Painful...I have SI issues, hip back, knees, stiffness, GI issues, pelvic, and groin issues, fatigue, anxiety, depression, DDD, diabetes, only diagnosis osteoarthritis feels like much more heat helps a lot....Reactions0reactionsComments1 comments
I am a nurse soon receiving a COVID-19 vaccine while living with AxSpA. Should I be worried?...Hi my name is Helen and I have had a recent diagnosis of axial spondyloarthritis, I work as a nurse and am really worried about how this will effect my...Reactions0reactionsComments5 replies
5 Signs A Flare Is Coming...When a flare-up is about to happen, there are a few tell-tale signs I always experience. I’ve had axial spondyloarthritis for about 10 years, although it’s been really active for...Reactions0reactionsComments16 comments
7 Mindset Shifts To Get Through A Flare-Up...I've been in the worst flare-up for the past week or so. My pain levels are steadily sitting between seven and 10, and it's not showing many signs of letting...Reactions0reactionsComments1 comments
Combating A Negative Mindset With Wellness Planning...I’ve been struggling lately. Things haven’t been going my way for quite some time now, and it’s really begun to take a toll on me emotionally. I’d say the beginning...Reactions0reactionsComments9 comments
How can I feel comfortable about my future? How will I take care of myself?...How does someone, married or not, feel confident about their financial future if they can’t work? Are people worried their insurance will not last forever as it currently is? How...Reactions0reactionsComments2 replies
Ways I Didn't Expect AS to Affect Our Lives...Looking back on my life, it's always strange to think about what it was like in college. Keegan, my husband with AS, was just beginning to show symptoms. We studied...Reactions0reactionsComments6 comments
Periods and Ankylosing Spondylitis: How I Manage...Whenever my period is on its way, I know the true (monthly) battle is beginning. Not only do I contend with the fatigue and pain from ankylosing spondylitis (or radiographic...Reactions0reactionsComments14 comments
The Frustrations Of Arthritis Advocacy...Outsiders could be forgiven for mistaking the constant parade of advertisements for treatments for arthritis, psoriasis, Crohn's disease, and ulcerative colitis for proof that the war is over. Taken together...Reactions0reactionsComments1 comments
Like Mother, Like Sons: Part 2...Editors note: This is part 2 of Jed's interview, and part 1 can be found here. If you didn’t read “Part 1” yet, Brenda (32) is diagnosed with RA, while...Reactions0reactionsComments1 comments
A Holiday Season Like No Other...The holidays are a time for family, for gathering and catching-up and enjoying the company of our loved ones. Living away from family, the holidays are one of the few...Reactions0reactionsComments0 comments
Women Don’t Get AxSpA?! This Old Story Needs to Go!...I have recently changed rheumatologists. I have been living with AxSpA for seven years, if we don’t count the years I had symptoms but was not diagnosed with a particular...Reactions0reactionsComments2 comments
Feeling Frustrated...I am so frustrated and angry. I moved 3 years ago and can't find a rheumatologist in my area that doesn't want my medical records before they will even make...Reactions0reactionsComments2 comments
Reflecting On My Past Year With AS...I turned 35 on November 3 (yes, election day, and no — that wasn't ideal at all, ha!). The night before — before midnight — I got into the bath...Reactions0reactionsComments1 comments
How do I know if I have ankylosing spondylitis?... Many people in our community come here looking for answers. Most of us here know what that feels like. What were some of symptoms that lead you to seek...Reactions0reactionsComments5 replies
Stepping Back From the Community When It Becomes Too Much...I've said it a million times, and I'll probably say it a million more; the chronic illness community is one like no other. There is so much love and support...Reactions0reactionsComments1 comments
Spondylitis, Spondylosis, Spondylolisthesis: What Is the Difference?...The names of 3 health conditions that affect your spine sound very similar. However, spondylitis, spondylosis, and spondylolisthesis have some key differences. Here is a guide to each one. As...Reactions0reactionsComments2 comments
44 Years To Diagnosis...I had my first low back pain “attack” at 14. Doctors gave me pain meds, muscle relaxers and said go home and use a heating pad. That one lasted about...Reactions0reactionsComments1 comments
Love Reading, Hate Neck Pain...I love reading and spend a lot of time in my chair with my neck bent down or in bed on my side reading. My physical therapist suggested I get...Reactions0reactionsComments2 comments
Smart Crutches Were My Best Choice...I’m 22 years old (soon to be 23) and I’m already having movement problems stemming from the pain and stiffness of AS (along with fibromyalgia and fatigue problems). I’ve used...Reactions0reactionsComments1 comments
