Living

It's storytime. Are you ready? I’m out to dinner with some people — friends of a friend — who are casually talking about a work colleague. The colleague clearly has...

I remember the first time I was teased because of my jaw dysfunction. I was in middle school and this girl always used to make fun of me because my...

About a year ago, I switched family doctors because my last one was ableist and rude towards me. I thought that I had found a better doctor, things were good...

I love playlists. I have a library of about 3,000 songs, mostly classic rock (I am an old guy, remember), pop, country, and some modern rock. I love putting music...

As a little girl I remember always dancing everywhere. It didn't matter where I was, or who was looking, I danced whenever I heard music come on. It's always been...

I know things haven’t been easy on you for quite some time. You feel lost in the world—holding a map with no compass. You constantly feel the shadow of your...

This year marks my 5 years of having AS. It feels wild! I’ve had AS for half of a decade! I can’t believe it. Things have changed so much since...

When you live with a chronic illness, it’s easy to focus on the challenges it brings. Our abilities change, we have to make time to see doctors and manage symptoms...

My mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the clouds are heavy, their bellies swollen with the...

This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in 1924. My friend and I had been planning...

It’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried about additional diagnoses Keegan may have. After all...

Working as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed on healing my gut for about 8 years...

I could have never prepared myself for the injections for my muscle spasms. I got multiple injections on each side of my neck and down along the spasms on my...

After spending the best part of two years under virtual house arrest in an attempt to protect myself from COVID, it finally found its way to me. Annoyingly, I was...

Another year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off of work. I decided this year to take...

I am a walker! I used to be a runner, but those days are long behind me. Still, when I am out on the open road with just my two...

I spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but it didn’t come together well enough to share...

I’m not able to do much these days. I've been in symptom hell for the past 7 or so weeks. It started at the end of May with what I...

In 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the hurry, as my dear grandmother was admitted to...

We all know brain fog all too well. For many of us, it started out as something small—merely stumbling on our words here and there. You think maybe you’re just...