We Need To Talk About Mental Health...I recently ran a Twitter poll asking members of the chronic illness community to vote on the topics that were most compelling...reactions2comments
Irritable Bowel Syndrome and Axial Spondyloarthritis...After my diagnosis of AxSpa, and once I was already taking Humira (one of the biologics), I experienced some gastrointestinal (GI) issues...reactions2comments
How long did it take for you to be diagnosed?...Let me know below how long it took between your symptoms starting and getting your diagnosis? I feel very lucky that I...reactions29repliesDiagnosisNon-Radiographic Axial SpondyloarthritisTreatment
What initial symptoms did you experience with AxSpA?...Share your early symptoms or signs that indicated having AxSpA....reactions5repliesDiagnosis
What show or binge-worthy series has provided a good escape during a particularly tough time with AxSpA? ...Share your favorite shows to pass the time, flares, or guilty pleasure watching. :-)...reactions7repliesCoping
Do you work? ...I've been out of work for the past year. My illness benefit has stopped and I am waiting for my disability allowance...reactions15repliesWork Accommodations Tips & AdviceWork & Employment
Looking for suggestions regarding diagnosis...Hello, Thank you for this wonderful group. I recently went to a rheumatologist. He had X-rays done and blood work. X-rays showed...reactions9repliesDiagnosis
Rumble, Old Man, Rumble!...A story of a boxing match that helped me learn to manage my AxSpA flares. October 1974. I am 16 years old...reactions3comments
Where Are All The Men?...When I was first diagnosed with ankylosing spondylitis, I was informed that it was a condition "mostly affecting men in their 20s."...reactions21comments
Leveling Up Your Self-Care...I've found over the last year that there are places to level up self-care in our house. My husband, Keegan, suffers from...reactions2comments
Being a Bloke of a Certain Age...Every one of us with AS knows how tough life can be. Every one of us must live with AS – even...reactionscomments
How I Recharge My Internal Batteries...What energizes you? This is a question I enjoy asking my coaching clients and personal network. Our AS lives are full of...reactions7comments
Doesn’t Weight Feel Heavy?...I hate talking about weight. It doesn’t matter if it’s weight loss, weight gain, or keeping it off. It never feels good...reactions2comments
FeaturedPain therapy...Had anyone taken Lyrica and/or done aqua therapy? If so, I would like to hear your about your experiences....reactions19repliesAlternative Treatment
Semi permanent makeup/Tattoos...I am sorry if this post comes across as shallow or trivial in the grand scheme of things. Prior to starting biologics...reactions2repliesTips & Advice
Tingling and numbness ...Does anyone get really bad nerve pain in their lower back and legs ? Or do people sometimes loose the feeling in...reactions12repliesAwareness
We Don't Want Your Medical Advice!...If there’s one thing I’ve learned over the years of being an ankylosing spondylitis patient, it’s how to tune out unwanted medical...reactions8comments
Trying To Explain My Brain Fog...Brain fog is hard to put into words. Today when I got home from work, I tried to unlock my house door...reactions3comments
Plantar fasciitis from AS...Hello everyone. First time on. I was diagnosed with AS 3 years ago. I am currently in the middle of an acute...reactions2replies
Coming Out at the Doctor's Office...I have seen countless physicians in four different states in the U.S. and my experience with heteronormativity is generally the same. Often...reactions1comment
