How Brain Fog Impacts My LifeWe all know brain fog all too well. For many of us, it started out as something small—merely stumbling on our words here and there. You think maybe you’re just...Reactions0reactionsComments9 comments
Applying for Disability: Interview With Patient Leader Rick PhillipsOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments5 comments
My Experiences With Switching BiologicsOver my 5 years of having AS, I’ve now been on 3 different biologics. I’ve tried Inflectra (Remicade), Humira, and I’m currently on Cosentyx. I want to say that biologics...Reactions0reactionsComments2 comments
The 4-Month FlareA recent flare up started in early November 2021 (it was March when I wrote this!) during the weekend of my birthday celebration in New Orleans (yep, I'm a Scorpio!)...Reactions0reactionsComments28 comments
Applying for Disability: Interview With Patient Leader Diana CastaldiniOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments6 comments
Flare Up FeelingsFor the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My inflammation levels were sky high, they are now slowly starting...Reactions0reactionsComments7 comments
Using Spoons Wisely: Intentional Socializing Early on in my journey of AS, I was trying to please everyone. Despite at the time struggling both physically and emotionally, I would suppress it and do everything I...Reactions0reactionsComments5 comments
Surgery, Procedures, Multiple Treatments, Oh My!I can honestly say after 4 years of dealing with my AS diagnosis, I have become a guinea pig! And not the fluffy cute kind. The kind that feels locked...Reactions0reactionsComments6 comments
I Was Diagnosed With FibromyalgiaFor those who may not know, Fibromyalgia is a chronic condition that causes widespread pain, fatigue, sleep issues, and many other symptoms. Fibromyalgia has been a question mark in my...Reactions0reactionsComments4 comments
Early AS Signs I Wish I Picked Up OnI am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t any and it all happened suddenly. I’ve spoken...Reactions0reactionsComments26 comments
Pop Quiz #1: Learning More About Ankylosing SpondylitisTest your AS knowledge and take this short quiz! How many did you get correct? Share in the comments below!...Reactions0reactionsComments1 comments
Monday Mornings Can Be the Hardest for MeMonday morning, time to get up for work. My alarm clock keeps ringing and I keep putting it on snooze. There are 5 minutes until I start for work. Thankfully...Reactions0reactionsComments8 comments
Don't Let a Smile Fool YouBehind that smile of mine hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness? Would...Reactions0reactionsComments12 comments
Going Out for a Day and the ResultAbout a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when we got the idea that this would be...Reactions0reactionsComments2 comments
The Long-Term Effects of UveitisI was freshly out of college and going into grad school when uveitis struck — and it struck hard. I was otherwise perfectly healthy, a privilege that is glaringly obvious...Reactions0reactionsComments2 comments
How It's Been Going With AxSpaGetting diagnosed started off as such a bumpy ride. Every day looked hopeless. Every day looked like things would not get better. Every day I would be in bed. Most...Reactions0reactionsComments8 comments
5 Things I Learned From Leading an AS Support GroupIn 2007 I opened my Facebook-based support group up for business, and it has provided me a lot of knowledge and understanding about our community as a whole. Here are...Reactions0reactionsComments6 comments
The Arthritis Advocacy IcebergThe dictionary identifies an advocate as a person who publicly recommends or promotes a policy or cause. Ideally, it's a good or relatively neutral cause rather than a bad one...Reactions0reactionsComments3 comments
From Self-Help Guru to Disability AdvocateA few years back I created a mental health and wellness website to both share my journey through self-discovery and in hopes to help inspire others to prioritize their overall...Reactions0reactionsComments4 comments
A Painful Return To PillsI'm ever so grateful for my medications and they have completely turned my life around. I was diagnosed with rheumatoid arthritis in 2015 and ankylosing spondylitis in 2019. During these...Reactions0reactionsComments17 comments