How I Spend My Birthday With ASAnother year has flown by, bringing me to the month of June, when I had my 35th birthday. I took the day off of work. I decided this year to take...Reactions0reactionsComments7 comments
Walk Away From PainI am a walker! I used to be a runner, but those days are long behind me. Still, when I am out on the open road with just my two...Reactions0reactionsComments6 comments
What My Bullet Journal Taught MeI spent some time exploring Bullet Journal techniques several years ago in hopes of adapting it for my Spoonie Chat folks, but it didn’t come together well enough to share...Reactions0reactionsComments3 comments
Ankylosing Spondylitis and Digestive IssuesI’m not able to do much these days. I've been in symptom hell for the past 7 or so weeks. It started at the end of May with what I...Reactions0reactionsComments18 comments
My Attempt to Stop My MedicationIn 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the hurry, as my dear grandmother was admitted to...Reactions0reactionsComments9 comments
How Brain Fog Impacts My LifeWe all know brain fog all too well. For many of us, it started out as something small—merely stumbling on our words here and there. You think maybe you’re just...Reactions0reactionsComments9 comments
Applying for Disability: Interview With Patient Leader Rick PhillipsOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments5 comments
My Experiences With Switching BiologicsOver my 5 years of having AS, I’ve now been on 3 different biologics. I’ve tried Inflectra (Remicade), Humira, and I’m currently on Cosentyx. I want to say that biologics...Reactions0reactionsComments2 comments
The 4-Month FlareA recent flare up started in early November 2021 (it was March when I wrote this!) during the weekend of my birthday celebration in New Orleans (yep, I'm a Scorpio!)...Reactions0reactionsComments28 comments
Applying for Disability: Interview With Patient Leader Diana CastaldiniOur AS.net community has shared varying experiences regarding disability applications. Some people were approved right away, others appealed and eventually were approved, and some have been waiting for years to...Reactions0reactionsComments6 comments
Flare Up FeelingsFor the past six to eight weeks, I had been going through a terrible flare up. I had no energy at all. When this happens, I constantly feel sick. My inflammation levels were sky high, they are now slowly starting...Reactions0reactionsComments7 comments
Using Spoons Wisely: Intentional Socializing Early on in my journey of AS, I was trying to please everyone. Despite at the time struggling both physically and emotionally, I would suppress it and do everything I...Reactions0reactionsComments5 comments
Surgery, Procedures, Multiple Treatments, Oh My!I can honestly say after 4 years of dealing with my AS diagnosis, I have become a guinea pig! And not the fluffy cute kind. The kind that feels locked...Reactions0reactionsComments6 comments
I Was Diagnosed With FibromyalgiaFor those who may not know, Fibromyalgia is a chronic condition that causes widespread pain, fatigue, sleep issues, and many other symptoms. Fibromyalgia has been a question mark in my...Reactions0reactionsComments4 comments
Early AS Signs I Wish I Picked Up OnI am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t any and it all happened suddenly. I’ve spoken...Reactions0reactionsComments29 comments
Pop Quiz #1: Learning More About Ankylosing SpondylitisTest your AS knowledge and take this short quiz! How many did you get correct? Share in the comments below!...Reactions0reactionsComments1 comments
Monday Mornings Can Be the Hardest for MeMonday morning, time to get up for work. My alarm clock keeps ringing and I keep putting it on snooze. There are 5 minutes until I start for work. Thankfully...Reactions0reactionsComments8 comments
Don't Let a Smile Fool YouBehind that smile of mine hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness? Would...Reactions0reactionsComments12 comments
Going Out for a Day and the ResultAbout a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when we got the idea that this would be...Reactions0reactionsComments2 comments
The Long-Term Effects of UveitisI was freshly out of college and going into grad school when uveitis struck — and it struck hard. I was otherwise perfectly healthy, a privilege that is glaringly obvious...Reactions0reactionsComments2 comments