & AdviceWork Accommodations Work & Employment
Looking for suggestions regarding diagnosis...Hello, Thank you for this wonderful group. I recently went to a rheumatologist. He had X-rays done and blood work. X-rays showed some arthritis but doctor wasn't too concerned. Blood...Reactions0reactionsComments9 repliesDiagnosis
Rumble, Old Man, Rumble!...A story of a boxing match that helped me learn to manage my AxSpA flares. October 1974. I am 16 years old. Outside the sun is yet to rise, and...Reactions0reactionsComments3 comments
Where Are All The Men?...When I was first diagnosed with ankylosing spondylitis, I was informed that it was a condition "mostly affecting men in their 20s." I remember it distinctly because it felt weirdly...Reactions0reactionsComments21 comments
Leveling Up Your Self-Care...I've found over the last year that there are places to level up self-care in our house. My husband, Keegan, suffers from AS and chronic pain daily. We have 2...Reactions0reactionsComments2 comments
Transitioning Back to "Normal" After COVID...I’m not going to lie--I’m excited for a return to "normal" (or a new normal anyway) now that the outlook of the pandemic is looking up. I’m looking forward to...Reactions0reactionsComments6 comments
Being a Bloke of a Certain Age...Every one of us with AS knows how tough life can be. Every one of us must live with AS – even when asleep – even when having good days...Reactions0reactionsComments0 comments
How I Recharge My Internal Batteries...What energizes you? This is a question I enjoy asking my coaching clients and personal network. Our AS lives are full of activities, events, external triggers that require a lot...Reactions0reactionsComments2 comments
Doesn’t Weight Feel Heavy?...I hate talking about weight. It doesn’t matter if it’s weight loss, weight gain, or keeping it off. It never feels good. It’s probably because these topics are proxies for...Reactions0reactionsComments2 comments
FeaturedPain therapy...Had anyone taken Lyrica and/or done aqua therapy? If so, I would like to hear your about your experiences....Reactions0reactionsComments19 repliesAlternative Treatment
Semi permanent makeup/Tattoos...I am sorry if this post comes across as shallow or trivial in the grand scheme of things. Prior to starting biologics I have been having semi permanent brows done...Reactions0reactionsComments2 repliesTips & Advice
Tingling and numbness ...Does anyone get really bad nerve pain in their lower back and legs ? Or do people sometimes loose the feeling in their legs ?...Reactions0reactionsComments12 repliesAwareness
We Don't Want Your Medical Advice!...If there’s one thing I’ve learned over the years of being an ankylosing spondylitis patient, it’s how to tune out unwanted medical advice from others. It’s an extremely common occurrence...Reactions0reactionsComments8 comments
Trying To Explain My Brain Fog...Brain fog is hard to put into words. Today when I got home from work, I tried to unlock my house door with my car fob. I pushed the little...Reactions0reactionsComments3 comments
Plantar fasciitis from AS...Hello everyone. First time on. I was diagnosed with AS 3 years ago. I am currently in the middle of an acute flare up which has badly affected my feet...Reactions0reactionsComments2 replies
Coming Out at the Doctor's Office...I have seen countless physicians in four different states in the U.S. and my experience with heteronormativity is generally the same. Often, the idea that a patient may be part...Reactions0reactionsComments0 comments
Mind and Body: Flare-Up Coping Methods...If there's something I've realized about living with a painful, often unpredictable chronic inflammatory disease, it's that sometimes the disease simply catches you off-guard. And the fact that it catches...Reactions0reactionsComments1 comments
