A Spoonie Thanksgiving...As a London boy, my knowledge of Thanksgiving is very limited and mostly stolen from episodes of Friends which I used to...reactions10comments
Finally a Diagnosis...I have suffered with back pain for 25 years, with multiple visits to doctors, to only be told endless times that there...reactions6comments
The Struggle to Maintain Friendships with Chronic Fatigue...Building connections with others is one of the most special components of the human experience. Our connection, bonds, and memories with those...reactions5comments
The Art of At-Home Massage...Light up some candles. Get the aromatherapy going. Put on some soothing music. It's time for an at-home massage. At least, that's...reactions2comments
The Upside of Getting a Diagnosis...The night I found out I had AS is permanently imprinted on my mind. I was working late supervising a new team...reactions2comments
There’s No "One Size Fits All" With Axial Spondyloarthritis...If you and I were to sit down and compare notes about our health we would probably have much in common. I’m...reactions3comments
What's In My AxSpa Toolbox?...Ever since I learned of my axial spondyloarthritis diagnosis, I began to gather tools to add to my coping toolbox! AxSpa can...reactions2comments
Dynamic Disability Means I Get To Define My Experience...For so long, using the term "disabled" to describe myself felt so it’s off-limits to me. It still does. Unless my AS...reactions4comments
A Letter For Every Time I Feel Like Giving Up...Dear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I...reactions2comments
Do I Need a Colonoscopy?...I had my first colonoscopy in 2021 due to a life-threatening anemia, unexplained fatigue, weight loss, and abdominal pain. Most cultures have...reactions7comments
My Balance Between Self-Discipline and Self-Deprecation...There is a very fine line between having good self-discipline and striving to live a perfect life. Towing that line has had...reactions3comments
No More Adventures with My Dogs...Meet Maggie and Charlie. Maggie is a 5-year-old Basset Hound and Charlie is a 4-year-old mix between a German Shepard and a Huskey...reactions5comments
I Hope That College Remains Online...I have passed all my exams and I am finally in the final year of my degree! I’m excited and nervous to get...reactions5comments
The Importance of Having a Medical “Dream Team”...My biggest regret over the last 16 years of being chronically ill is this: I wish I had assembled a team of...reactions3comments
Autumn and the Seasonal Shift of Symptoms...Fall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at...reactions4comments
Advocates Sharing With Advocates: René and James Chat About a "New Normal"...In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have...reactions3comments
Who I Was Before AxSpa Is Very Different Than Who I Am Now...Before getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home...reactions2comments
When You Feel No Pain...There are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some...reactions6comments
Everyday Tasks Made Difficult By Ankylosing Spondylitis...A few days ago, I was asked how I knew my backache was something more than just that. Other than my rapid...reactions8comments
Time Spent Managing My Health: An Investment That Comes With a Price...I recall filling a survey on this website and answering a question about the amount of time I spend managing my condition...reactions4comments
