Uveitis and A Caring Husband...For the past 4 days, my eyes are back to ground zero. All because of 1 of the 4 meds I take for uveitis and was denied by my insurance...Reactions0reactionsComments6 comments
Seasonal Changes Spring Forward Fall Back...I love fall and it is actually one of my favorite seasons of the year.I have noticed in past seasons that my conditions tends to worsen around late October going...Reactions0reactionsComments1 comments
How My Music Helps Me Relax: 5 Songs...I’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I...Reactions0reactionsComments2 comments
My AxSpA-To-Go Strategy...When I first started taking biologics, first Humira and now Amgevita, multiple people encouraged me by telling me that many people “get back to living a normal life.” It was...Reactions0reactionsComments2 comments
Committing to a Team With an Unpredictable Illness...I’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the ice, carving grooves with my blades, and feeling...Reactions0reactionsComments3 comments
My Second Birthday With AxSpa...My second birthday being sick was thankfully a lot better than my first. I made a plan of what I wanted to do. I planned to rest in between so I could...Reactions0reactionsComments6 comments
How I Approach The Holiday Season...The Christmas holidays are approaching! For me, this means taking time off work, traveling back home to be with family, eating delicious food, and making more time for rest and...Reactions0reactionsComments3 comments
Switching Biologics With AxSpa...Switching meds. No big deal right?! This one in particular wasn’t successful but not to worry, there are so many biologics on the market to try. Something as simple as...Reactions0reactionsComments11 comments
Relationship Red Flags: Can They Really Accept Your Illness?...There was a time in my life where I had been in a relationship for about four years. After this relationship fell apart I began to dissect it and realized...Reactions0reactionsComments3 comments
How Journaling Has Helped My Chronic Illness Journey...I’ve loved journaling since I was a kid. Whether it was a secret diary stored in that special hiding spot or a notepad filled with letters, quotes and scattered doodles...Reactions0reactionsComments0 comments
The 3 C's of My Pain...All of us has been taught our 123's and our abc's in our childhood life.I would like to say that it is very simplistic and elementary things we naturally learn.The...Reactions0reactionsComments5 comments
Accepting a Chronic Illness Takes Time...It has taken me a long time to accept that this disease is here to stay with me and it’s not going anywhere, any time soon. A lot of the...Reactions0reactionsComments11 comments
Learning to Love My New, Disabled Body...My whole life I’ve been skinny. With comments as a child like “you’re a twig!” and “you’re so bony”, I got used to that being a part of who I...Reactions0reactionsComments1 comments
Setting Goals for a New Year...Since I received my diagnosis, I kind of let go on making goals that I really want to achieve. I would like to change that, as a New year is...Reactions0reactionsComments0 comments
Having a Good Rheumatologist Appointment...As sad as it is, having a good doctors’ appointment is harder than it seems to achieve. Far too often, I’ve had a not-so-great experience with a doctor, and I’m...Reactions0reactionsComments1 comments
Wellbutrin ...I recently read that Wellbutrin has the ability to lower TNF-alpha and possesses anti-inflammatory properties. Just wondering if anyone has tried Wellbutrin for their AS?...Reactions0reactionsComments5 repliesAlternative Treatment
Hands Off My Crutches!...Mobility aids should be seen as a blessing for people like us with conditions that can affect our mobility. Surely it’s a no-brainer to leave the house on crutches or...Reactions0reactionsComments8 comments
Don't Let a Smile Fool You...Behind that smile of mine, hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness?...Reactions0reactionsComments0 comments
Major Surgery With AxSpA...After a diagnosis of a chronic condition that degrades your joints over time, it isn’t surprising you may eventually need surgery. But grappling with surgery and recovery with a condition...Reactions0reactionsComments8 comments
Should I Tell My Colleagues About My AS?...A member recently asked: "I have chosen not to tell most colleagues about my condition. Feels like people can't really understand anyway, it's too far removed from their reality. Can't...Reactions0reactionsComments2 repliesCopingWork & EmploymentWork Accommodations