If you used Humira, how long did it take to work for you — any side effects?...I started humira a few years ago and came off it a few months later after bouts of shingles and infections. I fear it didn't work because I came off...reactions2repliesTreatmentSide Effects
FeaturedI need total flexibility in order to have a social life...I am definitely battling fatigue much more often these days; even when I'm not in pain, fatigue can take me out as I've run into a wall. So friends have...reactions4repliesFriends & FamilySymptoms
Beyond Medication: Managing Axial Spondyloarthritis Holistically...When I first was diagnosed with ankylosing spondylitis, I didn’t see or read a lot about stress management. In fact, all of that seemed strangely disregarded, as though our minds...reactions3comments
My Challenge to Adapt to the Unpredictable AxSpa...I used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and gatherings in my house. I would get very...reactions4comments
Our Winding Journey to Finding Rheumatologists...Since I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find rheumatologists. This was definitely the case for my...reactions4comments
FeaturedWhat does everyone's treatment plan look like?...While two people may have the same diagnosis for axial spondyloarthritis, they may have stark treatment recommendations from their healthcare team. Medication that may work for one person may cause...reactions5replies
I Don’t Like Long Walks on the Beach: Dating and Chronic Pain...For anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having a chronic illness adds another dimension to that...reactions3comments
Balancing School While Managing AS...Starting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first semester of journalism, and despite how ready I...reactions1comment
Sharing the Good Days When You Have AxSpA...At the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays had been very difficult in the past and...reactions2comments
I Decided to Reclaim my Body...Something that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean, our bodies do actively work against us every...reactions1comment
Sarah Lee...Sarah was previously a health leader on AxialSpondyloarthritis.net. When I was nine I began experiencing excruciating pain in all of my joints. My mom suspected it was Ankylosing Spondylitis as...
First RA, Now AS...I was diagnosed with rheumatoid arthritis (RA) 6 years ago. Now I'm told it could be ankylosing spondylitis. Has this happened to anyone else?...reactions3replies
Sarah Islam...Sarah was previously an advocate on AxialSpondyloarthritis.net. Sarah is a 26-year-old fourth-year medical student at Indiana University School of Medicine. Originally from India, she currently lives in Indianapolis with her...
How Connecting to Nature Helps Chronic Pain...Keegan, my husband with AS, always has loved being outside. When I first met Keegan, I was surprised at the 30-minute ride in the hills of southeastern Ohio resulting in...reactions5comments
Support Group Doomscrolling...When I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual diagnosis to learn about. I had a ton...reactions5comments
René Agterhof...René was previously a health leader on AxialSpondyloarthritis.net. René Agterhof has been an Ankylosing Spondylitis patient for almost thirty years. René is a resident of the Netherlands. At age nine...
Ali Long...Ali was previously a health leader on AxialSpondyloarthritis.net. Hello! My name is Ali, I am a 23-year-old student studying Social Care Work. I live by the sea in the south...
Yes, I'm Disabled...I think this topic is something that people with AS struggle with. I know I do, so I wanted to write about it in case anyone else was too. Are...reactions4comments
Adding Injury to AxSpA Pain: Thinking About Acute vs. Chronic Pain...Most of the pain I feel these days--well, for the past two decades--is chronic pain related to AxSpA. As I’ve previously mentioned, pain is difficult to describe and I struggle...reactions4comments
How I Cope with Pain...Being in nearly constant pain is a very difficult concept for anyone to come to terms with. It can feel so isolating, and can really disrupt your life, and at...reactions2comments
