What's The Strangest Thing You've Tried That Has Helped Your AS?...There are so many different tips and tricks out there to help manage AS. But a lot of them are pretty similar...reactions8repliesAlternative TreatmentTreatmentTips & Advice
My nr-AxSpa Biologic Journey: Part Two...Editor's note: Read part one of Pamela's journey here. The next step in my biologic journey was Cimzia. First, the bad news:...reactions2comments
My Blackout Lessons ...My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day...reactions3comments
Things I Still Do With AxSpa!...I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I...reactions1comment
One Day I Went to Bed and Never Woke Up...My journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems...reactions3comments
How Seeing My Symptoms Differently Changed Everything...I remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange...reactions13comments
As We Gather: Hydrating Recipes for Wellness...Months have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a...reactions2comments
What do you do to treat yourself?...I mean, as in a treat for yourself - a trip out, a special meal, that sort of thing....reactions30repliesCopingTips & Advice
3 Ways To Get An Energy Boost...Just to set the stage-—I’m not the one with AS. My husband, Keegan, is. And I’m his caregiver. We both are at...reactions4comments
Has anyone had sciatica as a result of their AS? ...I had the most dreadful sciatica a few years ago. So bad I couldn't walk properly for three months. I was just...reactions1replyAwarenessSymptoms
The Long Path to Diagnosis...I read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer...reactions4comments
Tips to Advocate for Yourself at the Doctor’s Office...Getting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health...reactions1comment
My Family Doctor Gaslit Me...Up until recently, I’d been pretty lucky with my doctors. My family doctor was the first doctor I told about my pain...reactions5comments
7 Years in No Diagnosis Land, Part 3: Answers...In part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally...reactions6comments
Mobility Aids Are Freedom...Many people use mobility aids. These include canes, crutches, walkers/rollators, wheelchairs, etc. They are common things you can come across every day...reactions4comments
Getting Over Humira Injection Fear...Picture this: I'm seven years old, and there are several large adults holding me down to a hospital bed so that a...reactions1comment
How I Cope With Stiffness: Stretch Every Day...I need to stretch every day. Without fault, my hips are always stiff and the only way to keep adequate mobility is...reactions5comments
My Disease is Dynamic: This is What it Looks Like for Me...Something that's getting a lot of attention in the chronic illness community right now is the idea of a dynamic disability. So...reactions4comments
Part One Of My Diagnosis Story: Getting Diagnosed in China...I thought I would share my diagnosis story with you guys for two reasons. Firstly, because it’s a pretty unique and crazy...reactions8comments
Pivoting With AxSpa...I think one of the biggest misconceptions I had about my AxSpa journey was that when I found the right medications, diet...reactions1comment
