A Letter For Every Time I Feel Like Giving UpDear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I know you started making plans for the following...Reactions0reactionsComments2 comments
Do I Need a Colonoscopy?I had my first colonoscopy in 2021 due to a life-threatening anemia, unexplained fatigue, weight loss, and abdominal pain. Most cultures have some taboos around this area, making it an...Reactions0reactionsComments7 comments
My Balance Between Self-Discipline and Self-DeprecationThere is a very fine line between having good self-discipline and striving to live a perfect life. Towing that line has had a profound impact on my mental health and...Reactions0reactionsComments3 comments
No More Adventures with My DogsMeet Maggie and Charlie. Maggie is a 5-year-old Basset Hound and Charlie is a 4-year-old mix between a German Shepard and a Huskey. They are great loyal dogs with lots of character. They...Reactions0reactionsComments5 comments
The 2 Types of Grief and How They Affect ASGrief. We all know what grief is, but did you know you can experience grief when you have a chronic illness? I didn’t at first, but when I realized how...Reactions0reactionsComments4 comments
Non-Radiographic AxSpa and Spinal InjuriesOne of the hardest things to deal with when living with axial spondyloarthritis is determining the source of pain and whether to push through it or ask your doctor. This...Reactions0reactionsComments7 comments
I Hope That College Remains OnlineI have passed all my exams and I am finally in the final year of my degree! I’m excited and nervous to get through this year of college. I have a...Reactions0reactionsComments5 comments
The Importance of Having a Medical “Dream Team”My biggest regret over the last 16 years of being chronically ill is this: I wish I had assembled a team of medical experts early into my diagnosis. If there...Reactions0reactionsComments3 comments
Autumn and the Seasonal Shift of SymptomsFall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at the end of September and beginning of October...Reactions0reactionsComments4 comments
Advocates Sharing With Advocates: René and James Chat About a "New Normal"In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have a different journey with our disease I think...Reactions0reactionsComments3 comments
Who I Was Before AxSpa Is Very Different Than Who I Am NowBefore getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home, all day long. When I mean I loved...Reactions0reactionsComments2 comments
When You Feel No PainThere are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some sort, I tend to experience a pause in...Reactions0reactionsComments6 comments
Time Spent Managing My Health: An Investment That Comes With a PriceI recall filling a survey on this website and answering a question about the amount of time I spend managing my condition. That made me realize how much time I...Reactions0reactionsComments4 comments
A Trip Away With an Uncomfortable BedSince I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents. It was our tradition. Sometimes we would even...Reactions0reactionsComments11 comments
We Should Collaborate With Our DoctorsGrowing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law — and we’d have to obet. After all...Reactions0reactionsComments3 comments
Things I Wish I Was Told When Getting Diagnosed with ASGetting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life of autoimmunity. At that age, most of what...Reactions0reactionsComments4 comments
COVID-19 Vaccine And Flare-UpsAs someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for weeks or months. They also vary in intensity...Reactions0reactionsComments5 comments
The Simple ThingsI’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin down. I’m sure I read somewhere that most...Reactions0reactionsComments6 comments
I Don't Like This Either!Comedian John Mulaney once said, when talking about his bad driving, “I hear you honking, and I also don’t want me to be doing what I’m doing!” As AxSpA patients...Reactions0reactionsComments3 comments
What the AS Community Means to MeWhen I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by going down the internet rabbit hole. My partner...Reactions0reactionsComments2 comments