Dealing With the Lack of Knowledge of AS in HealthcareBefore I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then...reactions4comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the...reactions13comments
Ask the Non-Radiographic AxSpA Advocates: Self-Advocacy and Finding CommunityAs we learn more and more about axial spondyloarthritis (AxSpA) and ankylosing spondylitis (AS), we also learn that many people live with...reactions5comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the...reactions5comments
I Have A Chronic Illness And Chronic DepressionHaving a chronic illness like ankylosing spondylitis takes its toll on us physically, but it also takes a huge toll on us...reactions4comments
My Attempt to Stop My MedicationIn 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the...reactions9comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
"But You Don't Look Sick"If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now!...reactions21comments
Another Sleepless NightAnother night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I...reactions23comments
Three Years Since My AS DiagnosisYou would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers...reactions3comments
Changing to a Plant-Based DietNearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I...reactions1comment
Tips To Improve Your SleepSleep is fundamental to help regulate the immune system and live a vibrant and energetic life. We need sleep for restoration, repair...reactionscomments
Not Just Coping But Living With a Chronic IllnessOne of the things that I hear from others who are living with chronic illnesses like ankylosing spondylitis is that they are...reactions2comments
How Music Helps Me CopeMusic is incredibly important in my life. I began playing from a young age courtesy of a lovingly heavy influence from my...reactions3comments
I Was Okay Yesterday, But Today I'm NotIt's storytime. Are you ready? I’m out to dinner with some people — friends of a friend — who are casually talking...reactions8comments
“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it's you against the world. You're living...reactionscomments
Yes, ChatGPT Can Help You Manage ASChatGPT, a chatbot powered by artificial intelligence (AI), has been making headlines lately. As a faculty member teaching human-computer interaction, a discipline...reactions1comment
What I Have Learned From Working With Hundreds of People With AxSpaAs you may or may not know, I am the Co-Founder of Yoga for AS. We are an organization who specialize in...reactions1comment
Weathering the Storm: Getting Through Joint Pain During Weather ChangesKeegan knows when a storm is coming, and often more accurately than what my iPhone weather app tells me. Changes in the...reactions11comments
Food is Medicine: What I Eat In A DayI’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and...reactions1comment
