Hold for Infections: My Recent Experience with Biologics and Immunosuppression...My life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I had been self-medicating with NSAIDs for years (without...reactions7comments
Knee supports for arthritis and meniscus pain ...Can anyone suggest any decent knee supports please ? That support the meniscus, are wearable under or over jeans and can be used for exercise as well as just daily...reactions1replyTips & AdviceAssistive DevicesExercise
When the Rain Came...Summer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa, my wife, has signed up at our local...reactions4comments
Hiking and Discovering...Living on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you want to spend the day on the beach...reactions4comments
Questions I Ask Myself When Seeing a New Doctor...Let’s talk specialty physicians. If you grimaced at the thought of having this conversation, you probably have had the same experience that it seems like almost everyone in the AS...reactions7comments
Dealing With FOMO...Keeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or going for long walks in the trails of...reactions4comments
The Hidden Costs of AxSpA...Cost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a cost. The explicit costs of living with AxSpA...reactions3comments
Advocates Sharing With Advocates: René Interviews James...One thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS. No journey is the same and everybody has...reactions4comments
Has Your Condition Brought You Any Blessings?...Living with Axial Spondyloarthrtitis can come with so many negatives that it is sometimes easy to overlook that it can also come with a few blessings too For me, it...reactions7repliesMental HealthTips & AdviceCoping
Dogs With Purpose...As I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at least that I know of), they provide some...reactions9comments
Am I Really Disabled?...I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes, I am a young person and therefore deemed...reactions6comments
Casey, A Supportive Person in My Life...When I first got diagnosed with AS, I felt distraught. But I was very lucky to have someone in my life who is not only a medical professional but a total support to me...reactions5comments
Managing Everyday Tasks with AxSpa...As many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become things that exhaust us. Since you are part...reactions11comments
Advice For My Younger Self...I knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got my diagnosis. I knew it when my eyes...reactions7comments
Trying to stay positive despite this illness...Hello new friends! Thanks for reading and being here! I was diagnosed with AS April 2020 and it's definitely been a life changer. Everything started in January of last year...reactions6repliesAxial Spondyloarthritis Fatigue Flares
An Ode To Chronic Fatigue...You know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like a marathon? It's the kind of fatigue that...reactions9comments
I've Hit Caregiver Burnout...Now What?...I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know what's coming. Dinner needs to happen. Kids need...reactions2comments
Societal and Familial Pressures...Disabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms, attending a handful of appointments, and reoccurring flare-ups...reactions3comments
What's The Strangest Thing You've Tried That Has Helped Your AS?...There are so many different tips and tricks out there to help manage AS. But a lot of them are pretty similar - stretching, eating healthy, bathing etc. I was...reactions8repliesTreatmentTips & AdviceAlternative Treatment
Working Virtually Is A Pain!...When the Pandemic hit, we were all sent home from our jobs and schools. For a while things were pretty easy breezy. Wake up when you want, eat when you...reactions1comment