I don't have flare ups...Or- I don't recognize them. I do have great difficulty walking, standing and if I do house or garden work I need to take breaks every fifteen minutes to relieve...Reactions0reactionsComments3 repliesAwareness
Do you get muscle spasms?...Biologics have helped my over all stiffness, pain and fatigue. I'm still in pain and have fatigue but nothing compared to before! One thing that has not gotten any better...Reactions0reactionsComments4 repliesSymptomsTips & AdviceFlare Management
What helps you through a flare up? ...What do you do to help yourself during a flare up? Rest and heat are my best friends during a flare....Reactions0reactionsComments60 repliesFatigue SymptomsFlares
7 Years in No Diagnosis Land, Part 2...In part 1 of No Diagnosis Land, I told you how I started to have symptoms in different parts of my body. During these years, between 2007 and 2013, I...Reactions0reactionsComments7 comments
Keeping Busy During a Flare-Up...I think I speak for everyone when I say AS flare-ups are the bain of our existence. There is no worse feeling than waking up in the morning and instantly...Reactions0reactionsComments10 comments
My Experience With Biologics...I have been using biologics for 14 years now. Never really getting used to injecting myself. Not because it’s painful but, in the back of my head, there always is...Reactions0reactionsComments9 comments
Things I No Longer Do With AxSpa...It has been almost two years since my axial spondyloarthritis diagnosis and this year has brought about many new and scary treatments. But, I can finally say I am happy...Reactions0reactionsComments3 comments
When it comes to living with AxSpA, I wish people spoke more about ________....We're always interested in hearing from the community about topics and experiences we can bring more awareness too. Let us know below!...Reactions0reactionsComments1 repliesCommunity Support
Tell us you have axial spondyloarthritis without saying you have axial spondyloarthritis…...Feel comfortable sharing or venting as you would like....Reactions0reactionsComments1 replies
I Tried Tai Chi and Qi Gong For Ankylosing Spondylitis...I'm always looking for ways to deepen communication with my body, increase my mobility, and quiet my mind. Enter Tai chi and Qi gong. Tai Chi (also known as T'ai...Reactions0reactionsComments5 comments
What Does Dynamic Disability Mean to Me?...We’ve all heard of the word disability, but what is a dynamic disability? A dynamic disability is a disability that fluctuates in severity from one moment to the next. Ever...Reactions0reactionsComments5 comments
My Cup Runneth Empty...You know that saying, "you can't pour from an empty cup"? Well, no one told me when I was diagnosed that ankylosing spondylitis would leave me with a perpetually empty...Reactions0reactionsComments2 comments
Failed back surgeries...Hi, I am 56 years old. Back in 2007, I was diagnosed with ankylosing spondylitis (AS). I had surgery which took an 11-hour operation to fuse my lower back. In...Reactions0reactionsComments13 comments
Evolution to AxSpA Diagnosis...I was diagnosed in 2014, with axial spondyloarthritis (AxSpA) after an MRI confirmed inflammation in areas of my spine. For the last three years, I've been fighting for disability benefits...Reactions0reactionsComments3 comments
A Man is Pain and His Music...Hi, as a boy I used to carry coal as we owned the local coal business. I was into my sports rugby wrestling and many more . In my late...Reactions0reactionsComments6 comments
FeaturedUveitis, a life time of experience...Having had uveitis for 60 years , off and on, linked to AS, I thought I would share some ideas on handling this: Stress seems to play a big part...Reactions0reactionsComments6 replies
Traveling with medication?...We plan on traveling overseas in the holidays, but I'm struggling to figure out the best way to pack my medication - Forteo and Humira - both need to be...Reactions0reactionsComments3 repliesTravel
What if the prescription meds are no longer an option? ...Hi all- looking for information about treatment options if you can no longer take the dmards, anti-tnf, etc what supplements or other things do you do?...Reactions0reactionsComments2 repliesDiet & NutritionComplimentary Treatment
The Inconsistency of My Illness Causes Me Fear...When it comes to chronic illness, no two days are the same. The inconsistency and unpredictability that come with a chronic illness is what gets me the most. One day I could be out...Reactions0reactionsComments4 comments
Self-Care: I Set Small Goals & Limit My Activities...Whether you realise it or not, you are dealing with everyday struggles and an unpredictability that comes with having AS. Pulling yourself out of bed, exercising, making your dinner or even just showering is 100 times more difficult...Reactions0reactionsComments9 comments
