Anne-Marie Raymond...Anne-Marie Raymond experienced the onset of AS in her late twenties and was diagnosed at the age of 40. Since then she has been on a quest to live well...
What do you wish your partner knew about AS?...I’m a caregiver to my spouse, Keegan, who was diagnosed with AS 8 years ago. I’m curious from those of you with AS what you wish your partner, spouse, significant...Reactions0reactionsComments3 repliesCaregivingMisunderstood
Tips for Friends with Ankylosing Spondylitis (AS)...What advice would you give a friend living with ankylosing spondylitis (AS)?...Reactions0reactionsComments5 repliesAwarenessFriends & FamilyNewly Diagnosed
Tips for Friends with AxSpA?...What tips would you give a friend living with axial spondyloarthritis (AxSpA)?...Reactions0reactionsComments1 repliesNon-Radiographic Axial SpondyloarthritisRadiographic Axial SpondyloarthritisCommunity Support
Fusion ...I have full fusion in my neck area. I have no mobility in that area— up or down, left or right, side to side. I have lost 4 - 5...Reactions0reactionsComments15 repliesFatigue ExerciseTips & Advice
Any tips for working long days in front of a PC?...Hi all. Much of my life is now taken up in front of my PC. I struggle with the level of the PC because it is supposed to be on...Reactions0reactionsComments1 repliesCopingAlternative TreatmentTips & Advice
Supporting a Partner with AxSpA Vol. 2 - Advice for Others...This is volume 2 in a series of articles focusing on supporting loved ones with axial spondyloarthritis. The advice I would give to others with a spouse or family member...Reactions0reactionsComments2 comments
It's Not Working: Dealing With Treatment Disappointment...“Try this, it will totally change your life!” “This amazing drug is now over the counter, I use it every day!” “All I need is 100mg of this and I'm...Reactions0reactionsComments4 comments
Brain fog & tiredness ...Hi, I was diagnosed with AS a couple of years ago, made sense having experienced symptoms for years. I exercise as much as possible, probably drink too much coffee/red wine...Reactions0reactionsComments4 repliesDiet & NutritionFatigue Coping
How I Incorporate the Topic of AS into My College Work...I am a student studying Social Care Work. If you’ve read my article AS Doesn’t Give a Damn About College Deadlines or if you are a student, you will know...Reactions0reactionsComments1 comments
Blinded by AS...Ankylosing spondylitis diagnoses can take years to find, and they usually come after a ton of pain and unexplained symptoms with a search for doctors that will take you seriously...Reactions0reactionsComments9 comments
My First COVID-19 Vaccine...I was sitting in my friend's garden, socially distant when I received the text on Friday the 23rd of April saying that my consultant had registered me for my vaccine. I was due to have it on Wednesday the 28th of April. I was ecstatic. I was very shocked...Reactions0reactionsComments2 comments
Has AS Brought You Any Blessings?...Living with AS certainly is not the easiest ride. However I think that there are so many negative aspects to it that sometimes it is easy to overlook that it...Reactions0reactionsComments23 repliesMental HealthTips & Advice
HLA-B27 positive??...I'm a 40 year old male. I've been dealing with upper abdominal pain (chest pain with what feels like inflammation from the top of my stomach to my ears) the...Reactions0reactionsComments6 replies
Do you know anyone else (in person) who has the same condition as you?...I don't know anyone else, apart from my online friends, who have this condition. I'm curious to see if you do....Reactions0reactionsComments12 repliesAwarenessCommunity SupportFriends & Family
Switching From a Biologic to a Biosimilar...I began my first biologic treatment, Humira, just over a year ago. After 11 months, I had a follow-up appointment with my rheumatologist’s office. My prescription expired after one year...Reactions0reactionsComments3 comments
A Mental Health Flare-Up Kit...During a flare-up, we all have our tools and assistive devices to make things better. From a walker to a cane to a showering chair, we try to keep up...Reactions0reactionsComments15 comments
Pain after fall...My husband had a bad fall a week ago and has since needed to sleep in a chair as he has severe pain trying to lay down. He had an...Reactions0reactionsComments3 repliesTreatmentSymptoms
How long have you been diagnosed for?...How long have you been diagnosed for? Did it take long for you to be diagnosed? I am diagnosed just over a year and luckily I was diagnosed within a...Reactions0reactionsComments7 replies
How have you been sleeping recently?...How well are you sleeping? The past few months I've been having trouble sleeping. The nights that I can sleep then I find difficult as I now have no sleep...Reactions0reactionsComments16 repliesSleepSymptoms
