Advocates Sharing With Advocates: René and James Chat About a "New Normal"...In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have...reactions3comments
Who I Was Before AxSpa Is Very Different Than Who I Am Now...Before getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home...reactions2comments
When You Feel No Pain...There are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some...reactions6comments
Everyday Tasks Made Difficult By Ankylosing Spondylitis...A few days ago, I was asked how I knew my backache was something more than just that. Other than my rapid...reactions8comments
Time Spent Managing My Health: An Investment That Comes With a Price...I recall filling a survey on this website and answering a question about the amount of time I spend managing my condition...reactions4comments
A Trip Away With an Uncomfortable Bed...Since I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents...reactions11comments
How to Explain to Friends and Family...I’m sure I’m not alone in this but when I was diagnosed with AS I had no clue what it was or...reactions5comments
COVID-19 Vaccine And Flare-Ups...As someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for...reactions5comments
We Should Collaborate With Our Doctors...Growing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law...reactions3comments
The Simple Things...I’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin...reactions6comments
What the AS Community Means to Me...When I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by...reactions2comments
New to AS...Diagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for...reactions3comments
Explaining Ankylosing Spondylitis to My Children...Ankylosing spondylitis (and any other chronic illness for that matter) can happen to anyone. It doesn’t care if you’re a new college...reactions4comments
A New Life...I was diagnosed with AS in 1999 and told I’d never work again. I went on full benefits – I was even...reactions11comments
Part Two Of My Diagnosis Story: Back To The UK...I left off Part 1 of my diagnosis story just before I was forced to wheel myself onto a flight back to...reactions31comments
My First Birthday With AxSpa...My first birthday being sick was a strange one. I was so unwell. My friends and family made such an effort to...reactions5comments
My Experience With Cimzia...Before I tell you about my experience on Cimzia, I want you to know that everybody is different, we will all react...reactions2comments
Developing Boundaries In The AS Community...This is going to be hard to write — and hard to admit to myself — but I've had to develop real...reactions20comments
Always Being "On" With Chronic Illness...Living with chronic illness means constantly feeling like you are tending to something, whether that be your physical body and its very...reactions3comments
Deciding Whether to Go Back to Work or Not...If you’ve read my other articles, you will know that before I got sick, I was a remarkably busy person. I used to work a lot...reactions11comments
