A Mummy's Boy: Coping With Loss and Chronic IllnessMy mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the...reactions5comments
I Traveled Without Pain (For Once), or How Climate Affects ASThis spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in...reactions6comments
An Update on Keegan’s Fibromyalgia JourneyIt’s official! Keegan’s doctor diagnosed him with fibromyalgia. To those of you who haven’t seen my previous post, I had been worried...reactions3comments
Gut Healing Strategies I Use to Help Manage Axial SpondyloarthritisWorking as a health coach, I often find myself talking with people about improving the health of their gut. I’ve been focussed...reactions16comments
My Pain Management ProcedureI could have never prepared myself for the injections for my muscle spasms. I got multiple injections on each side of my...reactions19comments
My COVID Antivirals ExperienceAfter spending the best part of two years under virtual house arrest in an attempt to protect myself from COVID, it finally...reactions5comments
How I Spend My Birthday With ASAnother year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off...reactions7comments
What My Bullet Journal Taught MeI spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but...reactions3comments
Ankylosing Spondylitis and Digestive IssuesI’m not able to do much these days.I've been in symptom hell for the past 7 or so weeks. It started at...reactions18comments
My Attempt to Stop My MedicationIn 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the...reactions9comments
How Brain Fog Impacts My LifeWe all know brain fog all too well. For many of us, it started out as something small—merely stumbling on our words...reactions9comments
Applying for Disability: Interview With Patient Leader Rick PhillipsOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved...reactions5comments
My Experiences With Switching Biologics For ASOver my 5 years of having ankylosing spondylitis, I’ve had to switch biologics twice. I’ve tried Inflectra (Remicade) and Humira, and I’m...reactions4comments
The 4-Month FlareA recent flare up started in early November 2021 (it was March when I wrote this!) during the weekend of my birthday...reactions28comments
Applying for Disability: Interview With Patient Leader Diana CastaldiniOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved...reactions6comments
Flare Up FeelingsFor the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My...reactions7comments
Using Spoons Wisely: Intentional Socializing Early on in my journey of AS, I was trying to please everyone. Despite at the time struggling both physically and emotionally...reactions5comments
Surgery, Procedures, Multiple Treatments, Oh My!I can honestly say after 4 years of dealing with my AS diagnosis, I have become a guinea pig! And not the...reactions6comments
I Was Diagnosed With FibromyalgiaFor those who may not know, Fibromyalgia is a chronic condition that causes widespread pain, fatigue, sleep issues, and many other symptoms...reactions4comments
Early AS Signs I Wish I Picked Up OnI am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t...reactions29comments
