Relationship Red Flags: Can They Really Accept Your Illness?...There was a time in my life where I had been in a relationship for about four years. After this relationship fell apart I began to dissect it and realized...Reactions0reactionsComments3 comments
How Journaling Has Helped My Chronic Illness Journey...I’ve loved journaling since I was a kid. Whether it was a secret diary stored in that special hiding spot or a notepad filled with letters, quotes and scattered doodles...Reactions0reactionsComments0 comments
The 3 C's of My Pain...All of us has been taught our 123's and our abc's in our childhood life.I would like to say that it is very simplistic and elementary things we naturally learn.The...Reactions0reactionsComments5 comments
Accepting a Chronic Illness Takes Time...It has taken me a long time to accept that this disease is here to stay with me and it’s not going anywhere, any time soon. A lot of the...Reactions0reactionsComments11 comments
Learning to Love My New, Disabled Body...My whole life I’ve been skinny. With comments as a child like “you’re a twig!” and “you’re so bony”, I got used to that being a part of who I...Reactions0reactionsComments1 comments
Setting Goals for a New Year...Since I received my diagnosis, I kind of let go on making goals that I really want to achieve. I would like to change that, as a New year is...Reactions0reactionsComments0 comments
Having a Good Rheumatologist Appointment...As sad as it is, having a good doctors’ appointment is harder than it seems to achieve. Far too often, I’ve had a not-so-great experience with a doctor, and I’m...Reactions0reactionsComments1 comments
Wellbutrin ...I recently read that Wellbutrin has the ability to lower TNF-alpha and possesses anti-inflammatory properties. Just wondering if anyone has tried Wellbutrin for their AS?...Reactions0reactionsComments5 repliesAlternative Treatment
Don't Let a Smile Fool You...Behind that smile of mine, hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness?...Reactions0reactionsComments0 comments
Major Surgery With AxSpA...After a diagnosis of a chronic condition that degrades your joints over time, it isn’t surprising you may eventually need surgery. But grappling with surgery and recovery with a condition...Reactions0reactionsComments8 comments
Should I Tell My Colleagues About My AS?...A member recently asked: "I have chosen not to tell most colleagues about my condition. Feels like people can't really understand anyway, it's too far removed from their reality. Can't...Reactions0reactionsComments2 repliesCopingWork & EmploymentWork Accommodations
Pain and Sleeplessness...I’ll be honest, I’ve always had some trouble sleeping. As a kid it would take me several hours to fall asleep, but once I was asleep I’d be out like...Reactions0reactionsComments2 comments
Experiments While I’m Waiting for a Cure...Do you remember the first question you asked when you were told you had AS? For me it was immediate - “Is there a cure?” I remember the kindly face...Reactions0reactionsComments4 comments
I Bought an Ankylosing Spondylitis Friendly Car...You can read my article "Driving Difficulties with Ankylosing Spondylitis" to see the difficulties I had driving my Mini. My Mini Cooper was my first car, and oh I loved...Reactions0reactionsComments7 comments
Preparing For My Rheumatology Appointments...No matter how many times I’ve seen my rheumatologist, I always find these appointments a daunting experience. I feel nervous. Many thoughts run through my head: What if my condition...Reactions0reactionsComments1 comments
Fatigue is getting to me...Hi guys, it's my first post here. I'm a man in my late 20s, diagnosed since 2013. Symptoms started a few years before that. Anyway, to jump straight into the...Reactions0reactionsComments27 replies
After covid...Hi, i am recovering from covid. IT's been very hard for me to fight with these virus that affect my helth a lot!! I am not well and i am...Reactions0reactionsComments5 repliesSide EffectsTips & AdviceCoping
Are Immune Boosters A Waste Of Time For People On Immunosuppressants? ...Last night I was looking into buying some foods and supplements to boost my immune system. But I suddenly had a thought - as I am taking medication to purposely...Reactions0reactionsComments6 repliesDiet & NutritionTips & Advice
Mental and physical hurdles with a new biologic prescription ...Hey all. I'm really curious to hear about your experience transitioning to a biologic, whether it was your first time on any biologic, or a move to a new biologic...Reactions0reactionsComments1 repliesTreatmentMental Health
My Altered Breakfast Routine...I have never been a good breakfast eater. I am not a morning person and to be able to have a meal in the morning has always been a challenge...Reactions0reactionsComments9 comments
