Cimzia...My rheumatologist just recently confirmed my positive HLA-B27 result for AS. Though I knew my condition since high school when it started in my cervical spine. My doctor wants to...Reactions0reactionsComments2 repliesAlternative Treatment
My Journey to Getting Diagnosed...Where do I begin, as it feels for me my journey has been a long one. It has been what I like to call a big roller coaster. A big...Reactions0reactionsComments1 comments
Beta Blocker and mood disorder...When I found that AS had blocked all my arteries to such an extent, I had no choice but to take a Beta Blocker or Calcium Channel Blocker; for only...Reactions0reactionsComments1 repliesSide EffectsMental HealthDepression
Finding Support & Acceptance Sometimes Takes Time...Thoughts that go over my head: Will I feel like this forever? Will I ever feel better? I feel like I am waiting for my life to be over soon...Reactions0reactionsComments4 comments
My Diagnosis Day...I remember my diagnosis day vaguely. I had met with my rheumatologist once already. I was not expecting to have another appointment for a few months. My day started with a call from my rheumatologist asking could...Reactions0reactionsComments3 comments
Struggles With Sleep...Pain makes it difficult for me to fall asleep. While I've tried to improve my sleep hygiene and use pain management techniques before going to sleep, the struggle to sleep...Reactions0reactionsComments15 repliesInsomniaSleep
What’s you Go To When A Flare Up Arrives...I’ve had very low back pain for many years due to a car wreck, two back surgeries, had the nerves burned in my back which lasts about a year but...Reactions0reactionsComments4 replies
Treatment OPTIONS ...Which treatment options have worked or not worked for you?...Reactions0reactionsComments3 repliesTips & AdviceFatigue Alternative Treatment
What supplements do you take on a daily basis?...I take several supplements in addition to my medication and am wondering what has worked for everyone and what brands. Fish oil for instance, varies so much, as well as...Reactions0reactionsComments4 replies
Toxic Positivity...I would consider myself quite a positive person. I always try and stay positive. When I'm feeling sad or down, I think ok I just need to be positive. I...Reactions0reactionsComments2 comments
Finding My Inner Superhero...If you haven’t read any of my articles before, I’ll introduce myself. Hi! I’m Auldyn, wife, and caregiver go my husband, Keegan, who’s suffered from AS for over 10 years...Reactions0reactionsComments1 comments
Has you Rheumatologist Allowed You Try Their Sample Medicines?...All Physicians are flooded with Samples of Medications for Free. I went to a top rated Dr. who loved collecting money but didn’t really want to help me. After 5...Reactions0reactionsComments13 replies
FeaturedDisability at work?...Are you out of your work because of AS? And has the process of filing a claim for disability through government or your insurance been smooth?...Reactions0reactionsComments7 replies
My Experience with Surgery and the Autoimmune Response...A popular topic amongst the chronic illness community is surgery. If you're like me, you either know someone who has gone under the knife to try to regain some control...Reactions0reactionsComments9 comments
7 Years in "No Diagnosis Land," Part 1...Many people experience symptoms of AxSpA for quite some time before being diagnosed. Some are misdiagnosed, while others are dismissed as having simply back pain. Here is my story… I...Reactions0reactionsComments5 comments
Remission? Wow. Remission!...Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing everything here in case it matters to someone...Reactions0reactionsComments9 comments
Disability Pride Month: What Disability Pride Means to the AS Community...You may have seen on social media posts, or you may be unaware: July is Disability Pride Month! It is a time for those who are disabled to share their...Reactions0reactionsComments0 comments
Alternative Therapies and Ankylosing Spondylitis Treatment...I have always been interested in spirituality, mental health, and alternative methods of healing — even before I realized I was passionate about these topics, and well before I had...Reactions0reactionsComments5 comments
How I Decided to Use Cannabis as Medicine...My pain, like many other AxSpA warriors, dates back to before I can even remember. I didn't get an official diagnosis until I was nearing 30, and with other chronic...Reactions0reactionsComments2 comments
The Switch to Summer and Ankylosing Spondylitis Symptoms...Now that the warmer period finally has arrived in the northern hemisphere many of us experience less flares. Though I myself have never experienced an extreme difference with winter, I...Reactions0reactionsComments2 comments
