Gene Testing My Children for ASLike the majority of people with ankylosing spondylitis, I tested positive for the gene HLA-B27. Following my diagnosis I often wondered about...reactions3comments
Building a Firm Self-Care FoundationSelf care is about getting the most important parts of our lives going in the right direction instead of fighting each other...reactions1comment
Navigating the Maze: Inconclusive Tests and Life Beyond Axial SpondyloarthritisYour results came back inconclusive. When I heard those words, I couldn't help but feel disappointed and a twinge of anger. After...reactions4comments
Re-Thinking a Career That Works for ASFinding a job that works for AS can be hard. I recently had a coaching client who realized the job he once...reactions5comments
Four Ways to Destress in Stressful TimesSince the beginning of the pandemic it seems like increased stress levels have become the new normal. Stress can be a risk...reactions2comments
How I Have Improved My Sleep With AxSpaTo kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although...reactions1comment
When the Cost of Care Makes Access an IssueWhen I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the...reactions4comments
Nausea and Ankylosing Spondylitis: My ExperienceAnkylosing spondylitis isn't just aches and pains. It’s a lot of things, and for different people, it's a lot of different things. For me...reactions25comments
The Combo of Getting Sick and Having AxSpaWhen I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining...reactions2comments
Finally Growing Used to My Bi-Weekly InjectionsIt has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using...reactions4comments
Doing Better With ASDoing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter...reactions1comment
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with...reactions6comments
Discussing and Disclosing AS At WorkYou’re sitting at your desk with a heat pad plugged in, on high, and strapped to your lower back. A co-worker walks...reactions7comments
Navigating Work Stressors With an Autoimmune Disease: Tips for SuccessLiving with an autoimmune condition like axSpA can present unique challenges in various aspects of life, including work. Multiple symptoms, from lower...reactions5comments
My AxSpAnalogy: Steering Through Brain FogBrain fog continues to be the AxSpA symptom I struggle the most with. Yes, the pain sucks and I could do without...reactions3comments
I Traveled Without Pain (For Once), or How Climate Affects ASThis spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in...reactions6comments
My First Time Traveling Since Becoming HomeboundA little over a year ago I wanted to surprise my fiancé with something big for our 3 year anniversary--a trip to...reactions3comments
How I Care For Myself: 6 Types of Self-CareThis article will be about my self-care plan. I always thought self-care was just taking baths, going for a walk and lighting candles to...reactions9comments
The Sleepless Nights ContinueThe sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get...reactions15comments
Tips for a Restful Night SleepFinding a restful night sleep with axial spondyloarthritis can be so hard. Between painsomnia, finding a comfortable position, and worrying about your...reactions5comments
