How Connecting to Nature Helps Chronic Pain...Keegan, my husband with AS, always has loved being outside. When I first met Keegan, I was surprised at the 30-minute ride in the hills of southeastern Ohio resulting in...reactions5comments
Support Group Doomscrolling...When I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual diagnosis to learn about. I had a ton...reactions3comments
René Agterhof...René was previously a health leader on AxialSpondyloarthritis.net. René Agterhof has been an Ankylosing Spondylitis patient for almost thirty years. René is a resident of the Netherlands. At age nine...
Ali Long...Ali was previously a health leader on AxialSpondyloarthritis.net. Hello! My name is Ali, I am a 23-year-old student studying Social Care Work. I live by the sea in the south...
Yes, I'm Disabled...I think this topic is something that people with AS struggle with. I know I do, so I wanted to write about it in case anyone else was too. Are...reactions4comments
Adding Injury to AxSpA Pain: Thinking About Acute vs. Chronic Pain...Most of the pain I feel these days--well, for the past two decades--is chronic pain related to AxSpA. As I’ve previously mentioned, pain is difficult to describe and I struggle...reactions4comments
How I Cope with Pain...Being in nearly constant pain is a very difficult concept for anyone to come to terms with. It can feel so isolating, and can really disrupt your life, and at...reactions2comments
Stretching for Costochondritis Pain...Costochondritis is a condition that causes pain in the chest area. It usually happens when the cartilage around your ribs gets inflamed and swollen. Your rib cage is made up...reactions16comments
9 Tangible Ways AS Has Helped Me...I can tell you 10,000 ways AS has limited me, annoyed me, pained me, frustrated me, and made me feel just awful. I know you can, too. In fact, I...reactions2comments
City Living With Chronic Illness, Part 2...Read part 1 here (where I go over how city life affects me, and how it's affected others). In this part, I'll go over what people go through when they...reactionscomments
A Weekend Hike and the Painful Aftermath...I thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body some low-impact exercise, and my mind a bit...reactions3comments
Why We Don't Need 2021 Resolutions...With the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long haul that was 2020, we want to be...reactions1comment
Finally Getting a Grip on AS...Hi all! So here's my story, eight years after being diagnosed I'm finally researching about AS, hearing other peoples' stories and learning of alternative treatments. I was diagnosed with AS...reactions8comments
Every Day is a Marathon...We all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”. This is different. I did not party, work...reactions4comments
Ali Cornish...Ali was previously a health leader on AxialSpondyloarthritis.net. Ali Cornish is a freelance writer and founder of Everthrive who lives in northern Colorado with her husband and two young sons...
When Our Loved Ones Don’t Get It...I feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time for some, but for others, it may never...reactions2comments
City Living With A Chronic Illness, Part 1...I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is an exploration of how we can embrace the...reactions2comments
Removing the Scary Stigma of Biologics...I went into my first rheumatology appointment of the year last week with one thought on my mind: I think I might need to go on biologics again. I'll be...reactions10comments
What Advocating for Yourself Can Look Like...At the beginning of December, I had adjusted my biologic in the hope to have some relief for the increasing AxSpA symptoms I was experiencing after a brief period of...reactions1comment
Reflecting on my First Year with a nr-AxSpA Diagnosis...January 2021 marks one year since my diagnosis of non-radiographic axial spondyloarthritis, or my first AxSpAversary if you will. I can confidently say between a pandemic and a newly diagnosed...reactions4comments