Finally Finding ReliefI've had 5 long years of an agonizing flare that I thought would never subside. This journey to and through diagnosis of spondyloarthritis has seen symptoms linger, intensify, and morph... By Rebecca C5 min readBookmark for laterReactions 0 reactions Comments19 comments
The Pain That Wasn’t ASIt had been a year without a flare, the first I could remember in more than a decade. The years of fine tuning, taking care of my health, figuring out... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments8 comments
My First AxSpa Medication Led to NeutropeniaI am in charge of my health, I keep a close eye on my blood tests and other investigations, I follow my case living with AxSpa thoroughly. I have been... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments12 comments
The Never-Ending War Between Pain and FatigueLately my days have been spent glued to my bed, barely feeling human. I haven’t been able to write, work on my art, or do anything really aside from zone... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments13 comments
Resistance Bands for Ankylosing SpondylitisIn my pre-diagnosis days, the only thing I enjoyed more than a trip to the pub was one to the gym. In the months before AS turned up to spoil the party, I... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments10 comments
Cultivating CalmnessI have now lived with ankylosing spondylitis for the past 12 years. What a journey! What a rollercoaster! So much has happened since my diagnosis. Lots of experiments and learnings... By Lana Buettner2 min readBookmark for laterReactions 0 reactions Comments2 comments
How I Garden With ArthritisI come from a long line of gardeners. My great grandfather was a proper professional English Gardener. My grandmother grew lots of veggies, including a crop of carrots pushed into... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments4 comments
My First Trips With ASWhen I got diagnosed with ankylosing spondylitis it was during the beginning of the COVID-19 pandemic. As we all know, everything was closed and traveling was not an option in... By Gabriela Guadalupe3 min readBookmark for laterReactions 0 reactions Comments3 comments
To Everyone Who Pretends They're My Doctor....Ever wanna roll your eyes at someone who clearly has no idea what your disease is about — but who feels the need to share their thoughts or ask strange... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments11 comments
An Amazing WeekI am always grateful for a good week. But there is always a sense of sadness that comes with it. A sadness that this is what I miss out on... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments8 comments
Making Space for Self CompassionBeing kind to yourself is important when you have a chronic illness like ankylosing spondylitis. Some days self-compassion means cutting myself some slack when I feel too tired, sore, or... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments0 comments
Setting Limits in Social SituationsIt is a common trend in the Spondylitis community. Canceling plans. On Monday we were ready to go out with friends on Saturday. Come Saturday, we can’t bring ourselves to... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments6 comments
Personal Needs and Self-Care as PracticeI’m still working out the details of what self-care means for me, and if I’m being honest my idea of self-care and my own personal needs are always changing. There... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments5 comments
Gut Issues, IBS-C, and Ankylosing SpondylitisEditor's note: Read the first part of Katie's journey here. Have you ever experienced stomach pain and the need to evacuate your bowels so severely that you start sweating, shaking... By Katie Saville3 min readBookmark for laterReactions 0 reactions Comments12 comments
It's Already 2 Years Since My DiagnosisIt has been 2 years since I received my diagnosis of AxSpa and fibromyalgia. I remember this day like it was yesterday. It's a day I will always remember. A... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments4 comments
Having Independence as a Disabled PersonIn 2021, I started identifying as disabled. My chronic fatigue took over my life in late 2020, and a few months later, in early 2021, I decided to start using... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments5 comments
Social Media Self-CareI'd be surprised to hear that most people aren't feeling like a combustible blend of exhausted, wary, and squashed flat under the weight of these wild times. Add a twist... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments3 comments
Evaluating My AS Offensive SchemeI love the names of NFL offenses. I only have a rudimentary understanding of what they mean, but the names intrigue me. This past season I heard names for all... By Lawrence Rick Phillips3 min readBookmark for laterReactions 0 reactions Comments8 comments
Living My Best AS Life!When I was first diagnosed in 2018, I thought my life was over. I had already lost my job, and I lost my apartment, and I lost friends. I lost... By Nadine Cruz2 min readBookmark for laterReactions 0 reactions Comments10 comments
Psoriasis and AS: The Stress ConnectionSeveral years ago, my boyfriend and I moved into a new, lovely apartment with a killer view of the NYC skyline. We were so excited for the move, but it... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments3 comments